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Topic: Pain Free night!..... (Read 223 times) |
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prcole18
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Thank god for Imigran Injections!
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Pain Free night!.....
« on: Aug 1st, 2006, 4:57am » |
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Well nearly, had to have a jab at 12:45am & then nothing till 7:30am this morning, which was a kip 5 & took a Sumatriprtan tablet which killed it in half hour,(trying to stay off the injections, been using up to 4 a day!)) best night ive had in a couple of weeks!
May have something to do with starting another Pred taper last night, which I didn't want to do but considering ive been more or less permanantly on them I gathered one more course (seeing the doctor later today) wont hurt.
Also thanks to this site & advice from people ive realised I haven't really been treated properly in the last couple of years.
My neuro put me on pred as a preventive, but now I realise from what people have said (thanks Helen) & what ive read this should only be used while the other preventive, ie Verapamil is kicking in etc.
Well I was never given any other preventive untill 5 day's ago, so ive been more or less permantly on pred, which I understand ain't a good thing.
Anyway, back to the doctors this afternoon, where I want him to up the Verap from 2X 120mg a day & hopefully by the time this Pred cousre has finished the Verap will have kicked in!
I'll keep you all updated & again Ive learnt more from this site & people on here than any doctor, A big Thankyou!!
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| « Last Edit: Aug 1st, 2006, 5:21am by prcole18 » |
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Ladybug314
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The Devil Made Me Do IT!!!!!
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Re: Pain Free night!.....
« Reply #1 on: Aug 1st, 2006, 9:29am » |
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Glad to here you had a P/F night. I have been on Verapamil since last Friday and so far it seems to start kicking in. I went against what the Neuro said after the 3rd day and upped it to 3x's a day which it was to be set to after 3 days of taking it. Yesterday was one of the best days I had since I was diagnosed.
Although while you were sleeping I got smacked with a 10'r took Imitrex and of course that cut the topping of the icing off the cake. Please keep and touch and let us know how your doing..
Ida
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What did we do to deserve such pain?
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prcole18
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Thank god for Imigran Injections!
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Re: Pain Free night!.....
« Reply #2 on: Aug 1st, 2006, 9:34am » |
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I certainly will, off to the doctors in a couple of hours & as I say I want him to up the Verap from 2X120mg to 360 or 480 to make sure that hopefully when the Pred course finishes it will work!
Still havent had a headache since 7:30 this morning (UK Time) 7 hours ago, which is the best its been in the last couple of weeks!
P.s probably spoke to soon now! 
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| « Last Edit: Aug 1st, 2006, 9:52am by prcole18 » |
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Pain Free night!.....
« Reply #3 on: Aug 1st, 2006, 10:43am » |
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Congrats about the PF time!
Good luck with the docs. The more you know about ch, meds & treatments, the better. Some docs don't know that much about ch. I hope that yours will know a lot.
Best wishes & loads of more PF time,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
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Re: Pain Free night!.....
« Reply #4 on: Aug 1st, 2006, 11:56am » |
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Good luck! Your doctor shouldn't have a problem with upping the dose but let us know if he does. I can get you a copy of the guidelines for increasing verap and also decreasing it. Don't forget the other golden rule, an ECG at every dose increase!
Helen
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prcole18
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Thank god for Imigran Injections!
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Re: Pain Free night!.....
« Reply #5 on: Aug 1st, 2006, 12:49pm » |
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Thanks for you replies.
Just got back from the doctors.
Took him a load of stuff i'd printed from here which he was quite impresed with.
He's upped my Verap from 240mg to 480mg a day, so hopefully when this course of Pred is finished in 10 days time the Verap will have kicked in & no headaches (hopefully)!
Also asked him why my neuro just gave me Pred (2 years ago!) & not another preventive as well & basically he didn't know.
Anyway hopefully i've educated him a bit in what is needed in the Preventive side of things.
He also gave me another 32 Imigran injections as i'm going away for a week on Sunday & do not want to be caught out, although I do not want to go over the 2 a day limit if I can help it as I know this can cause even more headaches.
Good thing is I still haven't had a headache for 10 hours which is heaven compared to the last 2 weeks, long may it continue.
Just for the record my current med i'm taking is:
Pred 12X5mg for 10 days (currently on 2nd day)
Then 6X5mg for 4 days.
Verapamil 2X240 a day
Magnesium 750mg a day
Also drinking loads of water!
Hopefully now ive gone 10 hours this cycle may be broken...... fingers, toes & just about everything crossed!
Thanks again for everyones advice & info, you'll never know how appreciated it is.
Here's to pain free time for everyone.
Paul
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LeLimey
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Re: Pain Free night!.....
« Reply #6 on: Aug 1st, 2006, 2:44pm » |
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on Aug 1st, 2006, 12:49pm, prcole18 wrote:Thanks again for everyones advice & info, you'll never know how appreciated it is.
Here's to pain free time for everyone.
Paul |
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Oh we do Paul, we've allbeen exactly where you are now! Stick around, you're help to others will be invaluable.
Oh and have a fantastic holiday, its obligatory that you post pics when you come back
Helen
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prcole18
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Thank god for Imigran Injections!
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Re: Pain Free night!.....
« Reply #7 on: Aug 1st, 2006, 2:45pm » |
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No problem with the pics
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