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Topic: My first Post in this wonderful place (Read 332 times) |
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FastEddie
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My first Post in this wonderful place
« on: Jun 26th, 2007, 7:38am » |
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What a feeling to find out that I am not alone in this nightmare. I had no idea there were so many others out there that suffer the same hell, and even many that are worse off than me. At last I can talk to people who know what I am going through.
Mine started about three years ago when I woke up screaming. I THOUGHT I WAS DYING. My wife packed my head in ice and got ready to take me to the hospital, but then it was gone - until the next night. It took 4 doctors to find out that I didn't have a brain tumor or migraines; I had the monster.
After a few weeks they went away and I forgot about them for almost a year before they came back with a vengence.
I now carry my Imitrex shots everywhere I go as well as keep a bottle of oxygen in my vehicle. This is now my 4th cycle and I am ready for this one to end; at least I hope it does. I didn't even know they could come & stay until I read some postings.
I also found OUCH and I am going to the convention with my bride (of 35 years). I can't wait to meet another sufferer. I also see I am not the only one that thought about ending it all to stop the pain.
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michael
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Re: My first Post in this wonderful place
« Reply #1 on: Jun 26th, 2007, 8:51am » |
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Hi Eddie, glad you found us.
I found this site 3 months ago and I can still remember that fantastic feeling to communicate with another clusterhead.
I've had these things for 40 years and had never before made contact with another sufferer.
Hope you are pain free soon
Mike
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Bob_Johnson
New Board Hall of Famer
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Re: My first Post in this wonderful place
« Reply #2 on: Jun 26th, 2007, 12:06pm » |
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Glad you found us for there is much experience and deep knowledge here. Start by exploring the buttons (left): they will take you to other sites for information.
I have a strong bias for books for our initial learning because the material is organized. Suggest:
MANAGEMENT OF HEADACHE AND HEADACHE MEDICATIONS, 2nd ed. Lawrence D. Robbins, M.D.; pub. by Springer. $59 at Amazon.Com. It covers all types of headache and is primarily focused on medications. While the two chapters on CH total 42-pages, the actual relevant material is longer because of multiple references to material in chapters on migraine, reflecting the overlap in drugs used to treat. I'd suggest reading the chapters on migraine for three reasons: he makes references to CH & medications which are not in the index; there are "clinical pearls" about how to approach the treatment of headache; and, you gain better perspective on the nature of headache, in general, and the complexities of treatment (which need to be considered when we create expectations about what is possible). Finally, women will appreciate & benefit from his running information on hormones/menstrual cycles as they affect headache. Chapter on headache following head trauma, also. Obviously, I'm impressed with Robbins' work (even if the book needs the touch of a good editor!) (Somewhat longer review/content statement at 3/22/00, "Good book...."
HEADACHE HELP, Revised edition, 2000; Lawrence Robbins, M.D., Houghton Mifflin, $15. Written for a nonprofessional audience, it contains almost all the material in the preceding volume but it's much easier reading. Highly recommended.
Also see:
http://www.headachedrugs.com/pdf/ha2006.pdf Dr. Robbins site. Then explore the entire site by deleting everything following. com/ and then hit enter.
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Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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Rosybabe
CH.com Alumnus
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"Too much of a good thing can be wonderful!!
 
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Posts: 3470
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Re: My first Post in this wonderful place
« Reply #3 on: Jun 26th, 2007, 12:35pm » |
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HI Eddie!
Welcome aboard!!
I am glad you found the site and I am very happy that you will be making it to the convention!
I see you have your arsenal ready to attack the beast! 
Hope you get lots and lots of PFDN!!!
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 Believing is just the beginning!
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Shedz
CH.com Alumnus
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OUCH UK MEMBER
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Re: My first Post in this wonderful place
« Reply #4 on: Jun 26th, 2007, 2:08pm » |
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shame you've had to find us but welcome aboard
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I push my fingers into my eyes, It's the only thing that slowly stops the ache, But it's made of all the things I have to take, Jesus it never ends it just works its way inside, If the pain goes on, I AM gonna make it.... http://www.youtube.com/watch?v=Xps7AM8HbjE
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
 
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Re: My first Post in this wonderful place
« Reply #5 on: Jun 26th, 2007, 8:19pm » |
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Hi Eddie,
I'm the one you contacted at Family Services to ask questions about the convention. I am So glad you found us over here at ch.com and I look forward to meeting you in Virginia.
You made your 1st. post in the exact right place.
Linda Howell
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Brew
CH.com Alumnus
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Low Four!
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Re: My first Post in this wonderful place
« Reply #6 on: Jun 26th, 2007, 9:47pm » |
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Welcome home, Eddie.
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Always remember that you're unique, just like everyone else.
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MR_FLOOR
CH.com Alumnus
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Go Cubbies / even though they suck
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Re: My first Post in this wonderful place
« Reply #7 on: Jun 26th, 2007, 10:22pm » |
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Yes Eddie there are many of us out here (unbelievable)I thought the same thing.Welcome to our family.
Dave 
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
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Re: My first Post in this wonderful place
« Reply #8 on: Jun 27th, 2007, 6:26am » |
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Hi Eddie!!! Welcome to your extended famdamily I hope your cycle ends quickly. Enjoy the convention, I hope to make to one someday with my hubby!
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http://www.myspace.com/taraann77
 
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: My first Post in this wonderful place
« Reply #9 on: Jun 27th, 2007, 10:23am » |
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Looking forward to meeting you both at the convention 
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Ray
CH.com Alumnus
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Ray and Shade
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Re: My first Post in this wonderful place
« Reply #10 on: Jun 28th, 2007, 10:13pm » |
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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GrandPotentate
New Board Veteran
mmmmmmmmmm
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Posts: 156
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Re: My first Post in this wonderful place
« Reply #11 on: Jun 28th, 2007, 10:48pm » |
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I'm glad you found it. I've been through all that, and was fortunate enough to hear about this site from my kid's bartender! It got me over the hump and has helped several cycles since. There's some nonsense, but there's also a lot of good folks here with very similar heads.
My you hits be light and your cycle short.
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Jon
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