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Nick8977
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Hey Y'all Clusterhead from Texas just diagnosed
« on: Aug 29th, 2006, 12:15am »
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Hey everyone,
Im Nick from Dallas. I am 27 single and just having fun....or trying.   Well, I guess I have some learning to do on this cluster headache thing.  It all started 3 weeks ago.  I was over at my mother's house doing what a good son does....chores lol.  On my short 15 minute drive back to my place a pounding headache started....My LORD it hurt.   I kept thinking it'll pass no sweat.  A few hours later it finally did.  I thought well hope that never happens again felt like Satan was in my head!  But it did and it has everyday for the last 3 weeks at the same approximate time of day (with exception to today).  I swore it was just a bad migrane.  I was taking Excedrin Migrane, BC powder, Advil, Alleve and anything else they sell at Wallgreens. Yesterday I went to the cemetery where my Grandfather (who was my best buddy) is buried and sat there with my head between my legs rocking back and forth until it passed.   Long story short the doctor gave me a thorough check out and came to the "cluster conclusion".   He started me on Predinisone and Imitrex.  I have been fighting and winning my whole life so there is no way I am gonna let this kick my behind.  Just gotta get in the groove!  
About me:  I like cars (ferraris), airplanes, World War Two history, animals (dogs), the lake, the DALLAS COWBOYS and too much other stuff to list.  
Well drop me a line if you got any tips on living with the pain when it comes.  Cause I sure could use some help.  Look forward to talking to some of you folks.
Take Care-------------_____NICK_______-----------------
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #1 on: Aug 29th, 2006, 12:39am »
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Hi Nick,
 
Welcome  Smiley You will find everything you need to know on this site. This is the only site that makes me happy. This IS your second family. Take time to read, read, read. Sounds like you are on the right track. Have you tried Oxygen? Red Bull? These are just a couple.
 
I have been on Prednisone and Verapamil for over 2 weeks and nothing yet. My neuro put me on Lithium and Verapamil today so we wil see. The oxygen used to help me but now it's hit and miss. I tried Red Bull today and it didn't seem to work but I'm not giving up I will try it a few more times.The Imitrex shot is a BEAUTIFUL thing but it can get pricey! Remember everybody is different so different things work on different people.
 
Hang in there you will get all your answers Cheesy
Best of luck to you,
Sylvia
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #2 on: Aug 29th, 2006, 1:30am »
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Welcome, Nick.  Sorry you have to be here.  
 
There are lots of other TX people here.  I'll defer to them.  Meantime,  welcome home.
 
Sounds like you're on the right track.  Others with more knowledge than I have will likely be posting in response to you soon.
 
Best wishes,
 
George
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Debonair.
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #3 on: Aug 29th, 2006, 6:38am »
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Hey Nick, welcome!  
 
I have started on the natural pathic way to PF days.   I am in the 8th week of a nasty cluster and have been suffering for 15 years.  You have my sympathy.  If you have any question, please let me know.  Harsh narcotics do a number on my system so I have taken to hot showers, coffee (double brewed for some odd reason) and sea salt.  
 
Cheers,
Heather
 
PS  WWII history eh?  a man after my own heart.  I love WWII history, especially avaition and battle history
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Nick8977
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #4 on: Aug 29th, 2006, 9:48am »
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Thats cool I allready found one cool person (I expect Ill find many more) who shares the same interest.  Im not gonna fill up this space with World War 2 Aircraft info.  But if you wanna talk more about it email me.   Grin
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #5 on: Aug 29th, 2006, 2:46pm »
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Nick--
 
Definitely hook up with an O2 tank--check out the oxygen info button on the left.
Also, try chugging some strong black coffee at the first onset of a headache.  Hope you get 'em under control.  Starlight
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Nick8977
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #6 on: Aug 29th, 2006, 3:20pm »
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Hey Starlight,
Thanks for the tips.  Tried a redbull today and I think it did something but kinda hard to tell Im still a nOOb.  Next time Ill try coffee and look into O2.  
THX Nick
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #7 on: Aug 30th, 2006, 3:35am »
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Hi Nick,
 
warm welcome! Smiley
I'm so sorry that you have ch, but I am glad that you found your way here.
 
