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Topic: New member (Read 283 times) |
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Suns
New Board Newbie
I love YaBB 1G - SP1!
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Hello all,
i'm a 29 year old male from the netherlands, my name is Bas,(Suns is just a nickname)and i am also a clusterhead..
I've had the "beast" as you all seem to call it for a few years now. It usually pops it's ugly head up around end of april, beginning of may...
This year's cluster started about two weeks ago now, the "beast" visits me about every other night...(hope i say this correctly..i have it on day 1, day 2 is ok, have it again on day 3, etc..)
Had it last night too, my head is still sore...
When i have an attack, the pressure starts in the right side of my throat, moving up to my right jaw, right ear, right temple (??)...then i can actually feel (and sometimes hear) the "beast" go in my head...my right eye swells up and starts to tear..
Attacks usually last for about 2 to 3 hours...
After the attack ends both my temples, my forehead, my nose, right eye and right jaw stay sore and painfull for about a day...
Last monday i had a massive attack dragging on for just over 5 hours... from 23:00 till about 4:20 (11p.m. till 4.20 a.m.)
Followed by wednesday, about a 3 hour attack, and yesterday was another 4 hours of agony..
It seems the "beast" is a bit stronger this year.. 
Visited my doctor this morning, have an appointment set with a neurologist on the 6th on june..hope to get some more info there..
Oh, by the way, the only medication i use is Verapamil..i have the imigran thing to stuff up my nose, but that doesn't work for me...used to work about 25% of the time, the last 2 years it doesn't seem to help anymore though...
Anyways, just thought i'd tell you all a little about myself..
I wish all of you strenght and many many painless days..
greetings from the netherlands,
Bas a.k.a Suns
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Bob_Johnson
New Board Hall of Famer
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Re: New member
« Reply #1 on: May 19th, 2006, 8:24am » |
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Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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Bert
New Board Newbie
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Posts: 13
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Re: New member
« Reply #2 on: May 19th, 2006, 11:11am » |
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Hey, a fellow countryman. Pity to hear that you get visited by the beast as well. You'll soon find out that there's a lot of information on this site. Besides, the other clusterheads here can give you some good advice .
Bert
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You're in for surprise, you're in for a shock. When you least expect me and you turn your back, I'll attack. ( by Judas Priest )
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MJ
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Re: New member
« Reply #3 on: May 20th, 2006, 1:22am » |
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Hello Suns and welcome.
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MJ
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marlinsfan
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Re: New member
« Reply #4 on: May 20th, 2006, 2:05pm » |
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Nasal imitrex (imigran) spray doesn't work all that well. Most of us use needles.
Oxygen in my abortive of choice. Read the link that was posted, it has great info.
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Suns
New Board Newbie
I love YaBB 1G - SP1!
Posts: 5
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Re: New member
« Reply #5 on: May 22nd, 2006, 3:55am » |
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Hello all, thanks for the replies.
Today i told my doctor i want the oxygen....he'll call me back in about 3 hours...
I really really hope it'll work as good as you all say...
I had attacks on saturday and sunday again.....both 4 hours +..... 
I'll let you know how things progress...
Oh, by the way, do you guys use anything besides the oxygen? Do i need to keep taking my verapamil?
Greetz,
Suns
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Suns
New Board Newbie
I love YaBB 1G - SP1!
Posts: 5
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Re: New member
« Reply #6 on: May 22nd, 2006, 11:52am » |
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Ok,i have my mini O2 tank now....I hope this works for me....
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Richr8
New Board Hall of Famer
It's all about today...
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Re: New member
« Reply #7 on: May 22nd, 2006, 12:50pm » |
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You are going to be amazed! Do you have a non-rebreather mask? And remember 15 LPM minimum.
It works for me atleast 60% of the time, so don't get discouraged if it doesn't work the first time. Let us know how it goes.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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marlinsfan
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Re: New member
« Reply #8 on: May 22nd, 2006, 10:23pm » |
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on May 22nd, 2006, 3:55am, Suns wrote:Oh, by the way, do you guys use anything besides the oxygen? Do i need to keep taking my verapamil?
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Oxygen is an abortive, used to stop the headache. Verapamil is a preventative used to keep the headaches from coming. Many here use both: abortives & preventatives.
My only preventative is melatonin, and I watch what I eat religiously.
Pay attention to Richr8's questions: non-rebreather mask and 15 liters per minute for the Oxygen to work properly.
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