Author |
Topic: Profiles (Read 1029 times) |
|
DougJ
New Board Newbie
Remission for 2 years now it's back!!!
Posts: 9
|
Hi All,
I've been a sufferer for about 7 years now. I've been to this website many times before. However, I never did register.
About 3 years ago, I went to a neurologist who assured me he knew about cluster headaches.
After the usual questions about the intensity, location, frequency, and duration of the pain I was experiencing, he said to me, "I want to make a few statements about you, and you tell me if they are true or false.
Q: You're a smoker, right? A: True
Q: Your wife/ girlfriend is a petite woman? A: True
Q: You're a Republican? A: True
Q: You have an unusual job/occupation? A: True"
There were a few other questions he asked me (I can't remember them all now) and the answer to all of them was "True".
After the questioning was over, I asked him, "What does this have to do with my headaches?" To which he responded, "You fit the classic profile of a cluster headache sufferer."
This was news to me. I had had the headaches for a few years at this point and had done some research on the subject. But, I had never heard of anything like this before.
He went on to tell me that the average sufferers were large framed males with prodominate noses. They usually work in some field that most people wouldn't even think of doing. He didn't tell me what the profile was for female sufferers was, but, it shocked me that he could so accurately tell me about myself.
My question to anyone and everyone here is, Is there any way (in order to better understand this -as I like to put it- "Nightmare Gone Wrong" we could try to find out more specific corrilations between one sufferer and another?
Any help would be appreciated.
Doug
|
|
 IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender: 
Posts: 4222
|
 |
Re: Profiles
« Reply #1 on: Jan 3rd, 2007, 7:47pm » |
 Quote  Modify
|
on Jan 3rd, 2007, 7:22pm, DougJ wrote:
Q: You're a smoker, right? A: True
Q: Your wife/ girlfriend is a petite woman? A: True
Q: You're a Republican? A: True
Q: You have an unusual job/occupation? A: True"
My question to anyone and everyone here is, Is there any way (in order to better understand this -as I like to put it- "Nightmare Gone Wrong" we could try to find out more specific corrilations between one sufferer and another?
Any help would be appreciated.
Doug |
|
There have been profiles before--used to be, we were all male, smokers, heavy drinkers, with "leonine" features and "orange-peel" skin and hazel eyes.
Not throwing rocks at your neuro, but I don't think I buy it. The only common characteristic I've seen among the people here is that they have weird stuff going on in their heads.
on Jan 3rd, 2007, 7:22pm, DougJ wrote:
There are some notable exceptions here. 
Warm welcome, and best wishes,
George
|
| « Last Edit: Jan 3rd, 2007, 7:53pm by George_J » |
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: Profiles
« Reply #2 on: Jan 3rd, 2007, 7:55pm » |
Quote Modify
|
Ill throw rocks....your neuro is a complete fucking idiot and a narrow minded fuck face!!!
He knows nothing about CH if thats what hes asking!
Now, which reply suits you, Doug....mine or Georges?
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
DougJ
New Board Newbie
Remission for 2 years now it's back!!!
Posts: 9
|
|
Re: Profiles
« Reply #3 on: Jan 3rd, 2007, 8:07pm » |
Quote Modify
|
Thanks George,
I had been in "remission" for 2+ years. Then, just before Christmas, I came down with a bad ear infection. (probably due to sanding on some flood damaged furniture -Hurricane Katrina aftermath) I got an earache then later that night, about 2:30AM and there was the DEMON again.
It seems to be a bit different this go round. I usually have the typical CH taking about 15 minutes to ramp-up followed by 45 minutes of a 6,000 degree railroad spike being oscellated through my temple, behind my eye, and into the left sinus cavity, then a 15 minute cool down period. NO, this time it's different. I wake at 1:15AM to 4 hours of that searing pain, followed by 4 hours of cool down. Then, a residual headache in my temple alone for the rest of the day.
As if the headaches aren't bad enough, now I have to go through the day with 3 hours sleep.
I'm literally DRAINED and EXHAUSTED before my day even starts.
Methylprednisolone worked in the past but not this time. I've tried the O2 to no avail (Both my mother and current girlfriend are Respiratory Therapists, so, I know I did that right) Imatrex may be an option but, last time I checked, that stuff's VERY expensive.
Don't know what else to say. Except "Thanks" to everyone here for being support.
Doug
BTW---I have no clue if my neurologist was spot-on or a quack. There is no claim here as to how good a doctor he is. But, he did peg me.
|
| « Last Edit: Jan 3rd, 2007, 8:20pm by DougJ » |
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: Profiles
« Reply #4 on: Jan 3rd, 2007, 8:12pm » |
Quote Modify
|
Jonny you kill me bro.