Here's lots of supporters and information about ch. I do hope that you'll find what kind of treatments helps you with your ch. We're all bit different in that sense (Ice cold red bull helps me).  
 
You mentioned that you're going to try coffee. Some of us have found relief with also caffeine tablets. Let us know what helps you. Smiley
 
Best wishes & PF time,
Sanna
« Last Edit: Aug 30th, 2006, 3:40am by sandie99 » IP Logged

CH happends, Live anyway! PF days to us all!

"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)

"No matter how far out your dreams are, it's possible" (Marketa Irglova)


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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #8 on: Aug 30th, 2006, 8:20am »
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Hello Nick, sorry you have cause to be here but glad you found us. There are quite a few Texan here. Some of us get together every few months or so, if you get a chance you should attend sometime. Nothing compares to meeting another clusterhead or three.
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #9 on: Aug 30th, 2006, 1:47pm »
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Nick-
What Matt said...if you've never met another clusterhead you are going to freak out.  We can finish each others sentences, we know a level of pain that NO ONE ELSE can comprehend, and we're generally very funny, smart, attractive, witty, and talented. Grin
Or not.
Welcome home, pull up a chair and a clustermasx and make yo self at home...coffee's in the pot, ice in the freezer and O2 right next the burning ciragrette (just kidding)
kathy
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Nick8977
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #10 on: Aug 30th, 2006, 4:15pm »
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HAHA thanks for making me feel at home.  Actually when I was in the doc.s office after being diagnosed I text messaged a close friend from childhood "ever hear of cluster headaches?".  Immediately the phone rang.  My friend said he gets them as well.  Small world out of the 2% of the population him and I both get them.  He actually refered me to this site (but he is not a member).  I really feel lucky because he kept getting diagnosed with PINKEYE instead of CH.  Has that happened to anyone else?  
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #11 on: Aug 30th, 2006, 4:39pm »
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on Aug 30th, 2006, 4:15pm, Nick8977 wrote:
HAHA thanks for making me feel at home.  Actually when I was in the doc.s office after being diagnosed I text messaged a close friend from childhood "ever hear of cluster headaches?".  Immediately the phone rang.  My friend said he gets them as well.  Small world out of the 2% of the population him and I both get them.  He actually refered me to this site (but he is not a member).  I really feel lucky because he kept getting diagnosed with PINKEYE instead of CH.  Has that happened to anyone else?  

 
 
Pinkeye?!? I'm trying to picture that doctor..... "That thar looks like a case a'pinkeye ta' me! Yep, be careful you don't go scratchin that eye and puttin yer fingers in that thar other one, or you'll have yerself two pinkeyes."
 
Scott
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Nick8977
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #12 on: Aug 30th, 2006, 5:59pm »
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HaHa!  Yeah I think he went to a CARE NOW facility intstead of a Neuro  I gare-on-t it. laugh
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #13 on: Aug 31st, 2006, 4:35am »
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Welcome Nick,
 
I am a supporter for my DH Daniel who has CH, newly diagnosed after being wrongly diagnosed with just about everything else under the sun including Chronic Fatigue Syndrome  Roll Eyes
 
He loves WWWII history also. He has not given up on trying to teach me about it yet ! LOL ! He currently has blurry vision as side effects from Lyrica ( a nerve pain med ) so he is not posting on the Board but when he can I am sure he would like to chat to you to the wee hours about WWII  Smiley , with 10 cups of strong coffee and the 02 nearby  Wink
 
We both are also dogs lover, DH used to have 4!  Smiley
 
Read read read and read some more. Soon you will probably know more than some neurologist about CH.
 
Painfree wishes to you.
 
Annette
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Nick8977
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Re: Hey Y'all Clusterhead from Texas just diagnose
« Reply #14 on: Aug 31st, 2006, 11:14am »
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Thanks!  Thats funny I always try and teach my friends about history as well.
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