Author |
Topic: Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL (Read 1452 times) |
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
  
 
Gender: 
Posts: 6721
|
 |
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« on: Aug 3rd, 2007, 11:21pm » |
 Quote  Modify
|
Dave and I are talking on pm right now but anyone else who wants to add anything, please do.. 
|
|
 IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
Gender:
Posts: 6721
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #1 on: Aug 3rd, 2007, 11:52pm » |
Quote Modify
|
Dave is getting advice to have a nerve block from a dentist he went to because he was having these HA's after having a tooth pulled.
Anyone have a good Neuro in Ohio they can recommend? What he says doesn't sound like CH to me but it makes me angry that they want to do a nerve block because of the pain without checking any further.
I'll let Dave add any additional info he wants because I am at a loss to help him at this time.
|
| « Last Edit: Aug 3rd, 2007, 11:54pm by Linda_Howell » |
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
Racer1_NC
CH.com Alumnus
New Board Hall of Famer
"Beeeyul the Cat"
Gender: 
Posts: 1887
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #2 on: Aug 4th, 2007, 12:11am » |
Quote Modify
|
From the list of sufferer recommended Doctors at the OUCH Website................
Ohio
Francis O'Donnell
Columbus
Luis Pagani
Cincinnati
Robert S. Kunkel
Cleveland
Dr. John Kelly
Southeastern Center for Headache and Pain
Greater Cincinnati Area
Donita Rechnitzer
Westlake
Carl Anseven
Boardman
Mark Stillman
Cleveland
|
|
IP Logged |
"Everybody's Gotta Learn Sometime."
Eventus stultorum magister.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #3 on: Aug 4th, 2007, 12:22am » |
Quote Modify
|
Welcome, Dave. Can you tell us more about your headaches?
How long do they last, where does it hurt, etc?
Hopefully, we can help you find some answers.
pain free wishes, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #4 on: Aug 4th, 2007, 12:45am » |
Quote Modify
|
There are a number of headaches that have similar symptoms. Over in the left, there is a link to the cluster quiz. Take the test and see what it says.
Also, none of us can diagnose you, but a neurologist can. Start keeping a diary of the headaches. Include time of day, duration of the headaches, exactly where it hurts and the intensity of the pain. On the left is also a link to the kip scale, which we use to rank the intensity. Most docs use a 1 - 10 scale, with 10 being the worst pain you've ever had in your life. This will help the neuro make an accurate diagnosis.
Hopefully, you can see a dr quickly and get the help you need. Look around this site and take notes on treatments and coping skills.
Please feel free to ask any questions, OK?
pain free wishes, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
rolo65
Guest
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #5 on: Aug 4th, 2007, 12:47am » |
Quote Modify
 Remove
|
Get the O2 as fast as you can, and order a cluster mask if the O2 vender doesn't have the non re-breather with accumulator bag setup available.
It will be the fastest relief you can get till you can see a neurologist.
Hugs for the pain,
Roland.
Edited cause I forgot how to spell my name 
|
| « Last Edit: Aug 4th, 2007, 12:51am by rolo65 » |
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #6 on: Aug 4th, 2007, 1:01am » |
Quote Modify
|
hang in there Dave your not alone. Cold rags on the eyes. fight on fight on ....If you do have CH it will not kill you. Cuss bang whooooo. dont forget to breathe.
Are ya still hangin ????
Have you taken the imitrex? Get some coffee in ya. Lots.
come back if ya can
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
Gender:
Posts: 6721
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #7 on: Aug 4th, 2007, 1:02am » |
Quote Modify
|
With Daves permission:
Quote:last oct. i had a legmaent bad tooth surgacally removed.two months later i started getting a thing i called zingers on the left side of my head. lasting 2 to 5 minutes.they would start at the extraction area. not every day, but at around the same time.