I like yours -vs- goergej
jb
You rock as well Goerge
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: Profiles
« Reply #5 on: Jan 3rd, 2007, 9:40pm » |
Quote Modify
|
Yeah, what Jonny said.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: Profiles
« Reply #6 on: Jan 4th, 2007, 1:35am » |
Quote Modify
|
If you're getting hit at night, you might consider melatonin. I nearly always get hit at night as well.
The usual dose is 6 to 12 mg. taken 1/2 hour before going to bed. There's some anecdotal evidence here that taking 50 mg. benedryl along with it may augment the effect. If it doesn't work right away, give it a chance--say a week or two. There are quite a few of us who benefit from it--it's significantly reduced the number of nighttime hits that I get.
Start out with the smaller dose and work your way up. A lot of it may depend on your size and body weight. I take 9 mg.
Best wishes,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
chewy
Guest
|
Q. Your neuro is a total jack off. A. True
|
|
IP Logged |
|
|
|
Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
Gender: 
Posts: 2585
|
|
Re: Profiles
« Reply #8 on: Jan 5th, 2007, 10:54am » |
Quote Modify
|
Hi Doug.
I'll be the token female responder to this thread.
Outside of question #1 about smoking (which seems a reasonable question), the rest are just plan bogus.
What the Hell does the size of your wife or girlfriend have to do with CH? Your political affiliation - Oh Pleeeeze. Unusual occupation? Then how does he explain all of the rest of us schmucks who have everyday mundane jobs?
If you would, please ask him to provide you with the source of his "classic profile of a cluster headache sufferer". I want to see what he has to say about women! Oughta be hilarious.
Sandy
|
|
IP Logged |
Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
|
|
|
DougJ
New Board Newbie
Remission for 2 years now it's back!!!
Posts: 9
|
|
Re: Profiles
« Reply #9 on: Jan 8th, 2007, 9:42am » |
Quote Modify
|
Look,
To all of those out there who think my Neurologist is an idiot, and to those who think that his questions were a bunch of mumbo-jumbo. As I stated before, I am not here to attest to the validity of his questions or weather or not there was anything in his questions that ACTUALLY have anything to do whith Cluster Headaches. My question here is, "Is there a common link between us all?"
Sometimes there are things out there that on the surface, seem to have nothing to do with the current situation (whatever that situation may be). However, when you get far enough away, and you start looking at things from a different perspective you can see the connection.
If I have an odd job and I have CH and you have a mondane job and you have CH then I guess that's not the connection. Head trauma prior to getting CH, smoking, prodominate noses, WHATEVER. I don't know what the answer is. All I'm saying is that there has to be a connection. I don't know what that connection is, and maybe my Neuro doesn't either. But that doesn't mean that there isn't something out there that is causing all of us to suffer through this shit.
If there is a "tie that binds" what better place to find it? Looking at this site and seeing how many of us there are here, hell, what is it, over 5000 of us registered? Where else on Earth are you going to find that many CH sufferers together?
Suppose, just suppose here for a moment that sugar is the culprate or nylon or I don't know rice. You pick something. Suppose it's something that none of us on his/her own could find or pick out by themselves. Wouldn't it be great if together we could find what it is and cut that substance, activity, thought, whatever the hell it is out of our lives and go back to living normal existances?
I don't know about you guys. But, I would do ANYTHING to never have to scream into a pillow while crying, rocking back and forth, and begging God to either kill me or take away the pain.
I think that those of you who bothered to respond to my post missed the point of the post to begin with. Maybe I should have been a bit more clear as to what I was trying to find out. Whatever the case, hopefully this will lead someone or all of us to "think outside the box" and, maybe, finally figure out what the hell causes this shit!
Doug
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: Profiles
« Reply #10 on: Jan 8th, 2007, 9:52am » |
Quote Modify
|
on Jan 8th, 2007, 9:42am, DougJ wrote:
If there is a "tie that binds" what better place to find it? |
|
The tie that binds us all is a screwed up hypothalamus.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: Profiles
« Reply #11 on: Jan 8th, 2007, 10:02am » |
Quote Modify
|
Doug,
Do you think that you are the first person to have posed the question, "I wonder if there is something we all have in common?" Do you think the rest of us have not spent time "out of the box" on this subject? Do you think that we're just a bunch of idiot sufferers who congregate in the dark in front of our computers waiting on someone like you to shock us out of our dazed anticipation of a CH-messiah?
