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Topic: I love All of You (Read 336 times) |
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j_erickson85
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I love All of You
« on: Mar 8th, 2006, 1:34am » |
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[color=Teal][/color] i am in Week three with my headaches :( and i love knowing that other people undertand what i am going through. if i could get a response to this that would be great so i know that people actually read the board. ;;D
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A life spent making mistakes is not only more honorable, but more useful than a life spent in doing nothing!!!!!!!!!!!!!!!
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AussieBrian
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Got beer?
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Re: I love All of You
« Reply #1 on: Mar 8th, 2006, 2:13am » |
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G'day, J, and welcome aboard. I'm the sane one but watch out for the others - they're completely mad.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Cathi04
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I love YaBB 1G - SP1!
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Re: I love All of You
« Reply #2 on: Mar 8th, 2006, 2:16am » |
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LOL>Brian.are you sure???
Anywhoo, J......welcome.and, no, you are no longer alone, so pull up a chair or find a spot on the couch.
Wishing you PF,
Cathi
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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Barry_T_Coles
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Re: I love All of You
« Reply #3 on: Mar 8th, 2006, 2:38am » |
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Welcome aboard J
You are not alone there is always someone somewhere looking in and understanding where your at.
Hope this round is short for you.
Kind Regards
Barry
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi
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Jasmyn
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Re: I love All of You
« Reply #4 on: Mar 8th, 2006, 4:44am » |
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Hi J!
Welcome, this boat don't sink because we're all good rowers, grab an oar 
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Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
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marlinsfan
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I love this place!
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Re: I love All of You
« Reply #5 on: Mar 8th, 2006, 8:50am » |
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Hey J, welcome to the nuthouse. Tell us a bit about yourself. What meds do you take? How long have you been dancing with the beast?
PF wishes.
Jose
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j_erickson85
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Re: I love All of You
« Reply #6 on: Mar 8th, 2006, 5:10pm » |
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I'm Twenty years old and have sufferd from the beast since i was about ten years of age. My mother had me took in to the hospital when i had my first dance with the beast. She thought I had a brain Tumor  Sadly enough I did not. I Had "GROWING PAINS". it wasn't until I had internet at my House that i started researching my symptoms and discovered that I too have Clusters. I went to my doctor about this and told what i found and he didn't listen and kept telling me I only had bad Migraines. He gave me imitrex which doesn't even touch me. I also took Excedrin Migraine.. Not even close either. The only thing i have noticed to shorten my stay with the beast is chiropractor. As long as my neck gets cracked every other day i seem to have less nights of frequent visits and only one head "pain" per night. My clusters usually last around four weeks and come to visit around every five to seven months. I am in week four so hopefully the summer will be nice to me until around christmas. I will still log on every week to see how everyone else is doing and thank you for all of your support.
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A life spent making mistakes is not only more honorable, but more useful than a life spent in doing nothing!!!!!!!!!!!!!!!
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Guiseppi
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Re: I love All of You
« Reply #7 on: Mar 8th, 2006, 8:43pm » |
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Please read the links as to current treatments. If you haven't tried oxygen yet, read the link to the left and take the info to your doctor. Works great to stop the beast in its tracks, fairly cheap and nil on the side affects. Sorry you have to be here but welcome to what you will find to be a loving family.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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MJ
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Re: I love All of You
« Reply #8 on: Mar 8th, 2006, 8:45pm » |
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Welcome J
If AussieBrian is the sane one, then there may be hope for all of us.
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MJ
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sandie99
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Re: I love All of You
« Reply #9 on: Mar 9th, 2006, 4:03am » |
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J,
warm welcome! 
I'm so sorry that you have ch, but don't worry, here's always people who know exactly what you're going though.
Stick around & have fun in here with the rest of your Ch family.
Best wishes,
Sanna
MJ, good one!
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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tessa_c2
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Re: I love All of You
« Reply #10 on: Mar 9th, 2006, 4:19am » |
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hi,,
would offer you some cookies, but im not a very good cook. ok i shouldnt lie, they use my cooking as the #3 capital punishment "lethal injestion"
sorry your hurting
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"if you didnt define yourself for yourself, you'd be crunched into other peoples fantasies of you and be eaten alive" audre lorde
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Kirk
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VINIMUS, VIDIMUS, DOLAVIMUS
   
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Re: I love All of You
« Reply #11 on: Mar 9th, 2006, 7:47am » |
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Welcome to the maelstrom. I'm sorry it was necessary for you to find us.
Don't listen to Brian. He's some nut from Oz. Not a sane bone in him.
Please be well
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marlinsfan
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I love this place!
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Re: I love All of You
« Reply #12 on: Mar 9th, 2006, 8:40am » |
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Seems like trex is the only real med you've tried. Take a look here for other meds known to work for many. Oxygen is my preferred bullet, and Melatonin helps me thru the night.
http://www.brightok.net/~mnjday/chtherapy.pdf
PF wishes.
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Richr8
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It's all about today...
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Welcome!
« Reply #13 on: Mar 9th, 2006, 6:11pm » |
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Take this opportunity to read all you can. You may find some things here that decrease the intensity or frequency of your cycles. If you don't read it, or can't find it, just ask. There are lots of helpful folks here that really do, "get it!"
on Mar 8th, 2006, 5:10pm, j_erickson85 wrote:| I will still log on every week to see how everyone else is doing |
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That's awesome! As often as you can is appreciated.
PFDAN,
Rich
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Kris_in_SJ
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Re: I love All of You
« Reply #14 on: Mar 9th, 2006, 7:57pm » |
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Hi, and a very warm welcome to you. Sorry you are suffering so much right now.
Please follow the link Jose gave you. It offers the latest in medical treatment. I would also highly recommend that you see a neurologist - preferably one who specializes in headaches. You need a formal diagnosis and hopefully can then see what treatments might work best for you. There are many good abortive treatments like Oxygen that can help make your cycles more tolerable.
Hugs and PF Wishes,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: I love All of You
« Reply #15 on: Mar 9th, 2006, 8:01pm » |
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on Mar 8th, 2006, 2:13am, AussieBrian wrote:| G'day, J, and welcome aboard. I'm the sane one but watch out for the others - they're completely mad. |
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LMMFAO!!!!! 
Your too much, Brian......LMAO
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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thebbz
CH.com Alumnus
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Ow,Ow,Ow
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Re: I love All of You
« Reply #16 on: Mar 10th, 2006, 1:20pm » |
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Houdy,
The mad man from down under.
Brian you kill me
welcome and we do read and reply.
hope it passes soon. Lots of stuff out there to battle the beast.
all the best. O2,02, coffee. 
jb
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It wasn't me I didn't do it
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