Author |
Topic: Technically new...AGAIN (Read 275 times) |
|
justthe2ofus
New Board Newbie
Posts: 19
|
 |
Technically new...AGAIN
« on: Oct 2nd, 2007, 12:51pm » |
 Quote  Modify
|
I guess I am new...I posted here a few years ago but when I tried logging in, it said I didn't exist (does that mean the clusters don't either? plz say yes)...So I created a "new" me...
I'm a 30 yr old Cluster Head...had them for around 20 yrs. When I was younger, Mom would take me to doc, same ol run around, Sinus probs. etc...even had teeth pulled to see if over crowding was the problem...After years of MRI's and CT Scans, wasn't till about 5 yrs ago I found a doc who actually had a clue and diagnosed me. He said he only had treated one other case (a male patient which will come up again in my short story here). He is a GREAT doc, willing to help and learn, and he directed me here a few years back saying this was a great site fo info and support.
Well after 3 pf years, they have decided to come creeping back...I have a big family (wonderful hubby, 5 kids, 3 of my own 2 step) no time for these ha's of course...
My hubbies story...We met 2 yrs ago, about a year after I left a very non-supportive relationship of which these were "just a headache" and "the world doesn't stop just because you have a headache".
I started dating this wonderful man I have now, and had not mentioned the ha disorder I have, figuring in time it will come up...Well, he started getting bad ha's a few mths into the relationship and as a few weeks passed I noticed the pattern...So I asked if he sees a doc for these, he said yes,he has been for years for Cluster headaches, I ask who the doc was, and to my surprise, the same doc i see...I said "you gotta be kiddin me" and we both found out the other was a clusterhead...What were the odds of that happening...After soooo many painful days/nights I prayed for just one person in my life to understand what I was going through...And my prayers were answered.
So here we are now, he's coming off a cycle with several mild ha's hitting from day to day (he is on Verap, Pred. and Trex as needed), and I am starting a cycle (not on meds yet, trying to tough the first part out while I still can)...
Nice to meet you all, (under such crappy terms I know), but its great knowing your out there and I have somewhere to turn...
|
|
 IP Logged |
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 2703
|
|
Re: Technically new...AGAIN
« Reply #1 on: Oct 2nd, 2007, 1:09pm » |
Quote Modify
|
Unfreaking believable!  We've had people meet on the site and marry.....but to stumble accross, date and marry another CH!!!! That is beyond cool. 
Congrats on your good fortune!!!
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
  
Gender:
Posts: 6458
|
|
Re: Technically new...AGAIN
« Reply #2 on: Oct 2nd, 2007, 2:44pm » |
Quote Modify
|
cheers to love and welcome to the family
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: Technically new...AGAIN
« Reply #3 on: Oct 2nd, 2007, 4:50pm » |
Quote Modify
|
Wow--what are the odds?
I've had episodic CH for around forty years, and I've yet to meet another clusterhead. I expect that will change one of these days.
Welcome back. To both of you.
Best wishes,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender: 
Posts: 10429
|
|
Re: Technically new...AGAIN
« Reply #4 on: Oct 3rd, 2007, 11:10am » |
Quote Modify
|
Welcome back to the clusterfamily! 
I'm so glad that you've had a PF time in the past and I'm sorry that other cycle brought you here. It's wonderful that you and your husband have supporters in each other! That's incredible story.
PF days,
Sanna
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss