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Topic: Here we go again! (Read 389 times) |
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jules06
New Board Newbie
I love YaBB 1G - SP1!
Posts: 2
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Here we go again!
« on: Feb 8th, 2006, 1:17pm » |
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Hello all,
Just registered as a new member. I live in the UK and am once again dealing with the demon. Currently I am in week 6 of this particular cluster and getting 4-6 flares a day. These are really hurting as I have just had an appendectomy which led to scepticaemia so the timing couldn't be worse (not that there is ever a good time!), the lack of sleep is killing me.
I've dealt with alot of pain in my life through sport and have broken, torn and dislocated more than my fair share but I would do all of that again gladly to never have another episode.
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seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
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Posts: 2248
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Re: Here we go again!
« Reply #1 on: Feb 8th, 2006, 1:22pm » |
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on Feb 8th, 2006, 1:17pm, jules06 wrote:Hello all,
Just registered as a new member. I live in the UK and am once again dealing with the demon. Currently I am in week 6 of this particular cluster and getting 4-6 flares a day. These are really hurting as I have just had an appendectomy which led to scepticaemia so the timing couldn't be worse (not that there is ever a good time!), the lack of sleep is killing me.
I've dealt with alot of pain in my life through sport and have broken, torn and dislocated more than my fair share but I would do all of that again gladly to never have another episode. |
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Hey Jules,
Welcome to clustervania! You taking anything for the Cluster? Using O2 for hits? Anything?
Scott
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seasonal boomer
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mrs mac
New Board Veteran
I love YaBB 1G - SP1!
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Posts: 213
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Re: Here we go again!
« Reply #2 on: Feb 8th, 2006, 1:25pm » |
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hi jules!!!
sorry to hear that you are having such a hard time just now!!!
the guys here are great, you will never feel alone again!!!
stick around and i am sure there will be loads more welcomes for you
sandra xxxxx
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LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
 
 
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Re: Here we go again!
« Reply #3 on: Feb 8th, 2006, 3:14pm » |
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Hi Jules
Nice to meet you, just wish it wasn't through CH 
What meds are you using? Lets see if there is anything we can do to help you out. Tell us as much about you as you can bear to type and we'll see what we can do to help you kick this to the kerb ASAP!
Take care
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Jasmyn
CH.com Alumnus
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Each day will be a new trick in life's journey
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Re: Here we go again!
« Reply #4 on: Feb 13th, 2006, 4:28am » |
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Hello Jules and welcome here.
Like everyone asked, what meds are you on? On the left hand side there is very good info to browse through.
Mrs Mac is right, you will never feel alone again.
These lights are on 24/7.
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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Dragnlance
New Board Hall of Famer
Monster bait
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Re: Here we go again!
« Reply #5 on: Feb 13th, 2006, 9:05am » |
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Sorry that you had to find us. Welcome. 
Depending on what meds you are taking now, there are sometimes other things you can do that might work better. If you havent tried it, Oxygen has virtually no side effects, and no conflicts with meds. Used properly, it can be an effective abortive to CH.
Hope you are pain free soon!!
Dragnlance
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FramCire
CH.com Alumnus
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Life like a froward child must be humored a little
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Re: Here we go again!
« Reply #6 on: Feb 13th, 2006, 8:55pm » |
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There are a lot of things you can use to try and get more sleep. Ambien, Melatonin (my personal fave at 9 mg), and others. Welcome aboard, I hope you can find the right thing to help you get sleep. It took me weeks and weeks to find 9mg of Melatonin was going to get me sleep. I am a new person again (also 480 of Verapomil 2x240).
Share your meds and other things you try and I bet the people here can give you tips to help you sleep.
Sorry you are here but glad to have you.
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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