You're talking to a community of people who are here because we think out of the box. We have chosen to find other voices than idiot neurologists (like yours) to base our hope and success managing cluster headache.
So read up. You'll find more "out of the box" approaches to CH than anywhere else in the world.
Pain free wishes to you.
Scott
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
peacestock
New Board Newbie
Intentionally left blank.
Gender:
Posts: 49
|
|
Re: Profiles
« Reply #12 on: Jan 8th, 2007, 12:35pm » |
Quote Modify
|
I have to say that I think some of you are being pretty tough on 'ol Dougie. I am sure everyone here has spent time trying to figure out the correlation between the headaches and some other bizarre trait we all have in common. It brings comfort to people to find reasons or patterns to things. It's frightening when we are faced with the realization that this is all just random and there is no grand reason for anything.
I personally find comfort it knowing that the reason for my clusters are that the size of my brain is ever growing due to my gigantic intellect and the pain is in fact my skull trying to make room. Some day I will be so smart! Too bad my hats won't fit me much longer.
Peacestock
|
|
IP Logged |
Before you insult someone, walk a mile in their shoes; 'cuz then you will be far away and, hey, you'll have their shoes.
|
|
|
Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
Gender:
Posts: 2585
|
|
Re: Profiles
« Reply #13 on: Jan 8th, 2007, 1:28pm » |
Quote Modify
|
on Jan 8th, 2007, 12:35pm, peacestock wrote:
I personally find comfort it knowing that the reason for my clusters are that the size of my brain is ever growing due to my gigantic intellect and the pain is in fact my skull trying to make room. Some day I will be so smart! Too bad my hats won't fit me much longer.
Peacestock |
|
Very good, Peace. I really do like your reasoning behind why we have CH. Gave me a much needed chuckle today. Advice, just stop wearing hats.
I feel I need to offer an apology to Doug, though. My previous post was pretty much blasting the comments his neuro made about the classic profile. I did not address Doug's question with regard to specific correlations between CH sufferers.
There have been hundreds of questions posted over the years on these boards looking for similarities, correlations, why some and not others, how many have this, how many have that. No difinitive answers have ever come forth, other than a "broken hypothalmus", which did not come from members of these boards, but by reputable, noted physicians. No real reason has been found, no real similarities have been found, and no cure has been found, all by highly noted physicians around the world.
So, to Doug. I apologize for not addressing your primary question. I'm sorry, though, I cannot apologize for questioning your neuro's classic symptoms.
Sandy
|
|
IP Logged |
Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
|
|
|
DougJ
New Board Newbie
Remission for 2 years now it's back!!!
Posts: 9
|
|
Re: Profiles
« Reply #14 on: Jan 8th, 2007, 3:21pm » |
Quote Modify
|
Peace,
You are absolutely right! I think you have found the tie that binds! I too suffer from Cranius Maximus. (Obviously, I have Cluster Headaches.)
I guess we can't all have our cake and eat it too.
As far as the neurologist that figures it has something to do with a broken hypothalimus, does anyone know how this doctor came to his conclusion?
BTW- I have not had any headaches for the past 2 days. I tried a RedBull last night about 12:00am, 10 minutes before I went to bed. The night before that I took 2 prednisone tablets about 5:00pm. Both preventive measures seem to have worked well.
Until this cycle, I hadn't had a CH since my divorce 2 years ago. DAMN! I can't blame my ex-wife for my headaches anymore. -------Had heartburn again recently after about the same amount of remission time. I guess I can't blame that on her anymore either.
Doug
|
|
IP Logged |
|
|
|
Salvelinus
New Board Junior
With Him, all things are possible. ><>
Gender:
Posts: 84
|
|
Re: Profiles
« Reply #15 on: Jan 8th, 2007, 9:29pm » |
Quote Modify
|
I've heard the "leonine features" & "ruddy complexion" bit, but never what type of job or the size of your girlfriend stuff.
That is strange . . .
I have to admit I've always wondered if there was something to the connection between the physical features and the CH. Specifically (if there actually is a connection), whether one is the result of the other. It isn't too much of a stretch for me to link physical traits to a physical illness.
I always thought that the smoking was more of a treatment than anything . . .
Anyway, Doug, about the Methylpredisolone, I've had varying results from it as well. What has seemed to work very well for me is Predisone. It doesn't come in a pack and you have to be careful about paying attention to ramping the dose, but man does it ever do the job.
|
| « Last Edit: Jan 8th, 2007, 9:30pm by Salvelinus » |
IP Logged |
Namaste,
--Scott ><>
"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
--Building 429
|
|
|
Woobie
CH.com Alumnus
New Board Hall of Famer
I luv you guys!!!!!!!!
