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Barak
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new to the site
« on: Jul 18th, 2006, 1:51am » |
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Hello all! My name in Barak and Im new here and kinda dont know what to say. But I hope to meet some people my age on here. Im 16 years old and have had cluster headaches for a long time now. I love to play the guitar and i happen to think im good lol. I ten to be more like your average rocker i guess i love going to concerts and well this is my fourth night of headaches now and decided its time to start posting im tired as hell and getting ready to try and sleep :S Well im not sure what else to say but I would really like to meet others with clusterheadaches so please stop by and say hey. good luck and i wish you many years of remission
Barak
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roy21302
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Re: new to the site
« Reply #1 on: Jul 18th, 2006, 7:21am » |
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Welcome to the site, sorry you are a fellow suffer.. I am sure there of lots of young people on here that will talk to you. are you on any meds? Keep your Chin up and don't let it get you down Good luck 
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Guiseppi
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Re: new to the site
« Reply #2 on: Jul 18th, 2006, 10:37am » |
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Welcome to the site! Sorry I'm about 30 years older then you so not quite your age! When you get a chance, please let us know what kind of treatments you are on, what has and hasn't worked for you in the past. Give us a chance to help you out. Sorry you're hurting now, rest assured we know what you're going thru and we know how much it hurts, welcome to your new second family.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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starlight
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Re: new to the site
« Reply #3 on: Jul 18th, 2006, 11:59am » |
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Barak,
Hi and welcome to the board. I had clusters when I was in high school (although I am older than that now). Read all you can here and try to find what works for you. Most importantly, you don't say if you have a neurologist--ask your regular doctor to see a neurologist so he/she can help you--neurologists are the ones who know about these headaches. Regular doctors do not always know about these headaches. It took me MANY years to even end up in a neurologist's office when I should have been there way back in high school. So please do that if you haven't already. That is the first step to treating these headaches.
Also, maybe tell us a little about your headaches--when did they start, how often do they occur and when, etc. That way some of the folks here might be able to help you. Glad you reached out for support.
Wishing you pain free,
Starlight
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Barak
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Re: new to the site
« Reply #4 on: Jul 18th, 2006, 12:05pm » |
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Well. They started when i was very very young like 7 pr 8 years old but they were a lot more mild than they are now.i went from doctor to doctor and ended up in one of the biggest hospitalsin illinois and they told me about 20 different kinds of headaches and just lear i finnally got diagnosed with episodic cluster headaches. we cant afford the imitrex everyone talks about and my mom says insuracne wont cover it at all. so ive been saving up money for a year and hope to have a supple to last me a while or see how well it will work for me. but i do use the oxygen i keep a tank by my bedand i have one i take with me most of the time.i have not had not had these headaches for about a year actually and a month ago they came back stronger than ever and since then ive been little sleep. i keep thinking my body will crash and let me sleep but these are literally from hell and i dont believe it is possible to sleep through one at full blust no matter how tired you are. but if you have any tips one maybe weaker medicinces i can take or other ways to get imitrex please let me know i just want a little relief i dont care how much just some. i hope that helps you all out a little bit
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Yorky
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learn to meditate (or just sit & do nowt)
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Re: new to the site
« Reply #5 on: Jul 18th, 2006, 1:18pm » |
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try sumatriptan 100mg.good luck lad were all with you
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today is a gift.....thats why it is called the
present.
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starlight
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Re: new to the site
« Reply #6 on: Jul 18th, 2006, 5:28pm » |
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Barak,
I am using melatonin--taking 12mg before bedtime. The recommended dose to start at is 9 mg. I am using the Natrol brand from CVS. It is helping me tremendously. Please tell your doctor about whatever course of treatment you decide to take.
My doctor says that this melatonin treatment will help 50 % of cluster sufferers. Good luck to you Barak. I am sure others will be along shortly to help you out.
Many here have also recommended using Red Bull to stop the headache. Use it as soon as you feel the headache coming on.
Starlight
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starlight
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Re: new to the site
« Reply #7 on: Jul 18th, 2006, 5:30pm » |
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PS. You can buy Red Bull at most large grocery stores.
Good luck to you.
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Charlotte
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Re: new to the site
« Reply #8 on: Jul 18th, 2006, 6:51pm » |
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If the 1st red bull doesn't help, try it again the next day. The 3rd day was when mine started working.
Charlotte
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Barry_T_Coles
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Re: new to the site
« Reply #9 on: Jul 18th, 2006, 10:57pm » |
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Hi Barak welcome aboard.
I'm 57 going on 17. 
Your in good company here, what these people don't know aint worth worring about.
Kind Regards
Barry
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
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Richr8
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Re: new to the site
« Reply #10 on: Jul 19th, 2006, 6:20pm » |
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Hi Barak!
I am very glad that you found us. I'm sure you are glad to know that you are no longer alone with this awful condition. With all of the treatments available and the varying level of effectivenees depending on the individual, it is comforting to know that the one thing you can rely on is the support you will find here.
Please stick around, share your experiences, ask for help when you need it, and help where you can. That's what we are all about.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Barak
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Re: new to the site
« Reply #11 on: Jul 19th, 2006, 8:31pm » |
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Thank you for the advice. Im going to see about some other types of medicine this friday so wish me luck. My headaches have been getting slightly worse but i do feel better knowing all of yo uare right along with me. i will definatly try out the red bull thanks for the advice. if you know of any kids/teenagers anyone near my age of 16 can you please have them contact me or tell me their name. i would like to ask them some questions as well and get to know them. well mi madre needs the phone so. hang in there everyone thanks for everything. *hugs hugs hugs*
Barak
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George_J
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Re: new to the site
« Reply #12 on: Jul 22nd, 2006, 2:14am » |
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Hi Barak, and welcome.
I'm quite a lot older than you, but I started with CH when I was thirteen. Still getting them at 52, but the cycles are getting farther and farther apart.
Glad you found this board. I wish it had existed back when I started.
You've gotten some excellent advice so far. Keep reading, keep learning, and keep positive. CH sucks, but you can live with being episodic. I know it.
Ask any questions you like, and keep us posted about how you're doing. I'm sure there must be some younger people around as well.
Best wishes for PF times ahead,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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NONI
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You Are Too
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Re: new to the site
« Reply #13 on: Jul 23rd, 2006, 10:43am » |
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Hey Barak
There is newcomer username is Hidden Look for him he is 17 yrs old ,might be able to talk to him as he is unsure of what he has as well.
Noni Best wishes
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Ladybug314
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The Devil Made Me Do IT!!!!!
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Re: new to the site
« Reply #14 on: Jul 23rd, 2006, 9:57pm » |
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Hang in their!!!
I'm also new been here for about 1 1/2week and feel like a life time. People know what there talking about here and UNDERSTAND!!! I must admit Red Bull didn't work at first but then a few days after/controdicting my last comment it does work you just have to SLAM IT!!! I'm having a big one now :' I guess I'm fortunate enough to have good insurance and get to go see a Neurologist this week. I'm on Neurotine, KUDZU, Pain Med when it gets bad  And melatonin at night.. Hang on tight at least that's what I am doing now. And I am scared I have always been healthy and now this
My Comfort is Family, Friends and this SITE!!!!!! 
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What did we do to deserve such pain?
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nani
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Re: new to the site
« Reply #15 on: Jul 24th, 2006, 2:23am » |
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Hi Barak, welcome, and I'm sorry as all get out that you had to find us. But now that you have... count me in as family (and another "mom" type). We are here to help you in any way that we can, so please be sure to ask, OK?
hugs and pain free wishes, nani
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Others may come and go, but MY power is MINE.
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