Author |
Topic: Newbie here in midst of a cycle (Read 286 times) |
|
EddieC73
New Board Newbie
Gender: 
Posts: 1
|
 |
Newbie here in midst of a cycle
« on: Jan 9th, 2007, 5:27pm » |
 Quote  Modify
|
Hi everyone. This is my first post. My name is Ed and I am from Baltimore, MD USA. I will start off by saying that this site has a wealth of helpful information that I have been reading over the past few days. I am in the 6th week of my cycle. I was diagnosed with CH 7 years ago, when I had a cycle that lasted 5 weeks. I have had only 1 cycle since then, which lasted 13 weeks. I apparently had an awful neuro, he only prescribed steroids (prednisone) which if I am correct is only a preventive. I have never had anything for pain!! Well, yesterday morning I went to a new neuro, and he gave me Maxalt (dissolve under the tongue stuff). I get my CH once daily, usually an hour after I am sleeping, but sometimes around 9pm it will hit, which is an hour before I go to bed. That devil hit me last night before I was in bed so I had enough warning to take the Maxalt before it full blown. I hope it wasn't pure luck, but that stuff worked wonders for me. My CH was only about 25% of my normal CH painwise, and lasted only 20 minutes or so, as opposed to the normal 60-90 minutes. I fell asleep about 45 minutes after taking the Maxalt and slept through the night. My wife seemed happier than I did, she got to sleep all night! I was wondering what other people have gotten from Maxalt, and any comments/questions/suggestions are greatly welcome. Thank you for letting me be a part of this great community. I wish I had found this site 7 years ago!
|
|
 IP Logged |
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: Newbie here in midst of a cycle
« Reply #1 on: Jan 9th, 2007, 5:38pm » |
Quote Modify
|
The prednisone is a great prevent but should only be used for a short time while you are waiting for another prevent to build up, lithium, topomax etc!
You didn't mention oxygen. If you can get your doc to prescribe it, it can knock a headache down to zero in as little as 6-8 minutes. Has the least amount of side affects and many sing its praises here. Hope your cycle is close to over and you get another multi year break, they're heavenly!! Welcome to the board.
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
Salvelinus
New Board Junior
With Him, all things are possible. ><>
Gender:
Posts: 84
|
|
Re: Newbie here in midst of a cycle
« Reply #2 on: Jan 9th, 2007, 6:53pm » |
Quote Modify
|
Oxygen is really, really amazing. I kept a bottle by the bed during the last cycle.
Other prevent that works well is Verapamil. It's cheap and it usually works well for me. I'm also taking 400 mg of riboflavin (Vitamin B2) and 500 mg of Magnesium each day. These last two seem to have put my current cycle on hold since a day after I started taking them, about one week ago. I don't think the verapamil has had enough time to get started yet, so I have to owe it to the vitamins. They worked so well for me that I have not yet started the Medrol pack I got.
One last prevent that was really great for me, and is what both ended my worst cycle and began the longest remission I've ever had is indocin. There are many here who haven't had any luck with it, but it was a Godsend for me.
God Bless, Eddie.
|
|
IP Logged |
Namaste,
--Scott ><>
"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
--Building 429
|
|
|
Salvelinus
New Board Junior
With Him, all things are possible. ><>
Gender:
Posts: 84
|
|
Re: Newbie here in midst of a cycle
« Reply #3 on: Jan 9th, 2007, 6:55pm » |
Quote Modify
|
on Jan 9th, 2007, 6:53pm, Salvelinus wrote:Oxygen is really, really amazing. I kept a bottle by the bed during the last cycle.
Other prevent that works well is Verapamil. It's cheap and it usually works well for me. I'm also taking 400 mg of riboflavin (Vitamin B2) and 500 mg of Magnesium each day. These last two seem to have put my current cycle on hold since a day after I started taking them, about one week ago. I don't think the verapamil has had enough time to get started yet, so I have to owe it to the vitamins. They worked so well for me that I have not yet started the Medrol pack I got.
One last prevent that was really great for me, and is what both ended my worst cycle and began the longest remission I've ever had is indocin. There are many here who haven't had any luck with it, but it was a Godsend for me.
God bless you, Eddie. Stay strong. |
|
EDIT: forgot to answer your question about the maxalt. That never worked for me. Neither did Zomig. Imitrex nasal spray almost always works in 10 minutes for me.
|
|
IP Logged |
Namaste,
--Scott ><>
"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
--Building 429
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: Newbie here in midst of a cycle
« Reply #4 on: Jan 10th, 2007, 12:06am » |
Quote Modify
|
Funny you are only the second person I've seen who was told to try the B-2 and magnesium cocktail. I'm convinced that's what gave me my 2.5 year break. Longest break prior to that was a year, most years it's 2 cycles a year like clockwork.
Maybe it's all in my head........duh.....but I'm sticking with the B-2 and magnesium. Did the doc reccomend a calcium/D supplement with your magnesium? I've been told the magnesium will leech the calcium outta ya.
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
kcopelin
CH.com Alumnus
New Board Hall of Famer
good grief
Gender: 
Posts: 536
|
|
Re: Newbie here in midst of a cycle
« Reply #5 on: Jan 10th, 2007, 7:55am » |
Quote Modify
|
I've been taking a Vit B supplement that has all the B's in it. Doesn't seem to have helped much (running to kitchen to get bottle and see about B2) wow! it's got 100 mg of B2...hmmm...Glad it works for y'all.
Have you tried melatonin at night? It has helped me quite a bit. 9-12 mg about an hour before bed-might help with the night time hits.
PFDAN y'all
kathy
|
|
IP Logged |
Words count, chose carefully.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: Newbie here in midst of a cycle
« Reply #6 on: Jan 10th, 2007, 9:14am » |
Quote Modify
|
on Jan 10th, 2007, 7:55am, kcopelin wrote:I've been taking a Vit B supplement that has all the B's in it. Doesn't seem to have helped much (running to kitchen to get bottle and see about B2) wow! it's got 100 mg of B2...hmmm...Glad it works for y'all.
Have you tried melatonin at night? It has helped me quite a bit. 9-12 mg about an hour before bed-might help with the night time hits.
PFDAN y'all
kathy |
|
B vitamins are good, but magnesium has actually helped some folks.
http://med-owl.com/clusterheadaches/tiki-index.php?page=Magnesium
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Salvelinus
New Board Junior
With Him, all things are possible. ><>
Gender:
Posts: 84
|
|
Re: Newbie here in midst of a cycle
« Reply #7 on: Jan 11th, 2007, 7:06pm » |
Quote Modify
|
Magnesium leaches calcium? Did not know that. I'll look into it . . . thanks!
|
|
IP Logged |
Namaste,
--Scott ><>
"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
--Building 429
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss