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Topic: Lurker Comes To Life!! (Read 242 times) |
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Mare
New Board Newbie
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Posts: 7
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Lurker Comes To Life!!
« on: Feb 21st, 2007, 11:20pm » |
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Been lurking for some weeks now, thought it past time that I said hello..........and thank you. Thank you for just being here, how blessed I was to find this site. Your dedication to one another and the cause of furthering knowledge of CH is such a breath of fresh air.
Thank you , thank you, thank you. 
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********************
For Mark
La tristesse durea
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Posts: 4222
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Re: Lurker Comes To Life!!
« Reply #1 on: Feb 22nd, 2007, 12:29am » |
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Pleasure to meet you, Mare.
Are you a clusterhead, or are you a supporter? Both are certainly welcome here.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Barry_T_Coles
CH.com Alumnus
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Posts: 1348
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Re: Lurker Comes To Life!!
« Reply #2 on: Feb 22nd, 2007, 2:26am » |
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Hi Mare
Welcome aboard.
Cheers
Barry
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi
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duckie
New Board Newbie
Go Duckies
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Re: Lurker Comes To Life!!
« Reply #3 on: Feb 22nd, 2007, 4:19am » |
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Hi Mare, welcome to CH world!!! PF vibes, Lii
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Guiseppi
CH.com Alumnus
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Re: Lurker Comes To Life!!
« Reply #4 on: Feb 22nd, 2007, 9:48am » |
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Welcome to the asylum! When you get a chance post a little about yourself. How long you've had CH what you've tried, what did and didn't work etc. It's what makes the board so valuable, all the info exchanged, and again, welcome aboard!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Mare
New Board Newbie
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Posts: 7
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Re: Lurker Comes To Life!!
« Reply #5 on: Feb 22nd, 2007, 10:03am » |
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Ooops, should have done that! I've had CH since the early 80's. I typically have a cycle lasting 6 to 8 weeks and then a two year remission. As a lot of you know, "back in the day" there was a lot of treatment for sinus and migraine going on so we missed the boat for a lot of years.
I was finally diagnosed with CH in 96, treated with anti-depressents to "keep me calm"  and oxygen. Of course I fell in love with the oxygen.
Ironically after that diagnoses I've been cluster-free for almost 11 years. Didn't I just think I had it licked!!  That is, until the beast showed up at my door the first of this year.
My work situation has changed now and I can't have the oxygen with me as my husband and I are team truck drivers and that would be considered hazmat in the cab so this cycle has been a booger. I also had my gall bladder removed two weeks ago so as you can tell, we've had a lot going on.
I'm feeling like I'm coming up on the end of the thing so I'm going to try to get back on the truck today and see how it goes.
I should add that I use imetrex and so far it's worked well for me. I'm sorry this is so long and also sorry I don't have anything new to add.
I've just been overjoyed to find you all here and am grateful for all of the information. We've all come a long way, even since 96.
PF days and nights to all.
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********************
For Mark
La tristesse durea
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TonyG1
Guest
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Re: Lurker Comes To Life!!
« Reply #6 on: Feb 22nd, 2007, 7:57pm » |
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on Feb 22nd, 2007, 10:03am, Mare wrote:I was finally diagnosed with CH in 96, treated with anti-depressents to "keep me calm" and oxygen. Of course I fell in love with the oxygen.
Ironically after that diagnoses I've been cluster-free for almost 11 years. Didn't I just think I had it licked!! That is, until the beast showed up at my door the first of this year.
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Hi Mare, wow 11 years free of the beast ... that it excellent -- so sorry they have returned !!  Pleasure to meet you and welcome to the board !!
T.
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RichardN
New Board Hall of Famer
 
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Re: Lurker Comes To Life!!
« Reply #7 on: Feb 23rd, 2007, 1:09am » |
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Hi Mare & Welcome Home
Sooo sorry you can't have the 02 with you . . . jeez, you'd think there would be some way arround that. It's my only abortive . . . very glad you have the Imitrex to fall back on.
Hoping the beast doesn't like the road and gives you some PF time.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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