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Topic: new to ch kind of (Read 243 times) |
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NONI
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new to ch kind of
« on: Jul 12th, 2006, 10:03pm » |
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Hi ALL  I have only been diagnosed since yesterday an am kind of scared as I had ch 6 yrs ago but did'nt even know it , Has been 2 1/2 weeks so far and not done yet.
Help
Noni
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| « Last Edit: Jul 12th, 2006, 10:27pm by NONI » |
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walkertexasranger
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Re: new to ch kind of
« Reply #1 on: Jul 12th, 2006, 10:13pm » |
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Hi Noni!!
Are you doing ok tonight??
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NONI
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Re: new to ch kind of
« Reply #2 on: Jul 12th, 2006, 10:29pm » |
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I am ok so far but scared to sleep cause i am going back to work tomorrow.
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George_J
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Re: new to ch kind of
« Reply #3 on: Jul 12th, 2006, 11:38pm » |
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Hi Noni,
Sorry you're here, but welcome.
I know it's frightening, but you'll be just fine. Unbelievable as it is, they do no permanent harm--although I know that it feels like they will. It sounds like you're episodic. Just remember that it will pass. I know it will.
As far as work goes, remember to do what's best for yourself. If that means going to work tomorrow, then go. If that means you have to stay home to gather your strength, do it. You are your first priority.
Lots of us have lived with this for a very long time and we're available to help in any way we can. We remember what it was like when we first started with these things.
The collective knowledge of the people at this site is incredible. Just remember that you're not alone. Ask any questions you like, as often as you'd like. I'm sure you have many.
Let us know how you're doing.
Best regards,
George
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| « Last Edit: Jul 13th, 2006, 3:00am by George_J » |
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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NONI
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Re: new to ch kind of
« Reply #4 on: Jul 13th, 2006, 11:47am » |
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thanks for the support
I was reading up again today and figured out on my own that i also have either sunct or cluster tics,,more symptoms of the second one as my teeth hurt wake up with headaches all the time and i have shock like jabs in the temple area throughout the day does anyone else have this in relation to ch?
Oh and did'nt go to work again have missed this whole week 
Thanks much noni
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George_J
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Re: new to ch kind of
« Reply #5 on: Jul 13th, 2006, 12:40pm » |
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on Jul 13th, 2006, 11:47am, NONI wrote:thanks for the support
I was reading up again today and figured out on my own that i also have either sunct or cluster tics,,more symptoms of the second one as my teeth hurt wake up with headaches all the time and i have shock like jabs in the temple area throughout the day does anyone else have this in relation to ch?
Oh and did'nt go to work again have missed this whole week
Thanks much noni |
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The feeling of dental pain is very common. In the past, some clusterheads even had their back teeth pulled in an effort to stop the attacks. CH is often misdiagnosed as a dental issue. It's not your teeth, though--it just feels like it. Your trigeminal nerve is misfiring, and at least one of the branches extends into that area.
The icepick jabs throughout the day are also very common. Am I right in saying that they don't develop into full-blown headaches, but stab and then pass? I get them all the time in the middle of my cycle. Since you're two and a half weeks into your cycle and quite likely to be episodic (ninety percent of us are), you can expect them to peak quite soon. Typically, a cycle lasts from six to eight weeks. If you follow this pattern, you can expect to see them start to subside in a couple of weeks. They won't disappear suddenly, but will probably fade away.
You mention that you often wake up with a headache. Have you seen whether this occurs approximately ninety minutes after you fall asleep? REM sleep--dreaming sleep--is a sure trigger for many of us. This is also normal.
Hope you feel better soon. Follow your doctor's advice unless it's absolutely insane, and hang in there. It will pass.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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JeffB
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Wide open till you see God, then brake
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Re: new to ch kind of
« Reply #6 on: Jul 13th, 2006, 6:47pm » |
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Welcome everyone, don't be afraid to pick some brains around here! No pun intended!
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" It's been my experience that people who have no vices have very little virtues."
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Kris_in_SJ
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Re: new to ch kind of
« Reply #7 on: Jul 13th, 2006, 8:59pm » |
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Hi Noni,
Welcome. I'm glad you found us, but sorry for the reason you had to.
I urge you not to diagnose yourself. Work with your neurologist to discover whatever type or types of headache(s) you have. If you've been officially diagnosed with clusters, here's a resource you should know about:
http://www.brightok.net/~mnjday/chtherapy.pdf
What you call "stabbing" pain, I call "twinges." They're common with clusters, but with other types of headaches also. Chances are you have just one syndrome - not several - you're just experiencing the various types of discomfort related to the beast.
If nothing else, you'll find great support and a family here.
Hugs,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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unsolved1
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Hello Noni  Sorry you had to come looking for us ... but glad you found us. Welcome to the family.
Come here anytime to ask questions, share experiences, or just to vent.
Hang in there
Pain Free Wishes
UNsolved
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NONI
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Re: new to ch kind of
« Reply #9 on: Jul 14th, 2006, 7:00am » |
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I want to say thank you to everyone,for being so supportive because my freinds all are but they just don't know what i am going through.
I also thank you for letting me know about the jabbing throughout the day,as i had not heard anyone talk about it ,i thought it was something different.
noni
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