------------------------------------------------------------------------ --------
|
|
Quote:| i went to the doctor about it, he said it is probley nerve damage go back to the dentist. went to the dentist, he than refered me back to the oral surgen. the original surgen retired so went to a different one. he wanted to give me a nerve block. well they were only 5 minute zingers so i passed in the nerve block. i |
|
Quote:--------------------------------------------------------------------------------
as time went on they became longer, no by the way i have a appt with a nuroligest next week. i have not been diaongist offically yet. |
|
Quote:| ok more intense. after a couple of more monthe it was every night they would last 15min to it seemed like hours mabye 2 to 3. i started self meds. all the wrong meds. my doctor basically thought i was a hyprocondreac or a drugie. i was asking for narcatics. |
|
Quote:| the headachs are so bad. i feels like a knife or pick is being shoved and twisted straight into my head. my feels like my left nostral is pouring blood, but it is snot. i want to shove my eyeball deep into my head. i cant lay down. i sit and rock, or i pace back and forth. i drink 4 beers in minutes. take valume, zanax and perkisets. this had been going on for about two weeks. |
|
Quote:| i went for the block, (also i had a ct scan that showed normal.) i was feeling ok, this was yesterday at 2. by 9 it hit again hard real hard one of the worst ever... again i self medicated. my girfriend called at 10:30 to check on me and it was starting to subside. she was real concerened that i had another one we thought it was over. what a let down she made me tell her all of my symtoms and she wroth them down. told me to go to the docs with the list. |
|
My heart goes out to you Dave, and I've put this out here because I know that sometimes I don't have all the answers.  and it helps when I can ask my friends here for their opinions too. You are among friends here, so ask away... Linda
|
|
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #8 on: Aug 4th, 2007, 1:03am » |
Quote Modify
|
If you have clusters, the Imitrex pill works too slowly to give you any relief. When you see the neuro, talk about Imitrex injections or other fast acting triptans.
If you are getting hit at night, many if us find the over the counter supplement melatonin helpful. Between 3 - 9 mgs before bed.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #9 on: Aug 4th, 2007, 1:07am » |
Quote Modify
|
OK, I just saw your posts. Clusters can be triggered by both alcohol and narcotics. The narcotics won't help them either, even if they don't trigger an attack. You may want to lay off the beer and meds until you know what's going on.
Try a RedBull for a daytime attack, it's loaded with caffeine, so I don't suggest you use it at night.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #10 on: Aug 4th, 2007, 1:08am » |
Quote Modify
|
This may sound crazy Dave,,but get off the narcotics. If it is CH it may be triggering. If its the nerve..well then it will hurt. Sound like it hurts pretty bad in any case. Use your own judgement. You have the symtoms of CH. I dont get horners either. (droopy eyelid). farrgin demon anyhow.
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #11 on: Aug 4th, 2007, 1:12am » |
Quote Modify
|
I'm sorry, guys. I've been ill and need to go to bed.
I'm sure those who will be up will continue to answer questions, Dave. Keep us posted, OK?
Carry on....
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #12 on: Aug 4th, 2007, 1:14am » |
Quote Modify
|
Everybody gets sketchy about relaxing and sleeping when being hit. Try to breathe deeply and not get to invovled. Your system gets all worked up and it makes it worse. Your tough and you will get through.
Were like Freddy Kruger kids.....How many mg. are the imitrex? How long has it been since the ice pick left?
still with ya
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
rolo65
Guest
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #13 on: Aug 4th, 2007, 1:14am » |
Quote Modify
Remove
|
Quote: i drink 4 beers in minutes. take valume, zanax and perkisets. this had been going on for about two weeks.
Leave that dam beer alone, It's probably making it twice as bad. Replace it with Red Bull!
Rolo..
|
| « Last Edit: Aug 4th, 2007, 1:16am by rolo65 » |
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #14 on: Aug 4th, 2007, 1:16am » |
Quote Modify
|
Quote:--------------------------------------------------------------------------------
i know the meds and beer is the wrong thing now, i did not know that yestreday. i guess i was trying to just get so messed up i would pass out and sleep all night. it worked mabye half the time. the other times i was up in a couple of hours in agony doing it all over. |
|
Been there done that. Dont do that anymore...lol
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
rolo65
Guest
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #15 on: Aug 4th, 2007, 1:26am » |
Quote Modify
Remove
|
The Mary Jane will help you sleep. As for the Imitrex, you have to get the injectable form for it to work fast.
