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Topic: Umm...hi (Read 1136 times) |
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Broken
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New here. Been watching for a while. Good thing going here. Glad to be a part of it. Yeah. Guess that's all. Bye!
Broken
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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vietvet2tours
CH.com Alumnus
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Re: Umm...hi
« Reply #1 on: Dec 3rd, 2006, 2:49pm » |
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on Dec 3rd, 2006, 10:59am, _Broken_ wrote:New here. Been watching for a while. Good thing going here. Glad to be a part of it. Yeah. Guess that's all. Bye!
Broken |
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Needin jest a wee bit more information here.
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Kill em all let God sort em out
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Jonny
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Re: Umm...hi
« Reply #2 on: Dec 3rd, 2006, 2:55pm » |
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Hi Kid!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Broken
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Re: Umm...hi
« Reply #3 on: Dec 3rd, 2006, 3:13pm » |
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vietvet2tours, what kind of information would you like?
Jonny, just so you know, I'm 20. Not really a kid.
Broken
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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CynthiaB
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Re: Umm...hi
« Reply #4 on: Dec 3rd, 2006, 3:29pm » |
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It was a long time ago, but I was still a kid when I was 20.
Oh, I forgot. We're interrogating the new kid
man.
When were you diagnosed?
Do you have a good neuro?
Have you tried oxygen?
What meds are you on?
Are you episodic/chronic?
Are you in cycle now?
What's your favorite tv show?
Welcome to the party. We're sorry you had to come looking for us, but glad you found us.
cynthia
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Broken
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Re: Umm...hi
« Reply #5 on: Dec 3rd, 2006, 3:47pm » |
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Wow. Let's see if I can get that all in order. First of all I gave you the wrong idea. I'm a supporter, not a sufferer. He's got a good nero and he uses O2 when its bad enough. As for meds, there's to many to count. He's been chronic for 3 or 4 years now I think. Not in cycle, that I know of. He doesn't like to talk about it. I love the Dark Angel shows but I'd rather snuggel up with a good book. How's that for now?
Broken
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| « Last Edit: Dec 3rd, 2006, 4:00pm by Broken » |
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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Yorky
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Re: Umm...hi
« Reply #6 on: Dec 3rd, 2006, 4:23pm » |
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He's been chronic for 3 or 4 years now I think. Not in cycle, that I know of. He doesn't like to talk about it
if he is chronic.....but not in cycle ?
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today is a gift.....thats why it is called the
present.
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CynthiaB
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Re: Umm...hi
« Reply #7 on: Dec 3rd, 2006, 6:55pm » |
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Everything, from your screen name to your little sayings, presents you as a sufferer. Not that being a supporter is anything to sneeze at. It's a tough job. They have a board a couple of clicks below...but you'll have to explain yourself all over again. They're going to be just as confused as we are.
I'm not going to even say a word about the chronic/cycle/don't ask/don't talk whatever that means.
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Broken
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Re: Umm...hi
« Reply #8 on: Dec 3rd, 2006, 9:38pm » |
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Like I said Yorky, I'm not sure. He doesn't like to talk about it. He's a quite person and hides it very well. You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore.
CynthiaB, thanks for the suggestion. I was going to start there but this seemed to be a better place. Like I said, I've watched for a while and have gotten pretty good at navigating my way around. I haven't really looked there much but I'll be sure to check it out.
Broken
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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AussieBrian
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Re: Umm...hi
« Reply #9 on: Dec 3rd, 2006, 11:05pm » |
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on Dec 3rd, 2006, 9:38pm, _Broken_ wrote:| You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore. |
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Suggest he hits the O2 at the immediate onset, far more effective that way.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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BB
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Re: Umm...hi
« Reply #10 on: Dec 4th, 2006, 1:26am » |
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Hi Broken,
I like the poem your friend wrote for you 
Can you get some more for us please? Thanks heaps. 
Painfree wishes to all.
