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Topic: the doctor that refused to help!! (Read 345 times) |
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calisto
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the doctor that refused to help!!
« on: Sep 18th, 2006, 7:52am » |
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Ive just got back from the doctors and what a waste of time!!!!I had an attack right there in the reception and had to ask the receptionist if there was any where quiet that i could go to deal with it.She kindly took me into a room at the back until the doctor was ready for me.In the doctors room i was in so much pain that i could barely speak i was sweating,shaking,tears were streaming from my eye.I asked him if he had any imigran to relieve the pain to which he just replied "No!"
I did my best to explain the constant pain i was experiencing daily but it was right before his eyes.I explained that the meds i was on (pizotifen) werent doing anything and that i was getting between 5 and 8 hits a day most of them at night.I'd taken along a few print outs from this site documenting the best treatments.I asked him for some ergotomine as this seemed like best thing for me ( i cant take verapamil as i take a propranolol beta blocker for something else).He refused to read the print outs, and then said he couldnt give me anything until id seen a neuro.I explained to him that id already seen a neuro and that by the time he sent me to see another one this bought would have ended.All this time im going through an attack.I said that the last time id seen one it had taken 3 months for the appointment to come through and i needed pain relief now. Then he said "well the waiting lists 6 months now. Youve lived with it for this long a bit longer wont hurt you!!" I honestly couldve punched him in the mush!!This quack i might add is not the usual dr i see but ive been in so much pain the weekend that i took the first appointment i could get.
Is anyone else shocked at how uncompationate this man was?
Im going to see my usual dr tonight but other than that i dont know what else i can do.Im taking imigran injections which are fantastic at killing the pain but they'll only give me 4 at a time so even with halving them thats only 8.Ive got some O2 being delivered on wednesday..I need a decent preventative to reduce the amount of hits im getting.I just hope that he doesnt speak to my own dr tonight (He's my usual dr's boss) and stop him from giving me anything.I feel so fed up and depressed!!
Simon. 
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| « Last Edit: Sep 18th, 2006, 7:59am by calisto » |
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hell hath no fury like a cluster headache ignored!!
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seasonalboomer
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Re: the doctor that refused to help!!
« Reply #1 on: Sep 18th, 2006, 8:49am » |
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Simon,
The bright side is that O2 is on the way. I hope you are among those of us that it is effective for. It will change your life if you are. Got your non-rebreather? Are they bringing a reg that delivers 10-15 lpm?
No, not surprised. Some docs suck. Some are great. Same thing can be said for everyone from waiters to garbagemen though however. It would be nice if the medical environment would allow you to start phrases like, "Now look here bub! You're gonna listen and then you're going to pick up your little pad and your gonna start writing. Repeat after me......."
Here's looking to Wednesday night!
Scott
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Callico
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Re: the doctor that refused to help!!
« Reply #2 on: Sep 18th, 2006, 3:48pm » |
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Gee, only six month waiting list for service like this? Sure wish we had socialized medicine over here! 
That kind of non compassion should be criminal.
Hang in there. You might want to try Red Bull until you get the O2. It helps me.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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calisto
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Re: the doctor that refused to help!!
« Reply #3 on: Sep 18th, 2006, 7:08pm » |
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Ok so ive been back to the docs!!!
i got to see my usual doctor this time thank goodness.Hes given me some more imigran an put me on prednisolone 30 mg.
God i hope this works,it even hurts to blink!!Ive ordered some melatonin from vitacost.com and the O2's coming soon.8 attacks today...I think i might go sit in the corner and go "burble"!!!!
Simon.....i think?!!
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hell hath no fury like a cluster headache ignored!!
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BigCoffinHunter
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Re: the doctor that refused to help!!
« Reply #4 on: Sep 18th, 2006, 8:56pm » |
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I think the prednisone should give you a break of at least a week or so. It's not going to stop the cycle however. I'm not sure what meds you can take, but now is the time to start on another preventative. The steroids should give you time to let the preventative build up in your system. Sorry to hear about your doc, some are good, some are unbelievably awful.
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chopmyheadoff
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Its only a headache, deal with it - SMACK
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Re: the doctor that refused to help!!
« Reply #5 on: Sep 19th, 2006, 4:16am » |
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dood - who has told you that you cant take verapamil while your on propanalol ??
even if this were the case (which it isnt) i would drop the propanalol and take the verapamil in a heart beat.
im sure there is an alternative to propanalol, but nothing has given me relief like verapamil for the CH.
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chopmyheadoff
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Its only a headache, deal with it - SMACK
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Re: the doctor that refused to help!!
« Reply #6 on: Sep 19th, 2006, 4:20am » |
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oh, and if your doctor is putting "suspected cluster headache" on the referral to the neurologist then this should be treated as an emergency and you should be seen within the week.
hope this helps
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calisto
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Re: the doctor that refused to help!!