Don't forget, you are not alone in this fight. We are all with you!
Rolo..
|
| « Last Edit: Aug 4th, 2007, 1:28am by rolo65 » |
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #16 on: Aug 4th, 2007, 1:29am » |
Quote Modify
|
Bullshit stay away from the pot ..its a big trigger just like the beer.
thebb
try it you'll find out. Another suggestion would be...if it has been 24 hours since you have done the last imitrex, and you need sleep, take the imitrex for a prevent and try to get some sleep once it has had some time to kick in.
How long since you slept?
|
| « Last Edit: Aug 4th, 2007, 1:31am by thebbz » |
IP Logged |
It wasn't me I didn't do it
|
|
|
rolo65
Guest
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #17 on: Aug 4th, 2007, 1:31am » |
Quote Modify
Remove
|
on Aug 4th, 2007, 1:29am, thebbz wrote:Bullshit stay away from the pot ..its a big trigger just like the beer.
thebb
try it you'll find out. |
|
Maybe for you, not for me!
I'm not recomending it ether. 
Rolo..
|
| « Last Edit: Aug 4th, 2007, 1:33am by rolo65 » |
IP Logged |
|
|
|
rolo65
Guest
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #18 on: Aug 4th, 2007, 1:40am » |
Quote Modify
Remove
|
on Aug 4th, 2007, 1:33am, DWAL wrote:| shit this is scaring the hell out of me. i dont even want to breathe because it might start one going. can i chew the imitrex? |
|
Deep controled breathing can be very helpful, the more O2 you can get in the better!
Chew the Imitrex? Probably tastes like crap, I wouldn't want to find out. I don't know, I always get it in shot form and do it with a insulin needle.
I think the docs wrong, it takes 20-30 min in pill form before it kicks in. I would take it the second you start feeling the attack starting since most attacks are 15-45 min in duration. If you wait till it's hell the attack will probably be over before it starts to take effect.
Rolo..
|
| « Last Edit: Aug 4th, 2007, 1:47am by rolo65 » |
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #19 on: Aug 4th, 2007, 1:42am » |
Quote Modify
|
You can but they taste like hell  if your not getting hit there is no reason to.
Where are you at as far as your sleep cycle? Do you have to work tomorrow?
Try to relax your going to be fine even if it comes back.
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #20 on: Aug 4th, 2007, 1:46am » |
Quote Modify
|
If it were me I would take the imitrex and try to get some sleep. You are wore down and in the, "one step ahead of the demon game." Do you have insurance? Is anybody with you?
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #21 on: Aug 4th, 2007, 1:48am » |
Quote Modify
|
Have you noticed that everytime you get relaxed and comfortable the pain comes back? Right? Wrong?
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #22 on: Aug 4th, 2007, 1:58am » |
Quote Modify
|
This is going to sound like a sick joke but....fatigue is a trigger. You have to sleep eventually so you know the imitrex will abort a CH. Pills do not have an immediate effect on the attack at onset,,,,but they do prevent one from coming for at least 8 hours, especially the 100mg pills. The trick is to take the pill, let it go to work for an hour or so and get some sleep. Then start the battle all over. In the daytime use mass amounts of caffeine and never relax. Get to the doc asap and get some 02.
Heres some information for you to print out and take with you.
http://www.plainboard.com/ch/chtherapy.pdf
http://www.chhelp.org/mhni.html
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
rolo65
Guest
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #23 on: Aug 4th, 2007, 2:01am » |
Quote Modify
Remove
|
Sleep can be a scary thing, but you can't function without it so give in and try. Many people out here swear by the red bull, I have tried it and it has helped some. Get some and try it. It can’t hurt anyway.
Rolo..
|
|
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: HI, I AM NEW HERE AND I THINK I HAVE THIS HELL
« Reply #24 on: Aug 4th, 2007, 2:19am » |
Quote Modify
|
Just hang in there and get some rest.
talk at you later
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss