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SchwarzenSchafe
New Board Junior
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Introduction
« on: Aug 20th, 2006, 5:33am » |
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Just finished a marathon reading session on CH, never knew what my "migraines" actually were for the last 12 years until this evening. Actually cried when I read the home page for this site, out of relief I think.
I've seen a lot of doctors, EEG, cat scans, etc... somehow they missed it. I'll make an appointment tomorrow to be diagnosed properly, but it's a foregone conclusion as far as I'm concerned, every little symptoms fits me exactly. I can't believe I never knew about this... can't believe all the damn doctors never knew. Had one that wanted to lance the boil in my nasal passage to stop the pain when I was a teenager!
Anyway, I have a million questions I won't ask till I've done more reading, so I'll just introduce myself.
27yo male artist in Saskatoon, Saskatchewan, Canada. Suffered since age 15, episodic, about 2-3 cycles per year lasting about a month each. I've only seen #10 on the kip scale a few times, but I've always wondered how all these fellow "migraine sufferers" can lie still in bed when a bad one hits while I stumble around like a nut, hit things, groan and scream. Biggest triggers during a cycle are overheating and heavy excercise, also long periods of inactivity (especially when it's spent staring at a monitor). Never could discern a pattern of what causes a cycle. They usually hit an hour after waking, always have a bloodshot droopy eye, during bad ones I'll pace the house stopping to blow my nose every minute or two. Ice helps a little. Seems linked to diet in that not eating in the morning, or eating only fruit, will increase the likelyhood of an attack.
Looking forward to trying oxygen, nothing has ever helped. Anyway, this turned out a bit longer than I thought it would, I'm sure I'll post here for a while, I still have a lot to learn. Damn, I still can't believe other people go through this. The migraine theory never did quite fit.
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big guy
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Re: Introduction
« Reply #1 on: Aug 20th, 2006, 7:12am » |
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Welcome SchwarzenSchafe
Sorry you need to find this site but glad you did. I'm also new here but not new to Clusters. I also cried the first time I found this site. Read everything you can here. Knowledge will allow you to be in control. Print the information available here and take it with you to the Dr. If he is not intersested find a Dr that is.
Help is out there
Big Guy
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marlinsfan
New Board Hall of Famer
I love this place!
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Re: Introduction
« Reply #2 on: Aug 20th, 2006, 8:56am » |
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Welcome to our nuthouse! You'll be reading a ton during the next few days. In case you haven't seen this, it's got a lot of good info on meds/treatments.
I use O2, melatonin, and caffeine.
PF wishes.
jose
http://www.brightok.net/~mnjday/chtherapy.pdf
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pattik
CH.com Alumnus
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Re: Introduction
« Reply #3 on: Aug 20th, 2006, 9:13am » |
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Welcome to the site. Like you, I was misdiagnosed for years until I found this site and took the information to my doctor. I would just like to reiterate what jose said about oxygen. Many of us here have very good results using it as an abortive. Read the O2 link on the left, and if you should decide to try it, be sure to get a prescription for a high enough LPM, and a non-rebreather style mask is a must.
Happy reading here, and ask all the questions you need to.
Pat
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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PL259
CH.com Alumnus
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Re: Introduction
« Reply #4 on: Aug 20th, 2006, 5:52pm » |
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Don't just read, print it out and take it to the doctor! I got lucky back in 1982 and an old ENT diagnosed it correctly right off the bat, but there was nothing good to use. Late 90's 02 and verapamil basically saved me. Different things work for different people. So don't give up. Sounds like you have a good start. Best wishes.
JImbo
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I don't really exist.
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thebbz
CH.com Alumnus
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Ow,Ow,Ow
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Re: Introduction
« Reply #5 on: Aug 20th, 2006, 10:49pm » |
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Welcome and good reading. The more you know...
all the best
jb
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It wasn't me I didn't do it
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SchwarzenSchafe
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Re: Introduction
« Reply #6 on: Aug 21st, 2006, 12:52am » |
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Thanks all! Just sitting down to read about oxygen.
