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Topic: Helpful Hints - MUST READ!! (Read 6714 times) |
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Ghost
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Helpful Hints - MUST READ!!
« on: Feb 20th, 2006, 4:40pm » |
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These I think may be helpful to people new and old, I hope maybe to see them with KIP scale as additional help to newcomers.
Mike
Helpful Hints
• At each level of the Kip scale see prior and add to where you are.
• Most attacks last from 15 min. to 3+ hours.
• O2 is a valid and preferred treatment at most levels of pain to end(abort) a Cluster Attack sooner. Usually administered at 10-15 lpm with a Non re-breather mask.
• For most it is also necessary to use Imitrex injection. see "imitrex tip"
• Most oral meds and inhaled meds will not affect the attack you are in now, but if taken prior to attack may result in some relief.
• The Levels listed here are a guideline to measure the intensity of an attack.
• For most the attack ramps up rapidly and subsides almost as fast, but it may take several hours to recover from it. Very energy draining.
• Caffeine and Red Bull may also assist in aborting an attack.
• Most Cluster Headache sufferers are misdiagnosed for many years, some with sinus headaches, tension headaches, migraines, and even toothaches/infections.
• Cluster headaches can and often are accompanied by other types of headaches, Sinus, Stress, Migraine, and others making it hard to detect and/or diagnose.
• Cluster Headaches are real and should never be considered a minor inconvenience, The cause is still being debated but there is no known cure as of yet.
• Remember you are the one suffering, don’t let others tell you how much it doesn’t hurt!
• Shadow; some of the symptoms but without a measurable amount of pain(pressure).
• Twinge; Short burst of pain usually to fast to produce side effects.
• Phantom; Body experiences all symptoms of an attack without measurable pain/burning sensation. (Droopy eye, Running nose, and Tearing.)
• Episodic; Episodes of Cluster headaches that are under 1 year in length, or with 30 days or more during a calendar year of being Pain Free.
• Chronic; Episodes of Cluster headaches that are over 1 year in length, or with less than 30 days during a calendar year of being Pain Free.
• There are various methods and treatments, both conventional and non-conventional. Overall it seems Oxygen at a higher rate while using a Non re-breather mask seems to be the most effective abortive.
• Some people experience Cluster attacks as a result of a trigger ie. alcohol, smoking, foods, ect…
• Never let a doctor, or other medical professional dismiss it as psychosomatic, or imagined pain.
In Honor of Robert(Bob) Kipple who passed on the day this was posted. God Bless his work and Thank You Kip for being. May all who enter this site know the name Robert Kipple and find comfort with knowing he found for us a common ground. He passed peacefully in his sleep on 2/20/06.
The groundwork he laid before us,
the rest we must carry on.
Heaven has called up,
today a beloved son.
Pain in his life he knew,
but compassion he delivered.
For those of us that knew him,
knew he would have had it no other way.
Pain for most of us is a reality of life,
To be pain free a dream, but a dream we must realize.
Those he has helped and those will help still,
Remember Robert Kipple for all of us, forever will.
Mike 2/21/06
In Memory of Robert (Bob) Kipple Creator of the KIP Scale. We love you KIP!
2/22/06 - DJ edited subject of post
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| « Last Edit: Feb 22nd, 2006, 9:33am by DJ » |
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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Jasmyn
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Re: Helpful Hints
« Reply #1 on: Feb 20th, 2006, 5:02pm » |
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This is Great Stuff Goat!
It should be called "Mike's Helpful Hints".
DJ I want to seriously petition that this great store of information be added to the Kip scale on the left.
When new people enter the board this will give them better insight in most of the frequently asked questions related directly to their pain scale.
I ask of others on this board to please support this idea.
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Jazz
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Ghost
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Re: Helpful Hints
« Reply #2 on: Feb 20th, 2006, 5:05pm » |
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on Feb 20th, 2006, 5:02pm, Jasmyn wrote:This is Great Stuff Goat!
It should be called "Mike'sGoats Helpful Hints".
DJ I want to seriously petition that this great store of information be added to the Kip scale on the left.
When new people enter the board this will give them better insight in most of the frequently asked questions related directly to their pain scale.
I ask of others on this board to please support this idea. |
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There Fixed it!
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| « Last Edit: Feb 20th, 2006, 5:05pm by Ghost » |
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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Richr8
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Many of the sites...
« Reply #3 on: Feb 20th, 2006, 5:37pm » |
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...I frequent have FAQ areas where this would fit nicely, along with a number of other commonly asked/answered questions and facts. These are very useful to newbs and more so for vets as they do not have to answer the same questions over and over.
Rich
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| « Last Edit: Feb 20th, 2006, 9:35pm by Richr8 » |
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Dragnlance
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Re: Helpful Hints
« Reply #4 on: Feb 20th, 2006, 9:31pm » |
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Quote: DJ I want to seriously petition that this great store of information be added to the Kip scale on the left.
When new people enter the board this will give them better insight in most of the frequently asked questions related directly to their pain scale. |
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I agree with Jasmyn 100%, and thank Ghost for posting it!
