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Topic: Hello Everyone! (Read 236 times) |
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danm
CH.com Alumnus
New Board Newbie
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Posts: 36
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Hello Everyone!
« on: Apr 5th, 2006, 10:59am » |
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Hello all my fellow pain sufferers,
Sorry to see so many of you in here....just kidding. It's actually comforting to know that there's a whole community of support available for those of us unlucky ones that have to deal with this muthaf'in beast.
My name is Dan and I am 35 years old. Probably been suffering for close to 15 years now....although I was not diagnosed with CH until after a few years of suffering, nasal surgery, Imitrex tablets (that didn't do shit) and a bunch of other stuff that may work for regular migraines.
Anyway, once I discovered Imitrex injections and O2, my cycles have been easier. Haven't found much luck with maintenance drugs(Depakote, Verapamil) until recently. I decided to give Verapamil another try, this time with 360 mg daily and after about 4 weeks, it seems that the cycle is ending....after 3 months. I'm keeping my fingers crossed for all of us.
Here's to peaceful pain-free days/nights for all of us.
Dan M.
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these things suck!!!!
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Guiseppi
CH.com Alumnus
New Board Hall of Famer
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Posts: 2703
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Re: Hello Everyone!
« Reply #1 on: Apr 5th, 2006, 11:38am » |
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Welcome to the village of the damned! Glad the trex and 02 are working but I agree, you should try and find a preventative too. I imagine even with insurance they don't give that trex away for free!
Your verapamil dose sounds low, I tried it 20 years ago but dose was even lower then yours so it did nothing for me. The people who post using verapamil speak of much higher dosages. I use lithium now and it works like a charm so I don't tinker. Glad you found us, hope you find help here.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Bob_Johnson
New Board Hall of Famer
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Posts: 1796
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Re: Hello Everyone!
« Reply #2 on: Apr 5th, 2006, 2:54pm » |
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Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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