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malkidm
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Longtime Reader, First Time Poster
« on: Sep 25th, 2007, 3:21pm »
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Hi Everyone.
 
My name is David.  I'm a right-handed episodic and have had clusters for approximately 19 years.  I started my first cluster at the ripe old age of 13.  Over the years, I've just learned how to deal with it.  
 
After reading posts on this board, I've decided to do something about it.  I'm getting too damned old for this crap and some friends and family members agree.  My first Neuro appt is in November and I hope that we can find a treatment that provides relief.
 
Thanks to all of you for being here
 
David.
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Beastfodder
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O2 and clusterbusters - naturally

   


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Re: Longtime Reader, First Time Poster
« Reply #1 on: Sep 25th, 2007, 5:47pm »
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David,
 
First post is always the hardest!
 
Through here you'll find no end of support and ideas.
 
Like keeping a diary and do look at O2 as a first port of call as an abortive and getting lots of questions together for your neuro appointment.  
 
all the best
 
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Re: Longtime Reader, First Time Poster
« Reply #2 on: Sep 25th, 2007, 6:51pm »
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Welcome David!
 
Don't forget, the OUCH website has great information too, here is a direct link to it: http://www.ouch-us.org/chinfo1.htm
 
Good luck to you and I hope your pain goes away soon!
« Last Edit: Sep 25th, 2007, 6:53pm by Melissa » IP Logged


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Re: Longtime Reader, First Time Poster
« Reply #3 on: Sep 25th, 2007, 9:39pm »
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Welcome HOME David!!
 
Please don't forget to mention to your Doctor about O2. It wil be the safest way to keep the beast under control.
 
Come back and let us know what happened and what meds you will be taking.
 
Wishing you lots and lots of pain free time.
 
           Rosy.
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malkidm
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Re: Longtime Reader, First Time Poster
« Reply #4 on: Sep 26th, 2007, 10:30am »
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Thanks for the warm welcome guys.  O2 therapy is definately on my list of questions for the doc.  Just out of curiosity, have any of you had trouble convincing your insurance company to pay for oxygen and related supplys?  
 
David
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Wayne
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Re: Longtime Reader, First Time Poster
« Reply #5 on: Sep 26th, 2007, 5:41pm »
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Howzit David, welcome!
 
I just read your bubblegum post, one thing I have learned mate, whatever works for you works for you. This is your board too and you're welcome to share anything here. I've never tried gum but I do smoke incessantly, your way is cheaper.
 
Good Luck
 
Wayne
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Re: Longtime Reader, First Time Poster
« Reply #6 on: Sep 26th, 2007, 8:58pm »
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David, if you get the RX from a Doctor it shouldn't be a big problem to make the insurance company give you the O2. But if you do, there is always welders Oxygen.
 
       Good Luck  Smiley
 
 
         Rosy.
 
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Re: Longtime Reader, First Time Poster
« Reply #7 on: Sep 26th, 2007, 10:57pm »
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I'm a kaiser patient...normally a really tight wad bunch......compared to imitrex...the cost of oxygen looks pretty good to them! Good luck and welcome to the board.
 
Guiseppi
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malkidm
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Re: Longtime Reader, First Time Poster
« Reply #8 on: Sep 27th, 2007, 11:40am »
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Guiseppi wrote...
Quote:
compared to imitrex...the cost of oxygen looks pretty good to them!

Just a few questions (I'm assuming from your response that you use O2/[sub]).  
1.  Generally how much does a tank O[sub]2
cost?  
2.  How big of a tank do you usually have to get?  
3.  How long does a tank typically last in your case?
 
Wayne wrote...
Quote:
I just read your bubblegum post, one thing I have learned mate, whatever works for you works for you. This is your board too and you're welcome to share anything here.

Thanks, but after some of the ridicule i've seen over what is (in my mind, at least) a very serious topic, I think I'll keep my "non-mainstream" tricks and experiments to myself.  I was kind of hoping for more of a discussion.  I may be out of line, but it seems like if the discussion is not about O2, 'shrooms, or Imitrex, then the poster is automatically assumed to be a prankster, a nut job, or a faker.  I get enough of that at work  laugh
 
Have a PFD, everyone!
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