Annette
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Barry_T_Coles
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Re: Umm...hi
« Reply #11 on: Dec 4th, 2006, 2:35am » |
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What Brian said.
Barry
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
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Broken
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Re: Umm...hi
« Reply #12 on: Dec 4th, 2006, 6:38am » |
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on Dec 3rd, 2006, 11:05pm, AussieBrian wrote:
Suggest he hits the O2 at the immediate onset, far more effective that way. |
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He tried that for a while but it didn't do anything. And then when it was at that point the O2 was useless.
Annette, I'll see what I can do. She writes a lot but live pretty far away. I write a little myself but don't have much time to with school. I want to write books for a living but school come first.
Broken
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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chopmyheadoff
New Board Old Timer
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Re: Umm...hi
« Reply #13 on: Dec 5th, 2006, 8:10am » |
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on Dec 3rd, 2006, 9:38pm, _Broken_ wrote: You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore.
Broken |
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 bloody hell - he's brave 
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Jonny
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Re: Umm...hi
« Reply #14 on: Dec 5th, 2006, 4:56pm » |
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on Dec 5th, 2006, 8:10am, chopmyheadoff wrote:
bloody hell - he's brave |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: Umm...hi
« Reply #15 on: Dec 5th, 2006, 9:16pm » |
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Broken,
Are you a guy or a gal?
Is your sufferer your girlfriend, boyfriend, Mom, Dad?
Its hard to tell you much when you tell us less.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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tanner
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Re: Umm...hi
« Reply #16 on: Dec 5th, 2006, 10:57pm » |
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Broken, please don't go away! We are not nearly as mean and cynical as we first come across (ok maybe some of us are), but really the more info you give, the more help we can offer. I am a chronic so I am not worth a crap at supporting but that's just me. Some here can do both. Some here are worth their weight in gold. stick around long enough to see.
...please....Tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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Broken
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Re: Umm...hi
« Reply #17 on: Dec 6th, 2006, 6:59am » |
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on Dec 5th, 2006, 10:57pm, tanner wrote:
Broken, please don't go away! We are not nearly as mean and cynical as we first come across (ok maybe some of us are), but really the more info you give, the more help we can offer. I am a chronic so I am not worth a crap at supporting but that's just me. Some here can do both. Some here are worth their weight in gold. stick around long enough to see.
...please....Tim |
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Tim, you're so sweet. I'm not going anywhere. I know what its like here. I've watched for a few years before I finally joined. At time some of you can be jerks but there's to much good for me to leave. Don't worry. You're stuck with me now.
on Dec 5th, 2006, 9:16pm, Jonny wrote:Broken,
Are you a guy or a gal?
Is your sufferer your girlfriend, boyfriend, Mom, Dad?
Its hard to tell you much when you tell us less. |
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I'm a girl and my sufferer is a very close friend. What more info would you like? I don't know what you need so you'll have to tell me.
Broken
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
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Re: Umm...hi
« Reply #18 on: Dec 6th, 2006, 7:48pm » |
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on Dec 6th, 2006, 6:59am, _Broken_ wrote:
What more info would you like? I don't know what you need so you'll have to tell me.
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Well, you say many things that dont seem typical.....like
on Dec 3rd, 2006, 3:47pm, _Broken_ wrote:| He's got a good nero and he uses O2 when its bad enough. |
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Anyone that has chronic CH knows to get on 02 at the first sign of it and not when its bad enough!
on Dec 3rd, 2006, 3:47pm, _Broken_ wrote:| He's been chronic for 3 or 4 years now I think. Not in cycle, that I know of. |
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Which is it?......it cant be both.
on Dec 3rd, 2006, 9:38pm, _Broken_ wrote:| You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore. |
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Again, anyone with CH would be on that 02 as soon as they felt it coming!