Gender:
Posts: 3800
|
|
Re: Profiles
« Reply #16 on: Jan 9th, 2007, 5:41am » |
Quote Modify
|
and HI and welcome and all that
edited cuz i was mean........not to anyone here - just to "doctors and researchers".... 
|
| « Last Edit: Jan 9th, 2007, 5:44am by Woobie » |
IP Logged |
|
|
|
chewy
Guest
|
Research Questions:
Q: Your wife/ girlfriend is a petite woman? A: True
Q: You're a Republican? A: True
Q: You have an unusual job/occupation? A: True"
Conclusions:
George Dubya is a clusterhead.
|
| « Last Edit: Jan 9th, 2007, 7:31am by chewy » |
IP Logged |
|
|
|
DougJ
New Board Newbie
Remission for 2 years now it's back!!!
Posts: 9
|
|
Re: Profiles
« Reply #18 on: Jan 11th, 2007, 11:05am » |
Quote Modify
|
I've been doing quite a bit more research over the past few days.
I've learned a lot about LSD and "shrooms" and how they effect the hypothalimus. Interestingly, tho, I learned about the role of the hypothalimus itself. WOW! It seems as though the hypothalimus is the "brain of the brain." It controls things such as: body tempeture, thirst, hunger, metabolism, testicles, ovaries, the production and secretion of hormones and all the other basic functions of life itself. I have heard it refered to as (to put it into computer terms) the DOS of the brain. In other words we couldn't even "BOOT-UP" without the hypothalimus.
Now, keep in mind, this is purely speculation and theory, but, couldn't it be possible that if this all important part of the brain is responsible for so many things, and it gets screwed up isn't it reasonable to think that it may be possible that it would have certain effects and show itself by either physical, emotional, or life choice traits in most if not all with the same disorder?
I believe that there are some things in life that we are in complete control over. There are also things that no matter what degree of influence we might inflict, we will have NO impact. This much I know; we (i.e. human beings) fear fate which is completely out of our hands. We like to believe that we "choose" who or what we become. We like to believe that we are in control of our own lives and we choose our mates and we choose our political affiliation and we choose what profession we enter.
Maybe we do and maybe we don't. However, I challange each and every one of you. Look back on your lives. Think about the things that have lead you to where you are in life right now. Some of it was circumstance. Some of it was luck. Some of it was your upbringing. And some of it was outside influences. Most of it was YOU. The "You" that was you from birth.
As far as the profiles of CH sufferers are concerned, I think it is possible. Not fact. Not absolute. Not congruent with all of us, but most of us.
Your friend and fellow sufferer in pain,
Doug
P.S. No, I haven't had any shrooms or LSD--------YET!
|
|
IP Logged |
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: Profiles
« Reply #19 on: Jan 11th, 2007, 11:28am » |
Quote Modify
|
Yes, the hypothalamus is an amazing thing.
Inasmuch as CH sufferers get up each day, require food and water for the body to work, have other needs on Maslow's Heirarchy, and sleep, I think barking up the psych profile route is an utter waste of time. Sure, it's fun and entertaining when you read something about another sufferer and say to yourself, "GET OUT, that's just like me!!!" But, in the end, we are almost indiscernible from the general public in our wide range of interests, political affiliations, spouse selections, sexual orientations, personality traits and so on....
But, the hypothalamus is an amazing thing. And, the physical effects of our dodgy hypothalamus can be often be seen in other aspects of our body's behavior.
Scott
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: Profiles
« Reply #20 on: Jan 11th, 2007, 11:56am » |
Quote Modify
|
on Jan 11th, 2007, 11:05am, DougJ wrote:
Now, keep in mind, this is purely speculation and theory, but, couldn't it be possible that if this all important part of the brain is responsible for so many things, and it gets screwed up isn't it reasonable to think that it may be possible that it would have certain effects and show itself by either physical, emotional, or life choice traits in most if not all with the same disorder?
As far as the profiles of CH sufferers are concerned, I think it is possible. Not fact. Not absolute. Not congruent with all of us, but most of us. |
|
Doug, I am willing to concede that it's possible. But then again, almost anything is "possible". Speculation is fine if it leads somewhere--sometimes it does--but it's ultimately unhelpful if it can't be supported by observable fact, or even anecdotal evidence. There have been hundreds of threads here (take a good long look if you wish) that have attempted to discover common physical, psychological, neurological, immunological, even astrological characteristics that might distinguish us as a population.
I, for one, have not seen anything that is powerfully convincing here (where there is probably more discussion and more poll-taking among clusterheads than anywhere else in the world), nor am I aware of any convincing scientific evidence showing common ground. Physically, psychologically, and in other ways we are all over the map.
