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Topic: Hey Chuck (Read 488 times) |
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DannyV
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I had seen the clip of your attack before on the clusterbusters site. Today, for the first time, I saw the additional available footage of the clusterheads documentary.
I don't know what to say man. First of all thank you for putting yourself out there so that perhaps people will have some type of incling as to what it means to have this.
I watched you do your "dance"[Im not nuts about that term, way too cute] and it is exactly like mine. I don't pace and bang my head on the walls like some. When I am crippled, I am crippled. Writhing around ,usually on the floor, pulling the hair on my right side so hard,as if to raise up my scalp and make more room for the pain. I know you know what I mean. You seem to have held onto your hair pretty good. [Pun,yes]There goes my theory about why I am receeding so rapidly on the right. I am lucky that Imitrex helps. It sucks that you can't use it. You've got to be the toughest m*th*rf**k*r on the face of the earth.
Love from Boston
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: Hey Chuck
« Reply #1 on: Apr 16th, 2007, 6:37pm » |
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on Apr 16th, 2007, 3:16pm, DannyV wrote:| You've got to be the toughest m*th*rf**k*r on the face of the earth. |
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Nope. I am not any different than any other clusterhead. We all do what we need to do. It is just one small part of who I am.
I am just glad, that this clip has helped (or at least I hope it has).
There have been MANY more, that have and are doing much more than me, to help us. My small input, is just more visible. How about my biggest hero, the one that without, I never would have been able to allow myself to be filmed? DJ ... Deej ... Zipperhead ... Now THERE is a hero!!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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inyoureye
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Thank you to the site owners/creators
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Re: Hey Chuck
« Reply #2 on: Apr 16th, 2007, 7:08pm » |
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Nah, I saw that too, you may think that is you at your weakest but we see someone at their strongest. You are still here, someone weak might not be. Support is huge, I personally can't be held like that during the peak points, I get claustrophobic (only during a hit) But whoever DJ is, he obviously helps you as you've helped others so kudos to both of you.
Can I get an AMEN?
Props from Providence
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| « Last Edit: Apr 16th, 2007, 7:17pm by inyoureye » |
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Whether you think you can
or think you can't,.......
you're probably right.
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Linda_Howell
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Hearing is one thing. Listening is another.
 
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Re: Hey Chuck
« Reply #3 on: Apr 16th, 2007, 9:18pm » |
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Quote:
 When you first came in here did you read everything in the "new Visitors site" , or the opening home page?
DJ is the webmaster of this site. !!!!!!!!!!!!!!!!!!!!!!!!!
He looked everywhere on the internet and could't find very much info on CH so he started this site himself. That was April 11th, 1998. Through these years since, he has allowed us this forum to not only vent and commiserate with each other and form lifelong friendships... but gather the wonderul information from everyone who came afterward and contributed, that has made our lives so much better.
Through CH.com, OUCH was formed and after that OUCH-UK and many other OUCH's across the world. Italy, Spain, Germany, etc.
Why do I feel like clustervilles chamber of commerce ambassador...lol
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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DannyV
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Re: Hey Chuck
« Reply #4 on: Apr 18th, 2007, 11:48am » |
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DJ- Oprah Award?
Send Oprah a ton of videos how he saved all these people? Tell the story. Show the horror. Illuminate the fact that so many people out there who suffer from this suffer alone Bieng misunderstood? Misdiagnosed? "We all know the song."-Niel Diamond
Danny V
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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Guiseppi
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Re: Hey Chuck
« Reply #5 on: Apr 18th, 2007, 2:12pm » |
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Okay Danny, I don't have any idea who you are, but anyone who can quote Neil Diamond is okay by me! (It's almost like being able to quote Barry Manilow, it's cool but you're never sure you want anyone else to know!  )
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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DannyV
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Re: Hey Chuck
« Reply #6 on: Apr 19th, 2007, 10:17am » |
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"His name was Rico,..He wore a diamond."
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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testy01
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I love YaBB 1G - SP1!
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Re: Hey Chuck
« Reply #7 on: Apr 21st, 2007, 9:43am » |
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Chuck
I saw your Chuckattack2 video. Just a couple of minutes that really horrified me. One of the very good things about that video is that now I understand why I scared my family so badly. Seeing it from the "outside" like that was a learning experience for me.
Thank you for taking the time and trouble as well as allowing a camerman to be around. Personally, I can't stand to be around people when I'm having an attack.
Best regards
Jack
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The mad viking
CH.com Alumnus
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Always Look on The Bright Side of Life
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Re: Hey Chuck
« Reply #8 on: Apr 21st, 2007, 9:52am » |
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Hi There
I have the full version of the dvd off Chuck getting hit.Its a version around 30 minutes.
When i am traveling around Norway using that tape speaking about clusterheadaches i can promise you that tape has really open doors to the medical comunity that i thought was impossible.
Thank you again Chuck for letting me use that tape.The tape is worth its weight in gold for me in what i am doing here
Svenn
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| « Last Edit: Apr 21st, 2007, 9:53am by The mad viking » |
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Always Look on The Bright Side of Life
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testy01
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Re: Hey Chuck
« Reply #9 on: Apr 21st, 2007, 10:48am » |
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Svenn
You show people 30 minutes of that? I cringe just watching the 2 minute version. I believe you when you say it helps get attention.
