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Topic: The thing that scares me more than a ch..... (Read 311 times) |
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prcole18
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The thing that scares me more than a ch.....
« on: Aug 1st, 2006, 7:34pm » |
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....is one of my kids getting this hell.
Got a daughter of 18 & a son of 10, does anyone know what the chances are of one of them getting CH because I have it??
As you may know from my other threads ive been having a bad couple of weeks with Ch & just keep looking at my kids & thinking please god no, not them.
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| « Last Edit: Aug 1st, 2006, 7:34pm by prcole18 » |
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LeLimey
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Re: The thing that scares me more than a ch.....
« Reply #1 on: Aug 1st, 2006, 8:21pm » |
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Paul,
This is the sort of thread no one wants to answer.
Simply put we can't answer. There are genetic studies going on at Leicester University here in the UK.
If you are interested in taking part, and they always need more CH'ers then IM me and I'll send you the details of how to get involved. For obvious reasons I'm not posting email address'es where they can get spammed!
Its a simple blood test that can be done at your local doctors and sent to them - its no biggie but the results from it could be.
There isn't enough data to get a clear pic of whether it is potentially genetic or not. It could be, I certainly think there is some likelihood of it but if it's any comfort to you how many others in your family have severe headaches let alone CH?
Don't sweat it. If your kids are going to develop it they will. You worrying won't change that. All it will do is spoil your time with them now and that won't do!
There are alot of other things that are far more scary that can happen, you can't change that either. Just enjoy their childhood hon 
Helen
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andrewjb
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Re: The thing that scares me more than a ch.....
« Reply #2 on: Aug 1st, 2006, 10:34pm » |
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GREAT post,helen.i was diagnosed in november 2005.my first worry was as pauls.lucklly an aunt of mine is in to history and has studied the family tree,there are no stories of severe headaches.i hope this helps a little paul,and that your pf soon.andrew p/s.helen i would be intrested in the survey.will you please send details.
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| « Last Edit: Aug 1st, 2006, 10:43pm by andrewjb » |
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prcole18
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Re: The thing that scares me more than a ch.....
« Reply #3 on: Aug 2nd, 2006, 2:27am » |
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Cheers , if you would send me the details id be interested in taking part, i'll pm you my email address.
I understand its the sort of thread no one will want to answer.
There is certainly no histoty of CH in my family, my dad used to suffer from migraine as my brother does now.
Im sure ive read somewhere that it generally isn't hereditory (excuse spelling).
You are right, you can worry about them getting anything & i'm generally the sort of person that isn't like that at all, live for today as you never know what is round the corner etc . Its just that sometimes when you hit a kip 9 or 10 you look at them & pray... please not them.
Oh by the way andrewjb, now gone 24 hours exactly without a headache 
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| « Last Edit: Aug 2nd, 2006, 2:31am by prcole18 » |
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LeLimey
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Re: The thing that scares me more than a ch.....
« Reply #4 on: Aug 2nd, 2006, 7:41am » |
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Hi Paul and Andrew
Check your IM's boys!
Helen
oh and Paul? BLOODY BRILLIANT news about the PF time! 
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Bob_Johnson
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Re: The thing that scares me more than a ch.....
« Reply #5 on: Aug 2nd, 2006, 7:58am » |
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In other words: not much known and not likely a big risk.
-----
Lancet Neurol. 2004 May;3(5):279-83.
Epidemiology and genetics of cluster headache.
Russell MB.
Department of Neurology, Akershus University Hospital, Oslo, Norway. m.b.russell@klinmed.uio.no
Cluster headache, the most severe primary headache, is characterised by unilateral pain, ipsilateral autonomic features, and, in many cases, restlessness. Recent epidemiological studies indicate that the prevalence of cluster headache is about one person per 500. Genetic epidemiological surveys indicate that first-degree relatives are five to 18 times-and second-degree relatives, one to three times-more likely to have cluster headache than the general population. Inheritance is likely to be autosomal dominant with low penetrance in some families, although there may also be autosomal recessive or multifactorial inheritance in others. To date, no molecular genetic clues have been identified for cluster headache. Identification of genes for cluster headache is likely to be difficult because most families reported have few affected members and genetic heterogeneity is likely. Future focus should be on ion channel genes and clock genes. This review summarises the epidemiology and genetics of cluster headache.
Publication Types:
Review
PMID: 15099542 [PubMed]
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Bob Johnson
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Charlotte
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Re: The thing that scares me more than a ch.....
« Reply #6 on: Aug 2nd, 2006, 8:10am » |
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I'm from a large family, lots of headaches, but no one else w/ch. My great aunt may have had them but I wasn't aware of it during her life time.
When I was a teenager, I considered never having children, but I decided to take a chance. Two of my kids have headaches, but not ch.
Good luck with the genetic study, you guys. I wish we had something like that here in the states.
Charlotte
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Bob_Johnson
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Re: The thing that scares me more than a ch.....
« Reply #7 on: Aug 2nd, 2006, 8:26am » |
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Lancet Neurol. 2004 May;3(5):279-83.
Epidemiology and genetics of cluster headache.
Russell MB.
Department of Neurology, Akershus University Hospital, Oslo, Norway. m.b.russell@klinmed.uio.no
Cluster headache, the most severe primary headache, is characterised by unilateral pain, ipsilateral autonomic features, and, in many cases, restlessness. Recent epidemiological studies indicate that the prevalence of cluster headache is about one person per 500. Genetic epidemiological surveys indicate that first-degree relatives are five to 18 times-and second-degree relatives, one to three times-more likely to have cluster headache than the general population. Inheritance is likely to be autosomal dominant with low penetrance in some families, although there may also be autosomal recessive or multifactorial inheritance in others. To date, no molecular genetic clues have been identified for cluster headache. Identification of genes for cluster headache is likely to be difficult because most families reported have few affected members and genetic heterogeneity is likely. Future focus should be on ion channel genes and clock genes. This review summarises the epidemiology and genetics of cluster headache.
Publication Types:
Review
PMID: 15099542 [PubMed]
==================================
Neurology. 2001 May 8;56(9):1233-6.
Increased familial risk of cluster headache.
Leone M, Russell MB, Rigamonti A, Attanasio A, Grazzi L, D'Amico D, Usai S, Bussone G.
Carlo Besta National Neurological Institute, Milan, Italy.
The authors studied the occurrence of cluster headache in the families of 220 Italian patients with cluster headache. A positive family history was found in 20% (44/220) of the families. Compared with the general population, first-degree relatives had a 39-fold significantly increased risk of cluster headache. Second-degree relatives had an eightfold significantly increased risk. The increased familial risk strongly supports the hypothesis that cluster headache has a genetic component in some families.
PMID: 11342697 [PubMed]
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Bob Johnson
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starlight
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Re: The thing that scares me more than a ch.....
« Reply #8 on: Aug 2nd, 2006, 10:32am » |
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I have a huge extended family--no other cluster headaches.
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jenrob2006
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Re: The thing that scares me more than a ch.....
« Reply #9 on: Aug 2nd, 2006, 6:44pm » |
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I feel your pain (literally). When my husband and I started talking about having another child, I started questioning whether that was a good idea. I am scared that my nine year old may develop them even though she has never shown any signs and to take a chance on another one scared me. But I came to the realization after a comment by someone here, I think it was Helen, that if one of my children was to develop CH, they would have the best support system ever being that I know their pain. I still think about it, but I worry a little less.
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