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Topic: Hello, Newbie Here (Read 296 times) |
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blu_ocean23
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Hello, Newbie Here
« on: May 16th, 2007, 5:05pm » |
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Hello,
I just found this site, and thought I might join and talk with others who suffer with CH's.
I'm 23 years old, and have had this now for a few years.
So, I'm just here to see what kinds of things people do to cope, and meet some fellow suffers, too.
Have a good day!
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MR_FLOOR
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Go Cubbies / even though they suck
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Re: Hello, Newbie Here
« Reply #1 on: May 16th, 2007, 8:35pm » |
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Hi BLU the best thing I could tell you is IMITREX,IMITREX.It is the best abortive at least for me it is.And if it works for you o2 has much less side effects ,but it don't work for me. Keep reading these people are very informative,you could learn alot good luck and I wish you many pain free days.
Dave
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Redd
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Re: Hello, Newbie Here
« Reply #2 on: May 17th, 2007, 9:44am » |
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Hi Blu...
Could you give us some history about you? What meds you have tried, whats worked what hasn't? Episodic? Chronic?
Wish you didn't have to find us, but for anyone who suffers, this is the place to be.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Linda_Howell
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Hearing is one thing. Listening is another.
  
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Re: Hello, Newbie Here
« Reply #3 on: May 17th, 2007, 11:10am » |
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Oxygen, at the first twinge of pain. With a regulator that goes to 15 LPM and a non-rebreather mask.
http://www.chhelp.org/mhni.html
welcome to our corner of the world. 
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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blu_ocean23
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Re: Hello, Newbie Here
« Reply #4 on: May 17th, 2007, 11:20am » |
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Hello again,
Well, here's my story:
I started getting these intense pains on my right side of my head when I was about 15.
The pain went on for about a month before I went to see my doctor, as I was starting to get really scared (I was thinking the worst, and that it was a brain tumor or something), and the sharp pain behind my eye was so intense it felt like it was about to burst out of my head  .
She told me it was nothing, and that I just had a sinus infection. The headaches stayed for about 2-3 months, then went away. I kept on getting them every few months with remission in between for years ( I went back to my doc a few times after, still got the same story, she wasn't at all a good doctor. I had to beg her for a CT scan, I did finally get one). So, finally a year and a half ago I went to a new doctor, and he said I have cluster headaches.
I haven't used any prescription drugs (I'm on Paxil for BDD, and hate having to take drugs) but oxygen does help me, and makes my day a little easier.
At this very moment I am suffering with a CH, just started getting them again last week. So maybe people here can advise me on what they take, and what works, then I can talk to my doctor about it.
I'm glad there's a site out here for people with this horrible condition, as I know no one personally with it.
Thanks for reading.
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| « Last Edit: May 17th, 2007, 11:23am by blu_ocean23 » |
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Ray
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Ray and Shade
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Re: Hello, Newbie Here
« Reply #5 on: May 17th, 2007, 2:26pm » |
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Dear Blu:
Oxygen at a high flow rate is great if it works for you. I use Imitrex injections which work every time for me. These are abortive measures.
Preventative measures include, among others, verapamil (a calcium channel blocker).
One thing you have here is a group of people who really DO have a clue what you are going through!
My best wishes to you for pain free days and nights,
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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thebbz
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Re: Hello, Newbie Here
« Reply #6 on: May 17th, 2007, 10:29pm » |
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Check out CalOuch.com look at the visitors thread and read all the links there as well. The link Linda give you is there too.
Read read read...information about the beast is the best tool.
good luck and dont forget to breathe.
Your young that will help you with the battle.
all the best
jb
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It wasn't me I didn't do it
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