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Topic: Guys? (Read 302 times) |
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Pezman
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Howdy. I'm starting my second "go 'round" of CH's since I was diagnosed a year ago. I've actually been sufering with them for awhile but it was never "figured out". I'm 36 and this sucks. I've discovered that O2 really does help. I've also discovered that I hate Prednisone. I'm still trying to rid myself of the 15 pounds it bestowed upon me last time. I haven't gotten the prednisone filled this time. I don't wanna. I'm wondering if O2 will get me through. I've caught this cycle really early. Any thoughts? Please? My shoulder's starting to tighten up. I better go "strap up". G'night.
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Dragnlance
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Re: Guys?
« Reply #2 on: Mar 3rd, 2006, 10:29am » |
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Other options
SLam a can of Red BUll at the onset.
Take a look at Kudzu to prevent a hit.
Verapamil helps many keep the attacks from coming as often.
Imitrex injections, (pills are a waste of time and money)
will help many abort a hit.
Hope this adds to what Bob posted
Lance
BTW, Welcome to the board, welcome home
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Guiseppi
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Re: Guys?
« Reply #3 on: Mar 3rd, 2006, 7:08pm » |
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Prednisone used to be my first line of defense. I still use it when I absolutely need a pain free period, I can even drink a little alcohol when using pred, but I agree, the weight gains, irritability, the damage long term to joints...it's nasty.
I now use 1200 mg of lithium when on cycle, oxygen and cafergot to abort the ones that break thru the lithium. As I'm sure you have already read, it seems no combo works for two people, it's a lot of trial and error. Wish you luck finding a combination that works.
Guiseppi
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marlinsfan
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Re: Guys?
« Reply #4 on: Mar 3rd, 2006, 7:15pm » |
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Pez, prednisone is a transitional med used while your preventive one kicks in. Lithium and verapamil are preventatives.
O2 is an abortive, used to kill the attack, not break the cycle.
Very different meds. If you don't like prednisone, skip the transitional and go to a preventative. Read the doc that Bob posted, it has all the info on meds.
PF wishes
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Beastfodder
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O2 and clusterbusters - naturally
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Re: Guys?
« Reply #5 on: Mar 7th, 2006, 6:34pm » |
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Hi Pez,
Sounds oh so familiar - glad the O2 is helping.
Prednisone never had it - but was precribed pizotifen, an antihistamine, for a while and it piled on the pounds.
Didn't say if it's a non-rebreather mask(www.clustermasx.xom) is a good option. Lots of reading including a trip to clusterbusters.com might help you on the road to aborting cycles.
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O2 and clusterbusters - naturally
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Richr8
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Re: Guys?
« Reply #6 on: Mar 7th, 2006, 7:49pm » |
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on Mar 2nd, 2006, 11:40pm, Pezman wrote:I hate Prednisone. I'm still trying to rid myself of the 15 pounds it bestowed upon me last time.
I haven't gotten the prednisone filled this time. |
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I feel the same about the pred, but succumbed after three weeks of no relief any other way. It's a bitch that you have to spend several months getting back in shape after a bout. My joints still aren't right even though I load up on all the appropriate supplements. I think after I get just a little exercise going I will be fine. I am planning on an alternative approach for next year.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Kris_in_SJ
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Re: Guys?
« Reply #7 on: Mar 7th, 2006, 8:13pm » |
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Hi and welcome.
While Prednisone can sometimes completely knock out an attack, as said above, it's usually used as an interim med until good preventatives like Verapamil at high doses kick in. For me, that's usually about a week to 10 days.
Follow the link Bob gave you. It's one of the best and latest guides to medical treatment around.
Good luck!
Kris
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Jasmyn
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Re: Guys?
« Reply #8 on: Mar 8th, 2006, 4:47am » |
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Welcome and hang in there!
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Jazz 
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Kirk
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« Reply #9 on: Mar 9th, 2006, 7:03am » |
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I hate pred.
I found that Imitrex shots were the fastest abortive around. But everyone is different. Because of a heart condition Triptans are out of the question now.
O2 and Olanzipine are the abortive of choice for me these days.
Read up on the left, and print out what you think is appropriate to take to your doc. I hope you find what works best for you.
Please be well
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thebbz
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Re: Guys?
« Reply #10 on: Mar 10th, 2006, 1:25pm » |
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Prednipoison. 
This in not the only thing for CH. Try the other prevents.
I didn't see if you had been to the neurologist? Probably the one who perscribed the pred. 
anyway
all the best.
jb
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sandie99
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Re: Guys?
« Reply #11 on: Mar 10th, 2006, 2:16pm » |
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Welcome! 
I'm sorry that you're hurting... 
I hope that you'll find a med which works. Pred didn't help me, it was the very first prevention med I tried back in 2003.
Best wishes & PF days,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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