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The mad viking
CH.com Alumnus
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Always Look on The Bright Side of Life
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Re: Introduction
« Reply #7 on: Aug 21st, 2006, 1:04am » |
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Hey there
will ask you to take contact with wildhaus"Michael"
He is a good guy from Switzerland.
Beside that just read,read, and read
Svenn
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Always Look on The Bright Side of Life
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chopmyheadoff
New Board Old Timer
Its only a headache, deal with it - SMACK
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Re: Introduction
« Reply #8 on: Aug 21st, 2006, 4:38am » |
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get yourself to a neurologist mate - doctors dont know squat about ch.
your case is the classic example and many here started off in your shoes.
i too cried when i read the opening of this site for the first time
good luck bro
chop
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Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
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Re: Introduction
« Reply #9 on: Aug 21st, 2006, 9:58am » |
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Hello, Toon Towner! 
Glad to see you've found probably the best reference tool you'll ever find for your pain. This website is the gold standard in cluster support and you WILL find relief here, the least of which being able to talk to others who feel your pain.
Don't forget, also, to check out our Canadian site at http://www.clusterheadaches.ca. We have a message board just like this one (although at the moment, we're currently upgrading and offline but will be back soon). We have a fellow in your area ("F1World", Jeff) and my hubby and I are in Calgary. Lotsa folks from BC, and Ontario as well.
Your best bet IS to get some oxygen and we can help you with local suppliers. Are you on any meds at all yet?
Hang in there,
Margi
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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SchwarzenSchafe
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Re: Introduction
« Reply #10 on: Aug 22nd, 2006, 1:53am » |
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Thanks chop, I have an apointment tomorrow with my GP and I'm asking to see a neurologist.
I checked out the CDN OUCH site, I'll probably post there when it's up. I recently lived in Calgary, not a bad town but moving too quickly towards another polluted metropolitan mess for my taste. I've never taken any meds on a regular basis because I've never found anything that helped. Imitrex helped a little but the side effects and cost put me off. I'm very much against taking prescription drugs (for several reasons) unless theres no alternative. I'm going to use kudzu, o2, psilocybin, and LSA... I'm very optimistic.
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Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
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Re: Introduction
« Reply #11 on: Aug 22nd, 2006, 9:50am » |
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on Aug 22nd, 2006, 1:53am, SchwarzenSchafe wrote:| I'm going to use kudzu, o2, psilocybin, and LSA... I'm very optimistic. |
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I think you should pick one of the alternatives....not all three, ok?
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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SchwarzenSchafe
New Board Junior
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Posts: 54
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Re: Introduction
« Reply #12 on: Aug 22nd, 2006, 11:50pm » |
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Hehe... well...
Is there any interaction between kudzu and hallucinagens? It's not a case of extra insurance? I had planned on either shrooms or LSA rather than both, I don't know so much yet. Still reading, but it looks like I want to trip about 3 times a year. All I know is I don't want any drugs from my pharmaceutical salesman (excuse me, my doctor), I'll be very happy to control this with 100% natural substances.
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nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
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Re: Introduction
« Reply #13 on: Aug 22nd, 2006, 11:53pm » |
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Kudzu will block the hallcinogens. You should pick one or the other for the best results.
pain free wishes, nani
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Others may come and go, but MY power is MINE.
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Sandy_C
CH.com Alumnus
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Burn that bra!
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Re: Introduction
« Reply #14 on: Aug 23rd, 2006, 12:56pm » |
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Hi SchwarzeSchafe ( can I call you Schwarz for short, please?)
Welcome to this crazy, dysfunctional, antagonistic (at times), and very loving family.
The people on this site probably, in my personal opinion, have more combined knowledge about CH and the treatments available for CH, than anywhere else. You've found your new home.
Now, as some of our members will say, pick up your oar and start rowing this boat, because it takes each and every one of us to keep the others afloat.
Sandy
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Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
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SchwarzenSchafe
New Board Junior
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Posts: 54
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Re: Introduction
« Reply #15 on: Aug 25th, 2006, 12:47am » |
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on Aug 23rd, 2006, 12:56pm, Sandy_C wrote:Hi SchwarzeSchafe ( can I call you Schwarz for short, please?)
Sandy |
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Sure, or my real name is Lee.
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