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Topic: Longest Cycle I can remember! (Read 204 times) |
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MUFlyer
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I love YaBB 1G - SP1!
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Longest Cycle I can remember!
« on: Sep 15th, 2006, 7:45pm » |
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Wow, this board is a great find... I can finally find a group of people who know what I am going through... at any rate on to my post!
I am currently going through my longest cycle I can remember... It all started on July 23rd... I usually get these and they hit me for 3-29 days. And I officially hit my breaking point this week as the clusters are hitting a couple of times a night. MY body and my mind are wasted... I can't think, move (unless I am in the middle of a cluster!), and I am getting very depressed. I fear going to bed, although the clusters nab me anyway. I just think my cycle should be done with by now... but it is getting more intense. MY night usually starts around 2 am... (this week the first hits at 11 pm) and all hell break loose... I am the weird niehbor that paces the street in the middle of the night clenching his head and mumbling words that most children shouldn't hear. However, the lights on people's houses have been pushing me inside because they unbarable. I spend the last part of each headache locking myself in the walk-in closet because it is cool and there is no light. My wife complains that she hears me in their pacing, cusing, and hitting the wall-floor-dresser or anything I can reach. She has no clue, nor care about what I am going through at that moment... she is more caring in the morning as I can barely get myself ready for work. Does anyone have any suggestions on spousal support?
Another problem I am having is, of course, the doctor! Everytime I go they suggest a scan... prescibe another shit medication... and my pain goes on. I know there is no cure... but something, anything for relief would be great. I have suffered for thirteen plus years... I can't take much more... I suffer from 2-3 cycles per year... and the toll goes beyond the p[hysical pain... my job, and my family suffer... I just need some help... or support.
I'm sorry for rambling... my first post, and I am happy to find people who also suffer (I know it sounds bad... but you'all know what I mean!). Well, just tell me what you do for relief... or even just to cope... I am so tired of feeling wasted all of the time.... did I just join AA?!?!
Thanks!!
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"The greatest trick the devil ever pulled was convincing everyone that he doesn't exsist." -
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Jonny
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New Board Hall of Famer
Give me a shovel Ill dig my own grave!
 
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Re: Longest Cycle I can remember!
« Reply #1 on: Sep 15th, 2006, 9:09pm » |
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Hey Flyer dude,
Your home now, tons of info on this site.....you just need to read and read some more.
It was an amazing feeling when I found this place seven years ago after 25 years being chronic.
Count your blessings your not chronic 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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George_J
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White-Breasted Nuthatch
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Re: Longest Cycle I can remember!
« Reply #2 on: Sep 15th, 2006, 11:41pm » |
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Check out all the links on the left side of your screen, and pay particular attention to the "oxygen info" link. This is a powerful abortive that works wonders for many of us. Cheap, safe, and effective.
Welcome to clusterville.
I don't medicate, so I'll leave the specific information about other choices to those more knowledgeable than I.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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