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Topic: Newbie from New Zealand : ) (Read 2443 times) |
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bluenz
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Do what you love, Love what you do...
 
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Newbie from New Zealand : )
« on: Dec 19th, 2007, 8:11pm » |
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Hi there.
I really want to thank everyone for posting their experiences and journeys on this board. I truly use to think i was completely and utterly nuts till i came here and read all this info available here...... thank you thank you !!!
Ive has clusters for around 20 years mostly only a few a year. over the last 10 years ive had more....... this year ive had so many cycles it just aint funny. but thanks to this site and all its info ive been able to get some treatment . hospital visits oxygen and jabs etc. Ive tried out a few tips form you guys. some work some don't but that seams to be the way with all of us , trial and error till we find some sort of management plan for ourselves.
Im glad theres a name for the demon who slices my eye with his knife...... who squeezes my head and steals my time...
thanks for giving me the place to ramble to ; )
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vietvet2tours
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Re: Newbie from New Zealand : )
« Reply #1 on: Dec 19th, 2007, 8:14pm » |
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Good on ya. Keep on huffin.
Potter
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Kill em all let God sort em out
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Miz_D
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Me and my amazing hubby Steve
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Re: Newbie from New Zealand : )
« Reply #2 on: Dec 19th, 2007, 9:22pm » |
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Hi Bluenz,
Glad your here...this website is definately a godsend to clusterheads. I don't want to think what state I would be in without this place.
There is absolutely NOTHING like talking to another person who understands what you experience...the best therapy in the world...the cheapest also!
Danielle
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My disabling chronic illness is more real than your imaginary medical expertise...
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Ray
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Ray and Shade
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Re: Newbie from New Zealand : )
« Reply #3 on: Dec 19th, 2007, 11:55pm » |
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Welcome to the nut house. Wishing you the best.
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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RichardN
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Re: Newbie from New Zealand : )
« Reply #4 on: Dec 20th, 2007, 1:01am » |
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Hi & Welcome
I was a basket-case when I came here 2/02. This place gave me a "name-for-the-pain" and the info/ammo to battle our common beast . . . . got my life back.
You mentioned hospital visits oxygen and jabs. You DO have 02 available at home I hope? The key to 02 is to use at the early onset of an attack and keep him from getting to the "dance" stage. I can live with the beast as long as I don't have to "dance" with the bastard.
Checked out your website. Looks like you keep yourself busy . . . and loving what you do . . . not always and easy thing to accomplish.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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Guiseppi
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Re: Newbie from New Zealand : )
« Reply #5 on: Dec 20th, 2007, 10:50am » |
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Welcome to the board! We can always use a few more hands to help row the boat. There are some of your felllow country men/women floating around the board that should surface shortly!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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tessistired
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Re: Newbie from New Zealand : )
« Reply #6 on: Dec 20th, 2007, 11:14am » |
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Hey there and Welcome to the Family!!
So glad you are here and as you have already mentioned you have done some reading so you know there is much to learn and you will for sure. These people here are AWESOME and I dont know what I'd do without them!!
Anyway...if you don't already know on the left of the site there is a link to click hilighted in yellow to the OUCH website...ORGANIZATION FOR UNDERSTANDING CLUSTER HEADACHES....filled with mounds of info for you. Another place you might be interested in visiting is
http://www.clusterheadaches.com/chat
There is our chat room where we clusterheads get together whenever and just chat and vent and get silly so come join us whenever you can!
Many Blessings and Pain Free Days and Nights to you!!
Tess
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bluenz
New Board Newbie
Do what you love, Love what you do...
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Re: Newbie from New Zealand : )
« Reply #7 on: Dec 20th, 2007, 12:43pm » |
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Thank you Guys and Dolls...
Its good to know im not the only person who lives with this. and with all this information available theres certainly lots to try out, I'm kinda hopeful I'll get a descent management plan sorted eventually . just trialling things still at the moment. Its been good for me to write things down whats worked and why & different symptoms, triggers etc.
The first time i came here i sat and read and just sobbed.. it was relief that what i was experiencing was real ... even when the docs don't know at least now i can give them some print outs.
I'll keep an eye on the chat room here and maybe will catch some of you soon...
be well 
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Groov
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Re: Newbie from New Zealand : )
« Reply #8 on: Dec 20th, 2007, 11:29pm » |
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Hey Ruth, it's me Tama.
Come on over to the chat room evenings for some insightful non-sense and useless facts you'll never be able to use as long as you live
It's fun tho !!!!!
Cheers, Dave
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PARABELLUM
I do look like my avatar...But I swear to God I am not a bag of aqua colored french fries
Calling an illegal alien an 'undocumented immigrant' is like calling a drug dealer an "unlicensed pharmacist"
The Second Amendment is in place in case the politicians ignore the others!!
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BarbaraD
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Hugs to ya
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Re: Newbie from New Zealand : )
« Reply #9 on: Dec 29th, 2007, 6:59am » |
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Welcome to Clusterville and the funnyfarm.... You'll find we're a bunch of NUTZ, but a good bunch. We've been helping each other for years and it's a great feeling knowing you're not ALONE anymore.
Read read read..... There's more information on this board than in most medical libraries on CH and someone is avaiable 24/7 to answer questions or to just be here when you need someone.
I've lived here since 98 and can assure you it's the one place where people UNDERSTAND your pain and what you're going thru. Nothing you can say will shock anyone cause someone has been thru it...
So just grab a chair and make yourself comfortable... Read, ask questions, whatever......
Hugs BD
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What don't kill ya, Makes ya stonger!
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