Dragn
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Jasmyn
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Re: Helpful Hints
« Reply #5 on: Feb 21st, 2006, 10:29am » |
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I think this is very important for the board so I'm bumping it.
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Jazz
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marlinsfan
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Re: Helpful Hints
« Reply #6 on: Feb 21st, 2006, 11:05am » |
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DJ: I agree with Jas.
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LeLimey
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Re: Helpful Hints
« Reply #7 on: Feb 21st, 2006, 11:07am » |
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Goat I'm impressed, thats a fantastic post and I too think it's worth pinning or saving or whatever has to be done with it, well done matey! 
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Linda_Howell
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Re: Helpful Hints
« Reply #8 on: Feb 21st, 2006, 12:28pm » |
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Jeeeeze. The old Goat did something good?????????
will wonders never cease.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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mrs mac
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Re: Helpful Hints
« Reply #9 on: Feb 21st, 2006, 12:42pm » |
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BUMP
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Lizzie2
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Re: Helpful Hints
« Reply #10 on: Feb 22nd, 2006, 12:34am » |
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Jas or Ghost - did you email/PM Deej to ask him to sticky this or include it in the links to the left? That's the best way to get his attention to this stuff!
Nice work, Ghost!!! Provides some very clear statements that would definitely help to answer a lot of the more common questions. 
Hugz,
Carrie
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Jasmyn
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Re: Helpful Hints
« Reply #11 on: Feb 22nd, 2006, 3:44am » |
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Thanks Carrie for the advise, did so now
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Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
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Melissa
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I agree with the others.
Fantastic job Mike!
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Jasmyn
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Re: Helpful Hints - MUST READ!!
« Reply #13 on: Feb 22nd, 2006, 10:02am » |
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Thank you DJ for pinning it up here 
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Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
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thebbz
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Re: Helpful Hints - MUST READ!!
« Reply #14 on: Feb 22nd, 2006, 10:09pm » |
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Rest in Peace Kip.  Prayers and condolences 
jb
Thanks for the post Ghost. He will be sorely missed here.
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Sean_C
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Re: Helpful Hints - MUST READ!!
« Reply #15 on: Feb 24th, 2006, 12:17am » |
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Great post Mike, and thanks Deej.
Thank you Bob for all that you've done for us. I know we shall meet again my friend, this I will promise you. May you find comfort Janet knowing he's in Gods arms.
Brad Paisley - When I get Where I'm Going
Much love and blessings to you all,
The Clancy family..................................
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sandie99
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Re: Helpful Hints - MUST READ!!
« Reply #16 on: Feb 24th, 2006, 1:26pm » |
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Great post, Mike!
Sanna
P.S. I love that country song, Sean.
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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MJ
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Re: Helpful Hints - MUST READ!!
« Reply #17 on: Feb 24th, 2006, 7:10pm » |
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Nice work Ghost and in memory of one I never knew in person but through pain we knew him well. His name will live on.
Rest well Mr. Kipple.
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MJ
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bluebrain
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Re: Helpful Hints - MUST READ!!
« Reply #18 on: Feb 27th, 2006, 4:24am » |
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Thank you kip for sharing your knowledge with us,
rest in peace.
bluebrain
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llreed
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Re: Helpful Hints - MUST READ!!
« Reply #19 on: Mar 17th, 2006, 7:33pm » |
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Well Done,
Diffently a gem.
Rest in peace Kipple....
llreed
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Tryn2helpstubrn
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Re: Helpful Hints - MUST READ!!
« Reply #20 on: Mar 30th, 2006, 6:52pm » |
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Thank you for this. It helps me as much as it will help Stuborn, I think and I hope.
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pussers_rum
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Re: Helpful Hints - MUST READ!!
« Reply #21 on: Mar 31st, 2006, 10:53am » |
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very helpful. please bump it.
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Garys_Girl
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Re: Helpful Hints - MUST READ!!
« Reply #22 on: Apr 4th, 2006, 9:07pm » |
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Definitely helpful to us newbies.
So sorry to hear of Mr. Kipple's passing. Hope he was pf long before he didn't wake up.
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____________________________________
Laurie
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floridian
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Re: Helpful Hints - MUST READ!!
« Reply #23 on: May 4th, 2006, 2:08pm » |
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Good post, but have to disagree with:
Quote:
• For most it is also necessary to use Imitrex injection.
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Imitrex is generally very effective, but has a significant side effects profile and may actually increase the frequency of hits and the length of a cycle. Imitrex is one option to consider, but it is wrong to call it something most people Need.
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| « Last Edit: May 4th, 2006, 2:10pm by floridian » |
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Jonny
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Re: Helpful Hints - MUST READ!!
« Reply #24 on: May 4th, 2006, 7:13pm » |
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on May 4th, 2006, 2:08pm, floridian wrote:Good post, but have to disagree with:
Imitrex is generally very effective, but has a significant side effects profile and may actually increase the frequency of hits and the length of a cycle. Imitrex is one option to consider, but it is wrong to call it something most people Need.
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Damn!, as much as I hate doing this......Flo, has a good point. 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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