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Topic: It's back (Read 344 times) |
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Russ_T
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One day at a time
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Well I have been blessed with about 3 years of cluster free days and I was hoping that they were gone for good. In fact it has been so long that I forgot what medications I had been prescribed. With the time frame in mind I was soon reminded of the intense pain and the fatique caused by being awaken at all hours of the night. I wont say I am glad to bee back due tothe discomfort and pain of the clusters but I will say that I am glad to see so many supportive people still here. Forgive me for the rambling, haven't slept in about three nights.
My family, especially my wife is very disheartened that the demon has returned. I hope to get to know some of you and that we will have a chance to share information.
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Russ
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Bob_Johnson
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Re: It's back
« Reply #1 on: Jan 15th, 2007, 11:59am » |
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Might want to refresh yourself about meds choices before seeing your doc.
http://www.headachedrugs.com/pdf/ha2006.pdf Dr. Robbins site.
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Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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TonyG1
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Welcome back Russ. Sorry you're in Pain again... 
What Bob said in regard to meds.
Best wishes,
T.
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Mattrf
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Thank god for my wife and kids who keep me alive.
 
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Re: It's back
« Reply #3 on: Jan 16th, 2007, 1:38pm » |
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Russ I to am sorry the beast has returned, that has got to be very hard after so long being PF to have him blind side you like that. I am glad you remembered where we are and have come home for support, welcome back.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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Nancy
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I live for every pf minute
 
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Re: It's back
« Reply #4 on: Jan 26th, 2007, 10:49pm » |
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Russ,
I got mine came back too the first week of Jan, after a 3 year break. I know how it feels to be blind sided; all my meds had expired. It hit me in the middle of the night, I thought it was a nightmare and in a way it really was. My forever returning nightmare.
Good luck! and I pray we both get another long break when this is over.
Nancy
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| « Last Edit: Jan 26th, 2007, 10:54pm by Nancy » |
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Richr8
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It's all about today...
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Re: It's back
« Reply #5 on: Jan 27th, 2007, 9:38am » |
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Welcome back Russ. Sorry you had to return. That's great news about the pf years, a rare gift. Maybe just a short bout this time then you can go for five. In any case, someone will be here to share.
Hang tough.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Guiseppi
CH.com Alumnus
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Re: It's back
« Reply #6 on: Jan 30th, 2007, 10:25am » |
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Hurts so much more after a long remission....you almost convince yourself he's done with you then wam. Welcome back, hoping you find a med routine that helps.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
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Re: It's back
« Reply #7 on: Jan 30th, 2007, 2:37pm » |
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Russ, I'm sorry that you're back. If it's any consolation at all, three years is a good long time and you can be glad "it" left you alone for so long.
If your wife needs to talk tell her to go to this link and we will be more than happy to listen or talk about ways she can cope and also help you through what I am certain will be a VERY SHORT cycle this time.
http://www.ouch-us.org/familysvs/familysvs1.shtml
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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RichardN
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Re: It's back
« Reply #8 on: Jan 30th, 2007, 8:16pm » |
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Hi Russ and Welcome Back
Last time arround, did you try 02? I can't take triptans, so 02 is my only abortive . . . . works for 60-70% of us. Requires 15lpm regulator and a non-rebreather mask (the one with the bag) or (highly recommended) Clustermasx.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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Russ_T
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One day at a time
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Re: It's back
« Reply #9 on: Feb 7th, 2007, 8:26pm » |
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i can't seem to get the Dr. to prescribe 02, I wish I could. If I go to the ER they put me on 02 and the beast is goone in about 5 minutes. My neurologist has me on anti-seizure medication (Depakote, Verapamil, and Doxipene) as preventative and Zomig for abortive.
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Russ
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Brew
CH.com Alumnus
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Low Four!
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Re: It's back
« Reply #10 on: Feb 7th, 2007, 8:32pm » |
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on Feb 7th, 2007, 8:26pm, Russ_T wrote:| i can't seem to get the Dr. to prescribe 02, I wish I could. If I go to the ER they put me on 02 and the beast is goone in about 5 minutes. My neurologist has me on anti-seizure medication (Depakote, Verapamil, and Doxipene) as preventative and Zomig for abortive. |
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You need to either:
a) get more persuasive, or
b) get a new doc.
PFDAN
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Always remember that you're unique, just like everyone else.
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