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Topic: Going to a Neuro (Read 501 times) |
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ScottEinDC
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Going to a Neuro
« on: Jan 18th, 2006, 2:54pm » |
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My GP Doc gave me a referral to see Dr. Philip Pulaski, here in Washington, DC. Anyone have any experience, positive or negative regarding Dr. Pulaski?
What experiences do any of you have with the neuro? Should I bring my recent MRI pictures?
Thanks
Scott
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Ghost
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Farting relieves the pressure
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Re: Going to a Neuro
« Reply #1 on: Jan 18th, 2006, 3:22pm » |
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Bring the pics, No dealings but dont let him push you around. Come prepared and ready to defend the pain you have. Dont let him make you think it is less than it is ...
Good luck
Mike
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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E-Double
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Re: Going to a Neuro
« Reply #2 on: Jan 18th, 2006, 3:33pm » |
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Bring all of the information that you have been provided here.
If you do need a recap let me know...shoot me a PM and I'll send you an email of all the literature that should be helpful.
DO NOT LEAVE without Oxygen 'script.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Phil the Desert Rat
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Re: Going to a Neuro
« Reply #3 on: Jan 18th, 2006, 7:12pm » |
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Scott,
How'd your trip to your neuro go? Saw one for the first time today too, mine deferred the O2 until the immitrex has a chance to succeed or fail. Hope you had success!
--Phil
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ScottEinDC
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Re: Going to a Neuro
« Reply #4 on: Jan 18th, 2006, 7:31pm » |
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Phil, haven't gone yet...my appointment is about two weeks. In the meantime, my GP is having me try some Topamax, but I'm confused by the instructions for taking it....have to call him back tomorrow.
1 tablet @ bedtime for 1 week
1 tablet twice daily for the second week
1 tablet in AM and 1 at bedtime for the third week
2 tablets twice daily week for and beyond
???it's the second instruction that isn't clear to me. and the fourth....two in the morning, two in the evening? and the pharmacist wasn't a big help.
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E-Double
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Re: Going to a Neuro
« Reply #5 on: Jan 18th, 2006, 7:45pm » |
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hold off until doctor clarifies for you!!!
It is a hardcore med.
good luck!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Phil the Desert Rat
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Re: Going to a Neuro
« Reply #6 on: Jan 18th, 2006, 9:36pm » |
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Scott,
Definitely "what E-Double" said! Get clarification from your doc before jumping into the topamax!! I sure hope you find relief with it. And be firm about the O2...I was not, and so it requires another visit (though I have followups scheduled already). O2 seems to work wonders for so many on here. Good luck!
Phil
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BarbaraD
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Hugs to ya
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Re: Going to a Neuro
« Reply #7 on: Jan 19th, 2006, 5:19am » |
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I've had better luck taking the FULL dosage at night before bedtime. This stuff has some side effects and people get "dopey" when they take it in the daytime. If you take it all at night you sleep off the dopey effects. I've been on it since 99 and have found that taking it at night kills a lot of the side effects.
Hugs BD
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What don't kill ya, Makes ya stonger!
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E-Double
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Re: Going to a Neuro
« Reply #8 on: Jan 19th, 2006, 8:55am » |
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If you are just shadowing and have not had full blown hits in a while (based upon your other thread), maybe wait on the Topomax.
For many (myself included) there are rediculously adverse side effects thus giving the med the nickname Dopeymax. Not all experience it though.
Good luck and be well
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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ScottEinDC
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Posts: 26
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Re: Going to a Neuro
« Reply #9 on: Jan 19th, 2006, 9:05am » |
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E-Double....it was only yesterday that the shadows didn't become full on CH hits! I've already had one hit this morning from our reliable friend, so I'm going to get started on the Topamax in the meantime....historically, my cycle should be ending, well, it should have ended about a month ago, so we're just going to have to monitor this thing closely.
My pals are going to love me on a drug nicknamed Dopeymax...HA! If only they really understood why I'm on it in the first place...!
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E-Double
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Re: Going to a Neuro
« Reply #10 on: Jan 19th, 2006, 9:18am » |
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on Jan 19th, 2006, 9:05am, ScottEinDC wrote:E-Double....it was only yesterday that the shadows didn't become full on CH hits! I've already had one hit this morning from our reliable friend, so I'm going to get started on the Topamax in the meantime....historically, my cycle should be ending, well, it should have ended about a month ago, so we're just going to have to monitor this thing closely.
My pals are going to love me on a drug nicknamed Dopeymax...HA! If only they really understood why I'm on it in the first place...! |
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Feel good Scott!
There are so many difficult situations to be made when it comes to dealing with this nightmare.
I am chronic going on 2 years. Before this cycle my previous episodes never lasted more than a month.
I have been on every damn med throughout this cycle and finally in the beginning of December I decided that I was going to detox regardless of outcome, regardless of whether I will attempt an alternative or not.
I am currently down to 200 mg. of verapamil from nearly 600.
I just couldn't deal anymore with potential side effects and with the side effects that I have had from all of the other meds. the worst for me was Topomax but I will not try to sway anyone against it for we are all different!I do not use my abortive meds anymore though I sometimes come close, I suck it up and use my oxygen and that's it. For the most part it is near flawless as an abortive while other times I still have that hour plus attack that just won't break.
Personal decisions that are difficult for us and for those around us to accept and deal with.
I wish you the very best and hope that your cycle does end ASAP!
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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