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Topic: Newbie Intro (Read 250 times) |
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toonzboss
New Board Newbie
So I'm Not A HyperSensitive NutJob!
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Newbie Intro
« on: Jul 14th, 2006, 6:37pm » |
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So glad to find you guys! My ch started in 86, I had a head injury and subsequent blood clot in my brain in 84 and a Neurologist thought the ch were the result of nerve damage. Got a correct diagnosis in 87 and prescribed Elavil and worked great but when I left that overseas assignment (Turkey), I didnt see a doctor about it again and swore I would take care of it everytime I got one more but figured I just needed to get enough sleep and deal with it.
I was in and out of cycles until 2001/02 and they stopped until about 2 months ago and I got online and found you through Google and here I am.
Mine are on the left side always and start with the burning eye and then we're off to the races! I pace 90% of the time and have very often had to pull off the road when I'm driving.
I'm so glad to find you guys, its so awesome to know that I am not the only one telling people, " No you don't get it, I can't just lie down and Tylenol won't help!
And here we go I'm going into one right now, Yippee!
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JeffB
CH.com Alumnus
New Board Hall of Famer
Wide open till you see God, then brake
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Re: Newbie Intro
« Reply #1 on: Jul 14th, 2006, 6:59pm » |
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Sorry you have this dreaded disease. Glad you found this site!
There's alot of experienced people here with tons of information. Mine were always on one side also but the beast changed sides the last cycle. I hope you get some relief!
Jeff
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" It's been my experience that people who have no vices have very little virtues."
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Re: Newbie Intro
« Reply #2 on: Jul 15th, 2006, 12:11am » |
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Welcome, toonzboss.
You'll find plenty of good information here and knowledgable people. If you have any questions or anything at all you'd like to talk about, ask away. There's usually someone around 24/7.
I'm episodic and always a lefty for 40 years with clusters.
Regards,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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toonzboss
New Board Newbie
So I'm Not A HyperSensitive NutJob!
Gender:
Posts: 22
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Re: Newbie Intro
« Reply #3 on: Jul 15th, 2006, 12:53am » |
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Thanks guys, it just blows my mind that since 1986 I had felt like the Lone Ranger with ch and totally not aware of any "fellow sufferers". It at least provides a source for info and possibly some relief, thanks.
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MJ
New Board Hall of Famer
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Re: Newbie Intro
« Reply #4 on: Jul 15th, 2006, 1:38am » |
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welcome home toonz
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MJ
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Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
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Re: Newbie Intro
« Reply #5 on: Jul 15th, 2006, 7:19pm » |
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Welcome toonz. No tylenol doesn't work and you can't stay still.
I'm a rightie.
Have you read about kudzu, melatonin. redbull, clusterbusters, & oxygen, yet.
Charlotte
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toonzboss
New Board Newbie
So I'm Not A HyperSensitive NutJob!
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Posts: 22
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Re: Newbie Intro
« Reply #6 on: Jul 15th, 2006, 11:26pm » |
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Oh Yeah actually I just finished my first Red Bull, I have seen alot about it on this board. If it does help to any considerable degree it will be worth the 7.50 for 4 cans.
And I am definitely going to check out Oxygen, that seems so logical for some reason.
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Summerbabe
New Board Veteran
Live well. laugh often, Love Much
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Re: Newbie Intro
« Reply #7 on: Jul 16th, 2006, 11:25pm » |
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 hey there and welcome, I am a rightie and pace , curse , rock, swear. 6th week of cycle and man am I exhausted  . cant wait to sleep 8 hours , would be lovely to say the least..check out prevents and DEFINITELY GET SOME O2...I have 4 tanks , talk to your doc about it amd get on it. Sorry for your pain, we are here ....all my best, Summer 
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I am in my own world , its ok they know me here...
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toonzboss
New Board Newbie
So I'm Not A HyperSensitive NutJob!
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Posts: 22
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Re: Newbie Intro
« Reply #8 on: Jul 17th, 2006, 1:25pm » |
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This looks very good! I started getting "shadows" of a humdinger last night and I immediately killed a Red Bull and in about 10 maybe 15m once it had started to rock and roll, it tapered off in about 2 min. I am going today and stocking up on RB!! If this is indicative of future experience I will but it by the truckload!!!!!
Thanks for the info "ClusterBuds"!!!!!!!!!!
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Re: Newbie Intro
« Reply #9 on: Jul 17th, 2006, 3:21pm » |
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Warm welcome to the ch family, toonzboss! 
I'm so sorry that you have ch. But it's great that you found your way here.
Best wishes & PFdays,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
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Re: Newbie Intro
« Reply #10 on: Jul 17th, 2006, 3:44pm » |
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on Jul 17th, 2006, 1:25pm, toonzboss wrote:This looks very good! I started getting "shadows" of a humdinger last night and I immediately killed a Red Bull and in about 10 maybe 15m once it had started to rock and roll, it tapered off in about 2 min. I am going today and stocking up on RB!! If this is indicative of future experience I will but it by the truckload!!!!!
Thanks for the info "ClusterBuds"!!!!!!!!!! |
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Hey there, toonz - glad you found this place. Sucks that you had to, but notSucks that you're here now. If that makes sense.
Drink two of those puppies back to back sometime. Not only will you help kill the beast until next time, you'll also be ready to chew your own lips off. You might even see God.
Seriously, this place has been a tremendous help to lots of people. Stick around. Your family is here.
Bill
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Always remember that you're unique, just like everyone else.
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toonzboss
New Board Newbie
So I'm Not A HyperSensitive NutJob!
Gender:
Posts: 22
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Re: Newbie Intro
« Reply #11 on: Jul 18th, 2006, 12:26am » |
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Thanks everybody, I think regardless of what level of results or remedies I find here the most important one of all is a huge dose of hope and a common goal among a huge group of friends a keystroke away, what a deal!!
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