« Reply #7 on: Sep 19th, 2006, 5:25am » |
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Thanks for the advise but it would be dangerous to take proranolol and verapamil together! propranolol is a beta blocker (which i take to stop my hands trembling - i need it for work) and verapamil is a calcium channel blocker both of them lower your heart rate.To take them both together would be dangerous.My last doctor referred me because of cluster headache and the appointment took 3 months that was about 3 or 4 years ago.I suppose different regions have different rules.
Basically he's a shit doctor which is why i never usually see him,he's seen other members of my family and he's always making up excuses as to why he cant do anything.I was so desperate i took the first app i could.I saw my own dr last night and he gave me the prednisolone (although the dosage seems a little low)
Any idea how long it should take the prednisolone to kick in?Ive read on here that a course of prednisolone can bring a bout to a halt anyone got any experience with this?
a note to everyone DO NOT take propranolol and verapamil together, i have been told this by 2 doctors and 3 pharmacists!!We dont want any heart attacks,cluster headaches are quite enough!!! 
Simon
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hell hath no fury like a cluster headache ignored!!
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calisto
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Re: the doctor that refused to help!!
« Reply #9 on: Sep 19th, 2006, 6:29am » |
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Sorry chop but the figures youve given me the only patient that took them both together deteriorated,which isnt encouraging.Every time i go to get my propranolol prescription i ALWAYS get warned NEVER to take the 2 together as it would lower my heart rate too much but i suppose it depends on what your taking them for.I havent got heart trouble at all (i hope!)
Trust me bud i wish i could take the 2 together it would solve all my woes but my doc refuses,and i only take 40mg propranolol!
But thanks heaps for bringing this to my attention,Ill definately ask my doc next time i go.
By the way chop i bought my car from a garage in warrington called car planet - a jap sports car imports specialists - they had some amazing nissan skylines there (£50,000 upward!!!! i wish!!).Is that anywhere near you?
Simon.
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chopmyheadoff
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Re: the doctor that refused to help!!
« Reply #10 on: Sep 19th, 2006, 6:31am » |
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ok fair enough. i spose im lucky im still ok then 
yep car planet is just round the corner from me . .
what car u get ??
i got a sunny pulsar 
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calisto
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Re: the doctor that refused to help!!
« Reply #11 on: Sep 19th, 2006, 6:43am » |
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No way,Thats a coincidence. I got a black mazda roadster (mx-5 over here) which ive chromed up to the max...My baby!! Dont let my fiancee see this lol 
did you get your car from there? good cars,crap service i thought!! Those skyline were beeeyowtiful!!
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hell hath no fury like a cluster headache ignored!!
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chopmyheadoff
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Re: the doctor that refused to help!!
« Reply #12 on: Sep 19th, 2006, 6:44am » |
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no mate , got it from autotrader, yeah iv been in for a browse at their skylines. they have a 1000bhp one in at the moment.
its fat
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calisto
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Re: the doctor that refused to help!!
« Reply #13 on: Sep 19th, 2006, 6:57am » |
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lol @ fat! .
1000 bhp! imagine that!! stick a dump valve on the turbo and wooooohooooooo!!!
Imagine the insurance,jeeeez.Its bad enough for mine and thats only 165bhp.
They dont like jap imports they dont,not my insurance anyway!! But i love em!!
Im fast and mildly furious.......More annoyed really!!
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LeLimey
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Re: the doctor that refused to help!!
« Reply #14 on: Sep 19th, 2006, 9:28am » |
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Sye if you need any help give me a ring okay? We'll get you sorted and you won't be waiting six months if I can help it
Helen
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Richr8
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Re: the doctor that refused to help!!
« Reply #15 on: Sep 19th, 2006, 3:46pm » |
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on Sep 19th, 2006, 5:25am, calisto wrote:| prednisolone can bring a bout to a halt anyone got any experience with this? |
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I have used Prednisone to halt my last three cycles. I typically takes about four days once I get to the right level. 60mg seems to be the magic number. On the down side, it makes me a crippled babbling idiot due to extreme anxiety, sleeplessness, and whatever the heck it does to my hips/joints. It takes a couple of months for me to be able to walk normally after a cycle. This year , once again, I am committing to toughing it out without the pred, but typically two weeks in I can't take the pain anymore and give in. As I get older, it seems to take more of a toll on me each time. I'll be looking hard at an alternative treatment this year.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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calisto
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I get knocked down,but i get up again!
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Re: the doctor that refused to help!!
« Reply #16 on: Sep 19th, 2006, 6:30pm » |
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Hellfire rich ,i dont fancy being a crippled babbling idiot!
I gotta say im only on 30mg and its making me feel really rough,but then ive only had about 3 hrs sleep in the past 2 days so i guess thats not helping!!
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hell hath no fury like a cluster headache ignored!!
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