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Topic: New to the forum (Read 384 times) |
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tripspot
New Board Newbie
I love YaBB 1G - SP1!
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New to the forum
« on: Jan 11th, 2007, 5:21am » |
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I cant express how much better i feel now, knowing that im not alone in this struggle what seems to be for my life and sanity as a human being.
Ive been suffering from my clusters for about 5 years now. It wasent until maybe 2 years ago that i was finally diagnosed with this debilitating disease. Ive read alot on this forum and have learned so many new tools to use in this fight against the "beast". That word describes so good i cant even tell you all. Just to know that i can come here with my problems and share everything i need to with such passionate people makes more difference then you all know. Ive just ordered my medigas or 02 you can say and am going to get the clustermasx soon. I am currently taking the imitrex shots and they seem to do wonders, but i like to only take them when absolutly necessary. I even went out today and bought some monster and rockstar drinks as i read on here that they might be a good abortive, which sounds like a great idea. Anyways ihope to learn alot more from you all and hope to speak with you all soon..
Mike.. 
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AussieBrian
New Board Hall of Famer
Got beer?
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Re: New to the forum
« Reply #1 on: Jan 11th, 2007, 5:46am » |
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Mike, you're no longer alone.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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tripspot
New Board Newbie
I love YaBB 1G - SP1!
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Posts: 2
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Re: New to the forum
« Reply #3 on: Jan 11th, 2007, 7:43am » |
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thanks guys. ill be around alot, my cluster is just begining.
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Re: New to the forum
« Reply #4 on: Jan 11th, 2007, 10:16am » |
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Welcome, Mike.
If you are prescribed Verapamil, be certain that you know and understand the cautions against using energy drinks containing taurine. The combination can apparently lower blood pressure to dangerous levels in some individuals.
Again, welcome. I hope this is a short and uneventful CH cycle for you.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Mattrf
New Board Hall of Famer
Thank god for my wife and kids who keep me alive.
 
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Posts: 817
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Re: New to the forum
« Reply #5 on: Jan 11th, 2007, 1:32pm » |
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Mike you may want to read up on the Imitrex tip on the left, there are many that say you only need about a third of a shot to abort and at the cost and the limited number the doctor will give you, the tips can help you make them last longer and cost less in the long run.
Welcome to the funny farm, glad you found us stick around.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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Salvelinus
New Board Junior
With Him, all things are possible. ><>
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Re: New to the forum
« Reply #6 on: Jan 11th, 2007, 7:03pm » |
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Mike, I'm really sorry you need to be here, but I'm glad you are. There's lots of good info here, study hard.
Stay strong!
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Namaste,
--Scott ><>
"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
--Building 429
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TonyG1
Guest
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Hi Mike - Sorry you have the condition that brought you here but welcome aboard !! Great info here and more importantly great ppl !!
May the cycles be short and Pain free time long !!
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JeffB
CH.com Alumnus
New Board Hall of Famer
Wide open till you see God, then brake
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Re: New to the forum
« Reply #9 on: Jan 12th, 2007, 7:09pm » |
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Welcome, dude.
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" It's been my experience that people who have no vices have very little virtues."
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tanner
CH.com Alumnus
New Board Hall of Famer
Adopt a POW/MIA I have
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Re: New to the forum
« Reply #10 on: Jan 12th, 2007, 7:32pm » |
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Hi Mike, sorry to meet you ,but very happy you found us!
Don't listen to Tony tho....we are really a bunch of arseholes in disguise
Sorry tony couldn't resist 
Hope your episode leaves quickly.....Tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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JeffB
CH.com Alumnus
New Board Hall of Famer
Wide open till you see God, then brake
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Posts: 2729
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Re: New to the forum
« Reply #11 on: Jan 12th, 2007, 7:39pm » |
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I take offense to that, Tim. I am not in disguise.
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" It's been my experience that people who have no vices have very little virtues."
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Posts: 4222
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Re: New to the forum
« Reply #12 on: Jan 13th, 2007, 2:22am » |
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No indeed, Tim. We are a blessing in disguise.
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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swimchica623
New Board Veteran
Get hit. Hit back harder. That's life.
Gender: 
Posts: 218
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Re: New to the forum
« Reply #13 on: Jan 13th, 2007, 11:56am » |
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Hi Mike!
Sorry I don't have as nifty as a picture...hehehehe.
If this is your first time using o2 and you don't get the hang of it at first, don't dispair!!! I'm so agitated and wiggly during hits that I had a hard time keeping the mask on and getting quick at putting it on at the VERY first sign..and even knowing exactly what the very first sign is for you (I actually get a little itchy in my eye and around it before any of the classic cluster stuff starts so I put it on then at once I caught that pattern it worked so much better). I wanted to give up with the o2 because it kinda worked but not really but everyone here kept pushing me with it and once I got the hang of it it became a lifesaver! Still getting help with it as my prescription is wrong, so never give up to get what you need! And always ask for help here everyone is super and some have been dealing with this for umm longer than I've been alive!
Hope this cycle isn't too bad for ya....
Lisa
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swimchica623
New Board Veteran
Get hit. Hit back harder. That's life.
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Posts: 218
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Re: New to the forum
« Reply #14 on: Jan 13th, 2007, 12:02pm » |
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Hi Mike!
Sorry I don't have as nifty as a picture...hehehehe.
If this is your first time using o2 and you don't get the hang of it at first, don't dispair!!! I'm so agitated and wiggly during hits that I had a hard time keeping the mask on and getting quick at putting it on at the VERY first sign..and even knowing exactly what the very first sign is for you (I actually get a little itchy in my eye and around it before any of the classic cluster stuff starts so I put it on then at once I caught that pattern it worked so much better). I wanted to give up with the o2 because it kinda worked but not really but everyone here kept pushing me with it and once I got the hang of it it became a lifesaver! Still getting help with it as my prescription is wrong, so never give up to get what you need! And always ask for help here everyone is super and some have been dealing with this for umm longer than I've been alive!
Hope this cycle isn't too bad for ya....
Lisa
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swimchica623
New Board Veteran
Get hit. Hit back harder. That's life.
Gender:
Posts: 218
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Re: New to the forum
« Reply #15 on: Jan 13th, 2007, 12:04pm » |
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hey Mike I just checked out your profile...you are 21 too!! You might be stealing my "baby" status here lol. When's your bday?
Nice to have someone my age here...always hangin out with these old fogies. XD
(just kiiiiiiiding of course!!!!!!!)
Lisa
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barry_sword
CH.com Alumnus
New Board Hall of Famer
Mountain Biking Keeps Me Sane
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Posts: 1988
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Re: New to the forum
« Reply #16 on: Jan 13th, 2007, 2:44pm » |
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Hi Lisa.This ole fogy at 47 can still do 30kms. of rock riding on a mountain bike and still go home and cook dinner and drink a six pack of beer before going to bed at 7:00pm. Not bad eh! 
Nice to meet you!
Barry
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QUIT SMOKING SEPT. 03 2005,
http://barrysword.blogspot.com
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Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
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Re: New to the forum
« Reply #17 on: Jan 13th, 2007, 3:02pm » |
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on Jan 12th, 2007, 7:32pm, tanner wrote:
Don't listen to Tony tho....we are really a bunch of arseholes in disguise |
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Tim nailed it.....LOL
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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