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Topic: has anyone ever died from ch (Read 481 times) |
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leeleehill
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has anyone ever died from ch
« on: Jul 17th, 2006, 4:32pm » |
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my husband has had ch 4 a long time and we just found out what it was called.when he has one it is alwas a 10.there so bad that he passes in and out and iam scared that 1day he will pass out on me and not wake up.does anyone eals pass out wiyh there ch?  he is on no meds he gave on the doctors a long time ago we were paying 2 meny bills and nothing was helping so he stoped going.his come ever nite when he gos 2 bed all he takes now are goodys.i dont see how he does it plus work 12 to 16 hours a day on no sleep and it kills me 2 see him like this and i cant help him
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| « Last Edit: Jul 17th, 2006, 8:52pm by leeleehill » |
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TxBasslady
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Re: has anyone ever died from ch
« Reply #1 on: Jul 17th, 2006, 4:44pm » |
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CH will not kill you.
Does he take any medication? Can you list it here?
A little more info would be great. There are lots of people here who can help you out. Our experiences are all very different....but the pain is the same.
Welcome to the board! Lots of support here...so feel free to ask as many questions as you wish.
Someone here 24/7.....
PF vibes to your husband...
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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BobG
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Re: has anyone ever died from ch
« Reply #2 on: Jul 17th, 2006, 6:30pm » |
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on Jul 17th, 2006, 4:32pm, leeleehill wrote:| has anyone ever died from ch |
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No, but most of us have wanted to at one time or another. Or wondered why we didn't, or couldn't.
Years ago an old wives’ tale called our disease ‘suicide headaches’. Nowadays we all know better. No one has ever died from a cluster attack. And I’ve never seen any positive proof that anyone has ever committed suicide because of them.
Welcome to the board leelee. Read, read, read. There’s a test in one hour.
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Richr8
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Re: has anyone ever died from ch
« Reply #3 on: Jul 17th, 2006, 8:51pm » |
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Nope! It only makes you wish so. Lead him to us and we'll make sure he hangs on and provide some tips for coping.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Charlotte
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Re: has anyone ever died from ch
« Reply #4 on: Jul 18th, 2006, 1:46pm » |
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No, it won't kill you. Unfortunately, sometimes I wouldn't care if I did. I monitor my attitude.
Charlotte
ps Welcome aboard. Having someone to talk to is the best medicine, and someone is always here. I admire you for being there for your husband.
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| « Last Edit: Jul 18th, 2006, 3:19pm by Charlotte » |
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leeleehill
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Re: has anyone ever died from ch
« Reply #5 on: Jul 18th, 2006, 5:08pm » |
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thank you all 4 what you said i felt so alone intill i found this site .its so good 2 know that there are people out there that know what hell were in that we are really not alone at all thank u all so much.i wish pf days 4 u all
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Summerbabe
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Re: has anyone ever died from ch
« Reply #6 on: Jul 18th, 2006, 9:50pm » |
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 Hello so sorry about what your going through . Your husband has a debilitating disorder yes but die , no . Yes we may feel as if we will or want to due to our pain being intolerable . Try ice packs for the back of his neck, red bull at first sign of attack and gulp down...works for most of us here myself included. Melatonin at bedtime, in the vitamin section at your local walgreens or cvs, us CH'ers have lack of it when in cycle..it will help him sleep. May cut attacks in half too...give it couple of nights to work. Keep him cool, caffeine but hydrate with lots of water. It is a constant battle I know but thought some of these ideas may help him. I truly sympathize , I am in 6th week of torture...hits are calming down a bit but still wake me about 2:30 and then again at 4:00 . O2 is a huge abortive...if he can get that his prayers will seem answered. Good luck , hope I helped , we are here , have him log on.. we are always here. All my best, Summer 
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thomas
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Re: has anyone ever died from ch
« Reply #7 on: Jul 19th, 2006, 9:13am » |
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I'm going to have to disagree. I'm sure that the people who have commited suicide because of these things would still be alive it they didn't have CH. The actuall attacks are non-fatal, but they affect us all differently, for some it is literally too much pain to cope with. Not trying to be a downer, just being realistic.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Racer1_NC
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Re: has anyone ever died from ch
« Reply #8 on: Jul 19th, 2006, 8:43pm » |
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on Jul 19th, 2006, 9:13am, thomas wrote:| I'm going to have to disagree. I'm sure that the people who have commited suicide because of these things would still be alive it they didn't have CH. The actuall attacks are non-fatal, but they affect us all differently, for some it is literally too much pain to cope with. Not trying to be a downer, just being realistic. |
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In 100% agreement here. I know I'd not be here now if it wasn't for this place.