Regards
Jack
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Cathi04
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Re: Hey Chuck
« Reply #10 on: May 6th, 2007, 1:10pm » |
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There are a LOT of amazing people here in Clusterville.........
DJ sits at the top, because he had the notion and the wherewithall to bring this site into existence!
There are people with immense knowledge of CH, and people who are incredibly supportive and people who can always be counted on......and amazingly faithful people to this site....and, well, Chuck. Yes, it was quite brave of him, to allow someone into that most private part of his affliction, but you just have to speak to Svenn, as he shows this 30 mins of hell, to know how much it helps to make people aware of the horror that is CH!
Keeping your heads together, trying to sort out this insidious affliction, and constantly seeking a cure/control is what everyone does here.
.and none of that could've happened, if it weren't for Deej....
I'm grateful for all the people in Clusterville.......it takes a whole lot of people to keep this boat moving-and moving, it is........... forward, onward and upward....
Danny, will you join us? Pick up an oar, and let's keep moving, ok?
I wish you PFDAN, my friend!
Cathi
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| « Last Edit: May 6th, 2007, 1:11pm by Cathi04 » |
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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DannyV
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Re: Hey Chuck
« Reply #11 on: May 7th, 2007, 8:57am » |
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Hey Cathi.
Almost 20 years now of rowing my own little boat in circles.
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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Tara Ann
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It's always darkest before the dawn.
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Re: Hey Chuck
« Reply #12 on: May 20th, 2007, 9:39pm » |
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Hey it took me forever and a day to watch chuckles video of his hit.  Chuck did you know that I just recentlyand I mean the last few months ... just cause I couldn't barely bare before now (well not that I can bare it any better now) whatever I'ma babblin away
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http://www.myspace.com/taraann77
 
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MikkaB
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Re: Hey Chuck
« Reply #13 on: May 21st, 2007, 4:02pm » |
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Play it now!
Play it now!
Play it now my baby
Cracklin Rosie make me smile
Girl if lasts for an hour well that's all right
cause we've got all night....
sorry, closet Neil Diamond fan here
Thanks, Chuck. I thanked you on another thread but I want to say again how brave it is of you (and Tony) to put that out there. I've already sent several family members & friends the youtube links.
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DannyV
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Re: Hey Chuck
« Reply #14 on: May 21st, 2007, 6:14pm » |
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Maybe we should start  a new section devoted to Niel. ....Or E.
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| « Last Edit: May 21st, 2007, 6:15pm by DannyV » |
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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BarbaraD
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Hugs to ya
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Re: Hey Chuck
« Reply #15 on: May 30th, 2007, 1:19pm » |
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What's worse than watching that video of Chuck is sitting in a nice restaurant with Chuckie and watching him go thru a 30 minute LIVE performance. Now that's an eye-opener.... (But being the troopers we were - we IGNORED him - more than I can say for the other patrons in the restaurant  ).
During the years since this site went up and we began meeting face to face, I've seen grown (otherwise tuff) men brought to their knees in total misery watching another person go thru a hit. That's when you build up a big respect for supporters. I can still remember the first "other" person I saw get hit (Kip - of the Kip Scale). It was horrible!
Doctors need to see a lot more of this.
Hugs BD
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What don't kill ya, Makes ya stonger!
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ClusterChuck
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Re: Hey Chuck
« Reply #16 on: May 30th, 2007, 6:31pm » |
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on May 30th, 2007, 1:19pm, BarbaraD wrote:| sitting in a nice restaurant with Chuckie and watching him go thru a 30 minute LIVE performance. |
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GAWD Barbara! I think about that hit SO often!!!! I wanted to go back to the hotel, but none of you would let me. And from what I heard, there was a road rally running back and forth to the hotel, to get me oxygen. I am glad we were just around the corner. I was NOT having fun!
But, yes, a lot of "civilians" got quite an education. From what I hear, most of y'all at the table, were talking with the "civilians" explaining what was going on.
Helluva night!!!
And damn good food, too, when I finally got to eat.
Chuck
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Thomas Fuller
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Sandy_C
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Burn that bra!
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Re: Hey Chuck
« Reply #17 on: May 31st, 2007, 1:47pm » |
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Danny, yes, Chuck, by allowing this video to be taken of him during a hit, and allowing it to be circulated worldwide, is OUR HERO 
The first time I tried to watch that video, I lasted about 5 minutes, and couldn't take any more., and had to walk away in tears. Then, at last year's OUCH convention, they played the video in its entirety and I sat in that audience with tears running down my face, and looked around, and there was not another dry eye in the house.
Also at that convention, I witnessed my very first CH hit happening to someone else, live, upfront, personal. I was astounded, devastated, and heartbroken, because l could do nothing for this woman to make her pain go away other than to offer my support. That was one of the most profound moments of my life. I have never felt more helpless.......
This is why we are all here. To share our successes and our failures, our happiness, our frustrations, and our anger.
This is home.
Sandy
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Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
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