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Topic: New to clusters, glad to have found you! (Read 363 times) |
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CourtingChaos
New Board Newbie
Bouncing back & bouncing back & bouncing back...
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New to clusters, glad to have found you!
« on: Jul 28th, 2007, 12:28am » |
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Hi ... my name's Cory and I'm so glad to have found this site!
Excited to find people that I know truly get what this is and not roll their eyes or consider me a drama queen; who actually understand this whole cluster business and can help me make my way through dealing with this new diagnosis.
Several doctors/neurologists/tests, etc. later, cluster headaches is the winner. Have hit on this site and read up on your info a few times in my efforts to gain knowledge and there's truly some great information and support here.
Does seem like you are a family! That's awesome. Good information, nice people (looked through the photos from yearly meetings). This site is a haven for the misunderstood (work/family).
Thanks in advance to anyone who reaches back out towards me! coryehenson@yahoo.com
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thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
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Posts: 2181
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Re: New to clusters, glad to have found you!
« Reply #1 on: Jul 28th, 2007, 12:38am » |
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Courting Chaos,
I like that moniker. Yep a site with lots of headbangers for sure. We all have heard, "oh you have migraines", and we all would like to beat them with a hammer. 
Welcome and knowledge is the key for a fight with the demon.
all the best
thebb
http://www.plainboard.com/ch/chtherapy.pdf
some light reading for ya
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It wasn't me I didn't do it
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George_J
CH.com Alumnus
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White-Breasted Nuthatch
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Re: New to clusters, glad to have found you!
« Reply #2 on: Jul 28th, 2007, 1:17am » |
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Welcome, Cory. Happy to meet you, and looking forward to getting to know you. Feel free to ask any questions about treatments, or just feel free to vent if you need to.
Download the pdf at:
http://www.ouch-us.org/medications/oxygen/o2links.htm
for excellent information on the use of oxygen to treat CH. Oxygen, properly administered, is an effective and safe abortive treatment for a great many of us.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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MR_FLOOR
CH.com Alumnus
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Go Cubbies / even though they suck
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Re: New to clusters, glad to have found you!
« Reply #3 on: Jul 28th, 2007, 5:29am » |
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on Jul 28th, 2007, 12:28am, CourtingChaos wrote:
Excited to find people that I know truly get what this is and not roll their eyes or consider me a drama queen; who actually understand this whole cluster business and can help me make my way through dealing with this new diagnosis.
there's truly some great information and support here.
Does seem like you are a family! That's awesome. Good information, nice people (looked through the photos from yearly meetings). This site is a haven for the misunderstood (work/family).
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Cory,
You don't know the half of it,you will meet a group of the most compassionate and caring people in the world,and I'm not kidding.This will be your new lifeline.Stick around learn much and read lotts and most of all welcome to your new family.
Dave
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michael
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Posts: 244
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Re: New to clusters, glad to have found you!
« Reply #4 on: Jul 28th, 2007, 9:14am » |
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Welome to the family Cory.
Sorry you had to come looking, but glad you found us.
Pain free wishes
Mike
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Barry_T_Coles
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Re: New to clusters, glad to have found you!
« Reply #5 on: Jul 28th, 2007, 11:45am » |
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Hi Cory 
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi
[img]
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lionsound
CH.com Alumnus
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breathe
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Re: New to clusters, glad to have found you!
« Reply #6 on: Jul 28th, 2007, 9:16pm » |
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Welcome, Cory! 
Feel free to ask and questions that you may have.
Support is the best medicine!
be well and Pain Free!!!
-Lionsound
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Brew
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Low Four!
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Re: New to clusters, glad to have found you!
« Reply #7 on: Jul 28th, 2007, 9:25pm » |
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We've been waiting for you.
C'mon in.
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Always remember that you're unique, just like everyone else.
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Mosaicwench
CH.com Alumnus
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Find joy in your day
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Re: New to clusters, glad to have found you!
« Reply #8 on: Jul 28th, 2007, 11:12pm » |
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Cory - is there anyone close to you that you consider a supporter? Someone who helps you through hits and cycles?
If so. please invite that person to come visit us. We have an area just for supporters and we welcome all who come. I'm a supporter of 15 years.
I'm sorry for the reason that you're here, but glad you found us.
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The difficulties of life are intended to make us better, not bitter. ~Author Unknown
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CourtingChaos
New Board Newbie
Bouncing back & bouncing back & bouncing back...
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Re: New to clusters, glad to have found you!
« Reply #9 on: Jul 28th, 2007, 11:34pm » |
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Guys I tell you what..I was leary about posting on here, I haven't been in chat rooms in YEARS (cop shops...I was a deputy....and military....I'm ex army) and thought twice (okay three times) about posting information but finally said what the heck and joined up.
As far as supporters...I have a few. I'm a single mom of two teenage boys (They ROCK) and they are here for me...and I have a friend who is checking out websites and sources everywhere to try to hook me up with good information. Course....I hide from them when these things hit...I don't want these guys to see me whimpering and writhing around like a mortally injured animal...
So.....I scoped out you guys...and already support! Thanks so much!
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Sandy_C
CH.com Alumnus
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Burn that bra!
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Re: New to clusters, glad to have found you!
« Reply #10 on: Jul 29th, 2007, 4:08pm » |
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Hi Cory, and welcome. This place IS a family.
I found it several years ago, and for some strange reason (probably because of all of the fruitcakes here - myself included), I can't stay away for long. Even when I'm out of cycle, I find myself here constantly, just to see how my adopted brothers and sisters are doing.
Please don't be afraid to post here. Ask any questions you need to. We will all try to help you in whatever way we can, even if it's only to lend a shoulder.
Sandy
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Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
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Metalcreature
New Board Newbie
Gotta love a good Stoudt
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Re: New to clusters, glad to have found you!
« Reply #11 on: Jul 29th, 2007, 7:35pm » |
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Hello Cory,
Welcome to this awesome website. I, like you are also a new member. Dealing with the pain we go through, isnt easy, but i think as time goes on, were going to find people on here that will give us comfort knowing we are not alone.
I hear you as far as liking to be alone when you have a hit. I dont want anyone seeing me either, because i feel embarrased about it. But, i think opening up your heart and mind here is the best medicine.
Take care Cory, and all my hopes and prayers for nights of rest and PF sleep.
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After the madness is over and the shadows fade...drink up, because your life you now own again.
Joey B (Metalcreature)
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Guiseppi
CH.com Alumnus
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Re: New to clusters, glad to have found you!
« Reply #12 on: Jul 29th, 2007, 10:58pm » |
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I'm active LE and was concerned about posting too! There are several active and retired on the board. So glad you found us, stick around, hopefully we can help ya!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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