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Topic: Hello everyone! (Read 384 times) |
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sergio_demoraes
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Hello everyone!
« on: Jul 30th, 2006, 4:40pm » |
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I'm so glad I found this place! let me introduce myself: Name is Sergio, 49, born and raised in Brazil, living in Jacksonville, Florida with my wife Leia, no kids, and having CH for more than 30 years!
I have learned a lot about CH in all these years, but after coming to this place, for the first time, I have the feeling that I'm not alone. Congratulations for this wonderful job. Actually, after going through the whole website, I start reading about "The Devil", and it made me cry.
I'm here for two reasons: I'd like to learn more about CH, and help in anyway I can.
So, here is my first hint about dealing with CH:
First, no matter what kind of medication you are taking, you get have the right attitude towards your CH. I used to not accept the fact that I have this CH. I used to complain a lot, to ask "why me?", and I notice that this would only make the pain worst and last longer. I had times when I used to break everything in the house and bang my head in the wall. Many times I had seriously considered killing myself. Not to mention the discrimination, job losses, bankrupticy, broken marriages, you name it.
One day, I change my attitude and decided that I will take control. And I started looking for ways to better understand myself and my pain. Started with yoga and meditation. And Tai-chi-chuan.
Now, I still have CH. But I'm in control. When it wakes me up in the middle of the night, I don't panic anymore. I take my medication, go to the living room, so my wife can sleep, and I talk to this Ghost, and I say: Ok, since you are back and I can't sleep, you take your time, cause I know you won't stay forever. In the meantime, I'll do yoga and meditate. And, I try my best to relax and don't pay attention to the pain. Usually, it goes away in 15 minutes(used to take hours).
Your attitude is very important, don't let the CH take control of you.
Thank you all for this opporttunity!
Sergio 
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
  
 
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Re: Hello everyone!
« Reply #1 on: Jul 30th, 2006, 4:51pm » |
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Welcome Sergio.
Yep attitude is a good thing in fighting this beast.
I've been chronic for 19 years now, but there is always a lot we can and do learn about this condition.
If you would like to help go here:
http://www.ouch-us.org/joinouch.htm
OUCH is always on the look-out for volunteers.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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LeLimey
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OUCH-US - Less "ME" and more "WE"
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Re: Hello everyone!
« Reply #2 on: Jul 30th, 2006, 5:24pm » |
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Hi Sergio
I like your attitude!
What meds are you currently taking? Have you ever tried Oxygen?
Looking forward to hearing more from you
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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sergio_demoraes
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Re: Hello everyone!
« Reply #3 on: Jul 30th, 2006, 5:28pm » |
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Thanks Linda, I'll join them.
Sergio
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sergio_demoraes
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Re: Hello everyone!
« Reply #4 on: Jul 30th, 2006, 5:44pm » |
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Hi Helen! Yes, I tried oxygen, used to have in my car, at home, in the office, but...no success...
I have tried all available and legal medication, and what is working is Ormigrein. This is made in Brazil and Netherlands only, by Organon Laboratories. It has Ergotamine 1mg, Acetaminophen 220mg, Caffeine 100mg, Atropine 12.5mg and Hioxiamine 85.5 mg. I am taking 2 pills in the morning and 2 before sleep. But, when the Cluster comes, then I take as much as 8 pills, and the side effect is terrible(lower the blood presure, nausea, etc).
That's why I believe that attitude is so important, cause you not gonna need that much medication. But sometimes attitude fails also...
Tell me about your experience, what works for you...
Sergio
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ShaneM
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Will someone pull this out of my eye?
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Re: Hello everyone!
« Reply #5 on: Jul 30th, 2006, 8:41pm » |
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Hey Sergio,
Welcome!
You're right. A good attitude can come and go. But it sounds like you have a pretty good handle on it. So glad you're with us.
Shane
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TxBasslady
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Hello everyone!
« Reply #6 on: Jul 30th, 2006, 9:07pm » |
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Welcome, Sergio 
Thanks for joining us....hope you enjoy your stay.
Usually someone here 24/7. Just like Motel 6...."we'll leave the light on, for 'ya."
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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TxBasslady
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Hello everyone!
« Reply #7 on: Jul 30th, 2006, 9:14pm » |
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Oops...I forgot to tell you that your wife is welcome to join the board, also.
We have a Supporter's Corner where alot of supporter's and sufferer's post. It would be great if she wishes to share her thoughts from a supporter's view.
It's a great read....
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas!
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chewy
Guest
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Quote:don't let the CH take control of you.
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A big AMEN to that!
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Jasmyn
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Each day will be a new trick in life's journey
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Re: Hello everyone!
« Reply #9 on: Jul 31st, 2006, 4:37pm » |
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Welcome Sergio and thanks for the wise words.
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Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
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Richr8
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It's all about today...
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Re: Hello everyone!
« Reply #10 on: Jul 31st, 2006, 7:29pm » |
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on Jul 30th, 2006, 4:40pm, sergio_demoraes wrote:I change my attitude and decided that I will take control. And I started looking for ways to better understand myself and my pain. Started with yoga and meditation. And Tai-chi-chuan.
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Woohooo! More tools to use against the beast. This, attitude, has been a short coming of mine in the fourteen years I have experienced CH. Nice to see further confirmation that we can influence our experience by remaining in, or taking, control.
BTW-Welcome, and sorry you had to find us. Now that you, have I hope you will stick around to learn and help as needed.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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marlinsfan
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I love this place!
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Re: Hello everyone!
« Reply #11 on: Aug 2nd, 2006, 9:33pm » |
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Bemvindo, Sergio! Tudo bem?
I live in Hollywood, FL. You are right, attitude and mental control does wonders.
Did you use oxygen with a non-rebreather maks? It works great for.
Abraco,
Jose
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Guiseppi
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Re: Hello everyone!
« Reply #12 on: Aug 3rd, 2006, 1:53pm » |
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Welcome Sergio, please do read the link to the left on Oxygen. Many people are prescribed oxygen but aren't told how to use it corrctly. At low concentrations it doesn't seem work well. It might be worth trying it again as many of us have found success with it using the non-rebreather or "cluster" masks.
Again a big welcome to you, hope you find something of value here.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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