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Topic: droopy eye (Read 1007 times) |
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agonymum
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hi all , this is my 3rd cycle but the only one where i have recognised what it was , thanks to this site .
previously it was thought to be trigeminal neuralgai, and last time a sinus infection and an abcessed tooth.
(ive had 2 big molars pulled now , one just last week , and i really dont think i needed them out -but its too late now so ..hey ho)
my question is about the droopy eye. on my cluster side (right) , during an attack it is nearly closed , streaming with tears and the whole side of my face drops with it , it looks like ive had a stroke and i cant speak properly just mumble .
as soon as its over , it goes as quick as it came .
BUT, the eye droopiness has seemed to have stayed with me , the right eye looks permenantly dropped and smaller that the other one .i have to do a clever cover up job with my make up to hide the fact .
its quite depressing to think this is a legacy of these attacks which will stay with me outwardly .
i wondered if any one can identify with this ?
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maffumatt
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its normal, mine droops a little during my entire cycle, more so during an attack. People vary though, some don't even get it at all.
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chewy
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Quote:i have to do a clever cover up job with my make up to hide the fact .
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Me to. Fortunate for me I'm a transvestite.
Seriously, the droopy eye thing is a classic cluster symptom. Just comes with the territory.
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carriefu
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Re: droopy eye
« Reply #4 on: Jan 24th, 2006, 10:18pm » |
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my left eye never quite opens during the whole cluster
dont worry , it will open up
it embaresses me to no end
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Barry_T_Coles
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Re: droopy eye
« Reply #5 on: Jan 24th, 2006, 10:38pm » |
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Yep I get the same: although it's not prominent I can see it, also the left side of my face the cluster side always feel heavy even when out of cycle but this may be due to the Exploding head syndrome I battle with which only attacks my left.
As Chewy say's it's a classic for some.
Kind Regards
Barry
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agonymum
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Re: droopy eye
« Reply #6 on: Jan 25th, 2006, 5:30am » |
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thanks very much everyone for responding .
hey E-double how did you get that picture of me ?? 
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Ghost
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Re: droopy eye
« Reply #7 on: Jan 25th, 2006, 10:03am » |
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on Jan 25th, 2006, 5:30am, agonymum wrote:thanks very much everyone for responding .
hey E-double how did you get that picture of me ?? |
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He is good aint he? 
You should see the one Donna D got of me! 
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Guiseppi
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Re: droopy eye
« Reply #8 on: Jan 25th, 2006, 11:06am » |
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My wife will sometimes see my cycle start before I get the first headache cuz my "lazy eye" kicks in. When i was 18 they prescribed glasses for my lazy eye assuming that was causing my headaches!!
Guiseppi
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E-Double
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Re: droopy eye
« Reply #9 on: Jan 25th, 2006, 2:25pm » |
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Here's a question and maybe I will start a new thread....
Is your CLUSTER eye smaller regardless of attack.
Mine is.
It isn't coc keyed (just in case of censor) but it is smaller and always has been.
Just curious.
E
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agonymum
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Re: droopy eye
« Reply #10 on: Jan 25th, 2006, 3:32pm » |
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no my left eye is smaller than my right which is the cluster side 
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jon019
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Hi E,
Never had the droops, just lots of tears (sometimes both kinds). The pupil does constrict to a pinpoint which looks really weird (have seen it reported that it opens for others). We're all the same here BUT we're all different too!
Regards
Jon
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boybath
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Re: droopy eye
« Reply #12 on: Jan 25th, 2006, 4:07pm » |
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hun
mine droops and stays there for a while. Personal theory since ch is due to pressure on nerves it depends what blood vessels are pushing on which nerve at what time. Ergo some times I get tooth ache in an attack some times I dont. I do find myself starring at a mirror or asking the mrs if my eye is drooping before i have an attack.
Mind you I am a certifiable LOONatic as well
so that migh explain alot
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BarbaraD
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Re: droopy eye
« Reply #13 on: Jan 25th, 2006, 4:27pm » |
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My left eye "stays" drooped" and it's been that way for so many years (I'm chronic) that makeup don't cover it no more, so I just live with it. Another CHer can spot which "side" my CH is on without asking - that's how prominent it is.
Oh well.... I'm OLD - what can I say... Life's just full of lemons..
Hugs BD
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tessa_c
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Re: droopy eye
« Reply #14 on: Feb 25th, 2006, 10:44pm » |
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im a left sider and my eye gets droppy and puffy with the shadows. during an attack it could look like i was sucker punched in it. ive tried the makeup trick to. with a sheer highlighter from the lid to a little above the crease. it look good alone or could be a great sealer from eyeshadow. its called eye tints by clinque. comes in a lot of different shades. and the great part about is that they have samples of it and you can try it before you buy it.
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CHTom
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I'm chronic and my left eyelid always droops, sometimes more and sometimes less. Years ago a colleague came to me and said that some women (and men!) patients thought that I was "coming on" to them because they thought that I was "winking" my eyelid at them-ever since I tell patients about my drooping left eyelid and haven't had a problem with that since.
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Charlotte
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Re: droopy eye
« Reply #16 on: Aug 19th, 2006, 11:19pm » |
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on Jan 24th, 2006, 7:15pm, E-Double wrote:
This is one of the reasons the neurologist thought my ha was not ch. It feels as though it looks like this but it does not look like this. I have tearing up and pain here but my eye area change is under the eye, like a black eye or puffiness, and no droop. Also, the tearing is with most but not all ha.