Yes, external physical characteristics and psychological characteristics may be linked to certain physical disorders, but I'm not at all certain that CH is one of them.
Anecdotal physical characteristics that were allegedly linked to CH have done actual harm in the past. We might laugh at the "leonine" features, "orange-peel skin", and hard-drinking male profile that STILL circulates among the medical community, but this profile was used as an aspect of diagnosis by many doctors. As such, it led to widespread misdiagnosis of males who did not fit the "profile", and near-universal misdiagnosis of women. That caused to a lot of unnecessary suffering and led to a lot of inappropriate treatment. I think you'll find that's why profiling sticks in a lot of peoples' craws.
Again, I don't have a problem with speculation, but I'd like to see something to back it up. I don't think your neuro has anything to back it up. If he has citations that he can point to, I'd be more than happy to see them.
Sorry this is so long, but I wanted to be as clear as I could.
Best wishes,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Profiles
« Reply #21 on: Jan 11th, 2007, 11:57am » |
Quote Modify
|
Doug, welcome. I don't think the posters were attacking YOU at all - just the ignorant doctor syndrome that we see here ad nauseum.
Although, I must admit the petite girlfriend is a new one. Wonder how he words that question for his female cluster patients. 
I've been here in this community since 1998. And married to a clusterhead since 1989. The ONLY commonality I can say conclusively that you folks have is.....you have cluster headaches and a dodgy hippothingamajiggy.
I can tell you what commonalities you DON'T have though:
You're not all hazel-eyed, left handed, tall, men, smokers, drinkers, type A personalities, previously head-injured, ruddy complected, caucasian, left- OR right- wing activists, Christian, Jewish, Muslim, Buddhist, Atheist......need I go on?
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
DougJ
New Board Newbie
Remission for 2 years now it's back!!!
Posts: 9
|
|
Re: Profiles
« Reply #22 on: Jan 11th, 2007, 1:17pm » |
Quote Modify
|
If, in fact, there are traits and commonalities between us, wheather or not they fit the current medical field's "classic profile", why should they be dismissed as hocus-pocus mumbo-jumbo witch doctor methods?
If there are similarities, why not try to find out what they are and use them to help diagnose those of us with CH? I am not saying that EVERYONE has the same outward signs. But, if there are physical and/or mental charictaristics that are present and doctors are aware of, then maybe there won't be so many of us who are misdiagnosed.
As far as the "classic profile" of females who have CH, maybe there are traits there too and they're undiscovered as of yet. I DON"T KNOW! As I have stated before. This is a theory. And, in my opinion, one that shouldn't be dismissed.
Doug
|
|
IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: Profiles
« Reply #23 on: Jan 11th, 2007, 1:44pm » |
Quote Modify
|
on Jan 11th, 2007, 1:17pm, DougJ wrote:| If, in fact, there are traits and commonalities between us, wheather or not they fit the current medical field's "classic profile", why should they be dismissed as hocus-pocus mumbo-jumbo witch doctor methods? |
|
Evidence, evidence, evidence. Even a little would be nice.
on Jan 11th, 2007, 1:17pm, DougJ wrote:
If there are similarities, why not try to find out what they are and use them to help diagnose those of us with CH? I am not saying that EVERYONE has the same outward signs. But, if there are physical and/or mental charictaristics that are present and doctors are aware of, then maybe there won't be so many of us who are misdiagnosed. |
|
We haven't been asleep here--common characteristics have been cussed, discussed, dissected, reflected, objected, and rejected, over and over again. Again, setting up yet another "profile" of typical persons with CH without convincing evidence that that profile is factual and accurate serves no purpose, and can be actively harmful. It has been harmful in the past.
on Jan 11th, 2007, 1:17pm, DougJ wrote:
As far as the "classic profile" of females who have CH, maybe there are traits there too and they're undiscovered as of yet. I DON"T KNOW! As I have stated before. This is a theory. And, in my opinion, one that shouldn't be dismissed. |
|
Where's the evidence, Doug? None of us has ever heard of some of these "characteristics" your neuro came up with before. Until some shred of evidence is presented, it's not a theory--not even a SWAG--it's simple speculation, and not at all convincing. Lacking evidence, even anecdotal evidence, there's no alternative but to dismiss it.
Where's the beef?
Hope your cycle resolves itself quickly.
Best wishes,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: Profiles
« Reply #24 on: Jan 11th, 2007, 2:28pm » |
Quote Modify
|
I don't want to be a victim of cluster headache profiling........ 
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss