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Topic: Back After Eight Years! (Read 348 times) |
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nhrenton
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Back After Eight Years!
« on: Jul 24th, 2006, 4:18am » |
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My old friend came back to me: I woke up at 12:45 with sharp pain, watery eyes, runny nose.
I had gone eight years without CH--maybe 1998 to 2006. Why the cessation? I don't know. I had lost weight, smoked less, gotten married, had kids.
This week, while playing basketball, I knocked out a tooth and loosened another--could that physical trauma be the cause? Or perhaps the resultant marital stress that my injuries created (a long story)? Or the combination thereof?
Luckily, the pain, while intense, was brief; I resorted to my usual home remedies: strong coffee and Tiger Balm applied to the affected side. Soon after I drank the cofee, that glorious post-headache daze/haze came. Do you know what I mean?
I remember searching for CH help on the internet in the early 90s--I'm glad to see the progress. But hey! All in all, I'd rather not have to know you!--Our acquaintance signifies pain!
Are there any other sorts out there with remissions of equal length? Have you folks any advice? Do you know of a CH specialist in Southern California--I live in Burbank. Capitis dolor racemo sanandus est!
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George_J
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Re: Back After Eight Years!
« Reply #1 on: Jul 24th, 2006, 9:19am » |
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Welcome back, but sorry you're here.
My remissions are typically running around three years now. They used to be much shorter--about six months.
on Jul 24th, 2006, 4:18am, nhrenton wrote:| Capitis dolor racemo sanandus est! |
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I've worked it all out but the "sanandus" part. My latin is old and rusty.
Regards,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Bob_Johnson
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Re: Back After Eight Years!
« Reply #2 on: Jul 24th, 2006, 11:55am » |
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Some philosopher-type said: "Why? is the most painful word in the English language." Drop the issue: endless rumination/guessing only increases the distress.
1. Search the OUCH site (button on left) for a list of recommended M.D.s.
2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.
3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.
4. http://www.achenet.org/physicians/ On-line screen to find a physician.
5. http://www.headaches.org/consumer/index.html Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder" which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.
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Bob Johnson
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Guiseppi
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Re: Back After Eight Years!
« Reply #3 on: Jul 24th, 2006, 12:45pm » |
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Finished a 2 year remission, (longest ever), in November Now into my 8th month of this cycle, (longest ever!) There is no figuring the beast, only battling it. Good luck on your search for a knowledgeable neuro. The good ones are worth their weight in gold.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Richr8
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Re: Back After Eight Years!
« Reply #4 on: Jul 24th, 2006, 1:23pm » |
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Sorry you had to, but glad that you found this place. I know it has been a big help to me. I do not know anything about longg remissions, but some here do and I am sure they will chime in.
If you are not up on the latest treatmentss you might want to have a look here:
http://www.brightok.net/~mnjday/chtherapy.pdf
Also, if you haven't experienced the wonders of Oxygen , be sure to review the Oxygen info on the left panel. It is a lifesaver for many of us.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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mr.c
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Re: Back After Eight Years!
« Reply #5 on: Jul 25th, 2006, 12:23am » |
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My longest remission was four years. 
That ended May 1 this year.
However, I think a remission started a week ago 
I hope you have a quick recovery.
michael
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I can blame the headbanging for the baldspot...?
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TxBasslady
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Re: Back After Eight Years!
« Reply #6 on: Jul 25th, 2006, 1:57am » |
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Needless to say, if I went 8 years with no CH, and it came back...I'd be ticked 
Hope you find what you need here. Many years of suffering found here. Lots of home remedies that work for some.
Stay with us...let us know how you're doing.
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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nhrenton
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Re: Back After Eight Years!
« Reply #7 on: Jul 25th, 2006, 8:08am » |
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Thanks to all who have replied--not so bad last night--but I did have that imminent feeling--right before bedtime--yet it never blossomed. I still have imminent feeling now, so we'll see.
I'll keep working my way through the site; one immediate thought that struck me--why can't we get OTC oxygen? Or is that possible?
George--I can't vouch for my own Latin perfection at all--just three years in college--but I wanted to come up with a signoff a la Cato. sanandus is the gerundive, i.e. future passive participle, of the verb sano --to cure, heal (sc. sanatorium, sanity, sane). That is a passive periphrastic construction with sum (sc. Carthago delenda est).