Then Brian trys to help.
on Dec 3rd, 2006, 11:05pm, AussieBrian wrote:
Suggest he hits the O2 at the immediate onset, far more effective that way. |
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and you say......................
on Dec 4th, 2006, 6:38am, _Broken_ wrote:
He tried that for a while but it didn't do anything. And then when it was at that point the O2 was useless. |
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Im sure you would love to explain all this mess, I call it a mess because I cant make heads or tails of it to tell you the truth!
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| « Last Edit: Dec 6th, 2006, 7:53pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Broken
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Re: Umm...hi
« Reply #19 on: Dec 6th, 2006, 8:16pm » |
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Jonny and CynthiaB, let me try and clear some of this up. I'm not sure of if he's chronic or not because he doesn't like to talk about it, as I said before. He's been going through a rough patch lately but it's usually not this bad. You can never tell when he's hit or not because he hides it. As for the O2 thing, you should know that for many of you, its different of each person. If he uses it before its absolutely nessacry, its useless. And lastly I wasn't sure what you needed for info because I'm not very good at explaining myself. Is that better? I hope so.
Broken
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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Jonny
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Re: Umm...hi
« Reply #20 on: Dec 6th, 2006, 8:26pm » |
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on Dec 6th, 2006, 8:16pm, _Broken_ wrote:| As for the O2 thing, you should know that for many of you, its different of each person. If he uses it before its absolutely nessacry, its useless. |
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Thats the biggest crock of shit that I ever heard!
Are you really 20 years old?
FYI, 02 dont work for ANYONE unless they hit it early! (at least not that ive read in seven years here)
"He dont like to talk about it, he dont like to talk about it, he dont like to talk about it"
WTF is that?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Linda_Howell
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Re: Umm...hi
« Reply #21 on: Dec 6th, 2006, 8:38pm » |
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O.K. Broken....you say you are a supporter and that is great. We LOVE our supporters here and hold them in the highest esteem, but you casn't tell us wehter or not he/she is chronic or episodic and you don't know a lot of what he/she goes through but you are here to...what? Ask questions? Find out how you can help him/her?
We can help you but you really DO have to give us more to go on....REALLY.
Being quiet and not wanting to talk about it gives us no clue and therefore you may be better off leaving him/her alone to work it our for themselves. Tell him or her to come here and "present" and we will help him or her out with possible meds to talk to the Dr. about Preventatives as well as abortives...ways to cope etc.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: Umm...hi
« Reply #22 on: Dec 6th, 2006, 9:08pm » |
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on Dec 6th, 2006, 6:59am, _Broken_ wrote:
I'm not going anywhere. I know what its like here.Ive watched for a few years before I finally joined. |
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Then I guess your lack of knowledge of 02 is your own fault for not paying attention?
No matter how we cut this you should never again speak on the subject of CH, Felicia......YOU could get someone killed!
Now go play with your friends, where you belong!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Broken
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Re: Umm...hi
« Reply #23 on: Dec 6th, 2006, 9:21pm » |
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Yeah Jonny. It is me. I wanted to come back because I wanted to help and to undestand this a little better. My sufferer is my father and he doesn't like it that I'm here any more than you do but I'm not leaving this time. So I lied. I'm not 20 and don't live in NYC. I thought you would treat me different if you didn't think it was me. And guess what. I was right! You didn't talk down to me like I was some little kid. I can understand this thing. If you help me. Sorry for bothering by coming back.
Broken(Felicia)
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| « Last Edit: Dec 6th, 2006, 9:28pm by Broken » |
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Holding on his hand, when every second of everyday I feel like letting go.
You hurt me before.Never again.I won't give up and I sure as h*ll won't let you win!
My Poems and Stories at:http://www.quizilla.com/users/hiddeninsight/stuff/
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CynthiaB
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Re: Umm...hi
« Reply #24 on: Dec 6th, 2006, 9:23pm » |
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I am new to this group, so I am speaking only for myself and not for this group.
While I am frequently playful, as are others...I am not playing. This is serious for me, and for my supporters.
We are struggling to survive emotionally. It isn't a game for us and I, for one, don't have the time or energy to play with you.
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