One of the reasons he thought the ha was not cph or hc was that I have a level 0 pain free time between each hit which is apprxly 2 hours apart, and has been for at least 6 months. Before that, they were 3 hours apart for about 10 weeks, and prior to that 4 or more hours for the previous year, with short erratic cycles in between things.
He said it is definitely not migraine.
Years ago, when I did have ch diagnosis, it was included in "combination vascular headache", and the hit was once daily at 2:50 pm daily. Midrin worked then, and I only had 3 really bad days a week.
The neurontin, indomethacin, kudzu, maxalt melt, and red bull are helping. I am still having every 2 hour or so ha but I am getting a life.
Charlotte
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| « Last Edit: Aug 20th, 2006, 1:04am by Charlotte » |
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Neekwa
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Re: droopy eye
« Reply #17 on: Aug 20th, 2006, 4:48am » |
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Weird, I was just going through the eye thing for a day straight before coming across this.
I have the normal symptoms as pointed out with the tearing etc. This last week I had a head cold along with regular daily attacks.
My right eye actually puffed up underneath, and was noticably smaller than the left. It made that eye look asian in my case. Guess that depends on the type of eyes you have.
Anyway, this was also accompanied by pain. Not extensive pain like the headache pain, but like a pressure pain. For example if I just shut my right eye it would be uncomfortable. If I put pressure on it (as in slightly pushing on it) -- it would be uncomfortable as well.
Back to normal after a day though.
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| « Last Edit: Aug 20th, 2006, 4:50am by Neekwa » |
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Katherinecm
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Re: droopy eye
« Reply #18 on: Aug 21st, 2006, 1:04am » |
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My right eye is slightly droopy and permanently somewhat bloodshot during a cycle. This is obvious enough to other people that once when I was in a restaurant booth with my right side towards the waiter he asked how much it would take to score some of the stuff I was on. He was sure I had just smoked up prior to coming in. During a hit it gets worse, and visine doesn't help.
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Sandy_C
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Re: droopy eye
« Reply #19 on: Aug 21st, 2006, 2:09pm » |
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I'm episodic, and one of the lucky ones. I will have anywhere from 18 to 24 months of PF time between cycles. Although, as I write this, it's been only 12 months and I'm showing signs of a new cycle.
Anyway, in cycle, my eyelid will always remain a little droopy, and during a hit, I'll look like I just lost the bout!. Since my last cycle ended, July 2005, my right eyelid (CH side) has always been just slightly lower than usual. I, too, can cover that with makeup. Prior to this, my eyelid always retracted to "normal" while between cycles. This time - not.
Sandy
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seasonalboomer
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Re: droopy eye
« Reply #20 on: Aug 21st, 2006, 2:44pm » |
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on Aug 21st, 2006, 2:09pm, Sandy_C wrote:I'm episodic, and one of the lucky ones. I will have anywhere from 18 to 24 months of PF time between cycles. Although, as I write this, it's been only 12 months and I'm showing signs of a new cycle.
Anyway, in cycle, my eyelid will always remain a little droopy, and during a hit, I'll look like I just lost the bout!. Since my last cycle ended, July 2005, my right eyelid (CH side) has always been just slightly lower than usual. I, too, can cover that with makeup. Prior to this, my eyelid always retracted to "normal" while between cycles. This time - not.
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Sandy, that might just be you getting old.....  ........ Your post also reminded me of the recent "Pirates of the Caribbean" film, where the Jonny Depp character has eyeballs painted on his eyelids. You mentioning that you can cover your droopy eyelid with make-up triggered that silly thought.
Sorry, just a little silly this afternoon.
I'm hoping for you that you get your full remission time and the cycle passes you by.
Scott
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Margi
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Re: droopy eye
« Reply #21 on: Aug 21st, 2006, 2:48pm » |
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on Aug 21st, 2006, 2:44pm, seasonalboomer wrote:
"Pirates of the Caribbean" |
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or.... "Carrots of the Pirabbean" as my daughter calls it.
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Bond007
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Re: droopy eye
« Reply #22 on: Aug 21st, 2006, 4:02pm » |
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I'm guessing I'm kind of on the lucky side of this thing as I don't get the droopy eyelid or the tearing eye. In fact, my nose doesn't even run. Then, again, my nose has NEVER gotten runny even as a child.
I do get a TERRIBLE post-nasal drip, though and one helluva congested left nostril. My left pupil will dilate until it's almost unrecognizeable without a magnifying glass and my eyeball gets incredibly bloodshot. Anyone who knows me can tell in an instant that I'm about to get hit a headache long before I even know just by the incredible difference in size of my 2 pupils.
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Sandy_C
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Re: droopy eye
« Reply #23 on: Aug 21st, 2006, 5:21pm » |
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on Aug 21st, 2006, 2:44pm, seasonalboomer wrote:
Sandy, that might just be you getting old..... ........ Your post also reminded me of the recent "Pirates of the Caribbean" film, where the Jonny Depp character has eyeballs painted on his eyelids. You mentioning that you can cover your droopy eyelid with make-up triggered that silly thought.
Sorry, just a little silly this afternoon.
I'm hoping for you that you get your full remission time and the cycle passes you by.
Scott |
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Gee, Thanks a whole bunch Scott! Old! I refuse to get old, says my mind. My body, on the other hand ??????
And I haven't seen the new Pirates yet - so don't tell me anything about it! Johnny Depp - Sigh! 
Sandy
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walkertexasranger
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Re: droopy eye
« Reply #24 on: Aug 24th, 2006, 11:00pm » |
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Search for Horners Syndrome...
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