The thing I guessed on is racemo; I made that the ablative of means of racemus (cluster [of grapes]), but now I think I should use the genitive of description. That would make my ending tag dolor capitis racemi sananda est. That means something like this: Cluster headaches must be cured! I welcome improvements from any other Latin scholars there--hey!--Could Latin study have an etiologic effect?
Dolor capitis racemi sananda est!
--nhrenton (nhrenton@earthlink.net)
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big guy
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Re: Back After Eight Years!
« Reply #8 on: Jul 27th, 2006, 6:00am » |
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I just found this site also. Mine are back after 19 years. I've been married for 18 years so my wife had never seen this. Oh by the way dear, I may turn into a raving screaming lunatic tonight.
best wishes
big guy
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LeLimey
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Re: Back After Eight Years!
« Reply #9 on: Jul 27th, 2006, 6:45am » |
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Hi Big guy,
Get your wife along to this site, let her read up about CH, let her chat to us, we'll help her understand and we'll support her too. Its hell on earth watching someone you love go through this and those who go through that hell deserve every reward life has to offer.
She is more than welcome too 
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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JeffB
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Re: Back After Eight Years!
« Reply #10 on: Jul 27th, 2006, 1:32pm » |
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on Jul 27th, 2006, 6:00am, big_guy wrote:I just found this site also. Mine are back after 19 years. I've been married for 18 years so my wife had never seen this. Oh by the way dear, I may turn into a raving screaming lunatic tonight.
best wishes
big guy |
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Nice to see a positive attitude!
I had a 5 yr period pain free, until about 2 years ago!
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" It's been my experience that people who have no vices have very little virtues."
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nhrenton
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Re: Back After Eight Years!
« Reply #11 on: Jul 28th, 2006, 6:58am » |
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Sorry Big Guy--
Have you had an injury that might have triggered the relapse? Anything stressful? Or perhaps just the heatwave that's been gripping the northern hemisphere?
I've been feeling the foreshadowing throb for about five days now--but I've only woken up twice in pain.
Good luck!
nhrenton@earthlink.net
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noneya
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Re: Back After Eight Years!
« Reply #12 on: Jul 28th, 2006, 10:44am » |
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Got my very first cycle when I was 8. Didn't get another till I was 16 (8 year remission). Now get em every two years.
Clusterheads have gathered and archived lots of info on CH since 1998. Good luck finding something that helps
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Linda_Howell
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Re: Back After Eight Years!
« Reply #13 on: Jul 28th, 2006, 11:39am » |
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Quote:I'd rather not have to know you!--Our acquaintance signifies pain!
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Not to me it doesn't. My acquaintance with everyone here over the last 8 years signifies family and support.
Kind of like the glass is half full instead of half empty.
I'm VERY familiar with Burbank. I spent most of my life in that city until I had to get out of the smog, traffic, gangs, crime and congestion. I will do some checking for you as to a Dr. there and get back to you. Check your PMs periodically, o.k.?
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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nhrenton
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Re: Back After Eight Years!
« Reply #14 on: Jul 29th, 2006, 8:58am » |
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Thanks, Linda.
A word in defense of Burbank; we plead guilty to smog and congestion, but we claim to live in a city with few gangs or little crime.
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Linda_Howell
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Re: Back After Eight Years!
« Reply #15 on: Jul 29th, 2006, 12:33pm » |
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Now I beg to differ. lol
My son is a Burbank cop.
Detective, actually...of....drum-roll here...Gangs and gang-related activity. He's a busy man these days.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Jonny
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Re: Back After Eight Years!
« Reply #16 on: Jul 29th, 2006, 6:29pm » |
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on Jul 25th, 2006, 8:08am, nhrenton wrote:| one immediate thought that struck me--why can't we get OTC oxygen? Or is that possible? |
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Go to a welding supply house and rent a bottle.....thats what I do
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Kevin_M
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Re: Back After Eight Years!
« Reply #17 on: Jul 29th, 2006, 8:39pm » |
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on Jul 24th, 2006, 11:55am, Bob_Johnson wrote:| This is the best method I know of to find such a physician. |
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Helpful and nicely compiled Bob.
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Linda_Howell
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Hearing is one thing. Listening is another.
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Re: Back After Eight Years!
« Reply #18 on: Jul 29th, 2006, 9:11pm » |
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Yee-Haw !!!!!!!
Now get thee to an 02 supplier as well.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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