B
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"Everybody's Gotta Learn Sometime."
Eventus stultorum magister.
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chewy
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Re: has anyone ever died from ch
« Reply #9 on: Jul 20th, 2006, 7:16am » |
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I have yet to see one documented case of anyone committing suicide solely due to CH.
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thomas
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Re: has anyone ever died from ch
« Reply #10 on: Jul 20th, 2006, 9:12am » |
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on Jul 20th, 2006, 7:16am, chewy wrote:| I have yet to see one documented case of anyone committing suicide solely due to CH. |
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In most suicides there are more than just one reason. You can't deny that given other factors, loss of income, failed relations, poor quality of life, not being understood, and then you throw CH in the mix that it's not going to push some people over the edge.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Racer1_NC
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Re: has anyone ever died from ch
« Reply #11 on: Jul 20th, 2006, 11:04am » |
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on Jul 20th, 2006, 9:12am, thomas wrote:
You can't deny that given other factors, loss of income, failed relations, poor quality of life, not being understood, and then you throw CH in the mix that it's not going to push some people over the edge.
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All the above reasons COULD be traced to the person having CH......
B
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"Everybody's Gotta Learn Sometime."
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thomas
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Re: has anyone ever died from ch
« Reply #12 on: Jul 20th, 2006, 11:08am » |
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on Jul 20th, 2006, 11:04am, Racer1_NC wrote:
All the above reasons COULD be traced to the person having CH......
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Exactly the side affects that CH leaves on your life are all reasons for suicide, without even bringing the pain aspect into the equation.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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jenrob2006
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Re: has anyone ever died from ch
« Reply #13 on: Jul 20th, 2006, 5:51pm » |
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I do not have any proof, but I would venture to guess that a few car accidents have been caused by a ch attack. I know I have avoided a few. They may not be a direct cause for death but I definately believe they could lead to it in one way or another. Just like a drunk who dies in a car accident. He didnt actually die from being drunk, but it was a cause.
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maffumatt
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Re: has anyone ever died from ch
« Reply #14 on: Jul 20th, 2006, 7:42pm » |
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I don't know about CH but the meds we take and the quantity that we use has.
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starlight
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Re: has anyone ever died from ch
« Reply #15 on: Jul 21st, 2006, 12:34pm » |
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I have read about people committing suicide or attempting it from having CH. There are people with incredibly sever cases that do not seem to respond to anything. Either that or I know I have read about it happening years ago when there was no treatment of any kind for the headaches.
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Derrick
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Re: has anyone ever died from ch
« Reply #16 on: Jul 24th, 2006, 2:13am » |
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Ever try to land an airplane w/ one?? I shouldn't be here right now!!!
-Derrick
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I'm breathing, so I guess I'm still alive- Even if signs seem to tell me otherwise- I've got my hands bound, and my head down and my eyes closed, my throats wide open.........
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Owch
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Re: has anyone ever died from ch
« Reply #17 on: Jul 25th, 2006, 8:12am » |
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hehe nice Tool lyric  ehh when my ch's were at there worst ive been to that point of suicidal but was always too chicken shit to pull the trigger. yay for that ! i've raced motocross since i was 14 and had numerous crashes some pretty damn bad... but nothing touches the pain of a ch.
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Kirk
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Re: has anyone ever died from ch
« Reply #18 on: Jul 26th, 2006, 5:25am » |
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You need to have him take the Cluster Quiz on the left. I have never heard of CH directly killing anyone. But the pain sure has made me wonder occasionaly.
Lead your husband here, maybe we can help him.
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