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Topic: CrackBook er...FACEBook group (Read 422 times) |
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yhliem
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CrackBook er...FACEBook group
« on: Nov 27th, 2007, 5:32pm » |
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Not sure if anyone's interested and I certainly hope I'm not stepping on any toes, I set up a group in FaceBook for clusterheads. The group is called, appropriately enough "ClusterHeads"
I referenced www.clusterheadaches.com because the group is not intended to replace this site but rather hopefully increase exposure for those who remain either undiagnosed or in the dark about the existence of clusterheadaches.com.
If anyone feels that it was inappropriate of me to set up the group, feel free to lambaste me here (or via PM) and I'll gladly delete the group.
Just thought it would be helpful. That's all
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| « Last Edit: Nov 27th, 2007, 5:33pm by yhliem » |
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cynjeep89
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Re: CrackBook er...FACEBook group
« Reply #1 on: Nov 27th, 2007, 5:42pm » |
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"CrackBook"? Please explain.
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Jonny
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Re: CrackBook er...FACEBook group
« Reply #2 on: Nov 27th, 2007, 5:43pm » |
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Well, seeing that I am The King here.....I think its a great idea!!! 
Good job, it can only get the word further out there.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jonny
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Re: CrackBook er...FACEBook group
« Reply #3 on: Nov 27th, 2007, 5:51pm » |
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Cyn, I may be wrong but I took it as a section of facebook and "Crackbooker" meaning something like crack a book and learn more.
Not positive so I may be wrong.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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yhliem
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Canadian ClusterHead
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Re: CrackBook er...FACEBook group
« Reply #4 on: Nov 27th, 2007, 5:56pm » |
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lol
Actually, it's a colloquialism that's sprung up to suggest that facebook is addicting.
I guess it's not as widespread a term as I thought. 
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Jonny
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Re: CrackBook er...FACEBook group
« Reply #5 on: Nov 27th, 2007, 6:16pm » |
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on Nov 27th, 2007, 5:56pm, yhliem wrote:| Actually, it's a colloquialism that's sprung up to suggest that facebook is addicting. |
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Do you have a link to this group?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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yhliem
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Canadian ClusterHead
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Re: CrackBook er...FACEBook group
« Reply #6 on: Nov 27th, 2007, 6:25pm » |
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It's not a group, it's just another name for facebook that's cropped up because of how addicting facebook can be. 
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tessistired
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Re: CrackBook er...FACEBook group
« Reply #7 on: Nov 27th, 2007, 6:30pm » |
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Hey i love the idea....I am already on Facebook...don't know why I didnt think of it. Thats why I always say it's always good to have another brain around.
So yeah...whats the group called I want to go there now!!!
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Jonny
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Re: CrackBook er...FACEBook group
« Reply #8 on: Nov 27th, 2007, 6:30pm » |
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on Nov 27th, 2007, 5:32pm, yhliem wrote:| I set up a group in FaceBook for clusterheads. The group is called, appropriately enough "ClusterHeads" |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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tessistired
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Re: CrackBook er...FACEBook group
« Reply #9 on: Nov 27th, 2007, 6:36pm » |
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lol...i know I realized and i caught my self after i clicked the post button....duh to me!!...lol
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Jonny
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Re: CrackBook er...FACEBook group
« Reply #10 on: Nov 27th, 2007, 6:39pm » |
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I have a feeling that I am being played here!
Can I get a fucking link to the group? 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Redd
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Re: CrackBook er...FACEBook group
« Reply #12 on: Nov 27th, 2007, 6:49pm » |
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You first would need a Facebook account Jonny. It's like MySpace.
Without an account, you can't access the different groups.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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tessistired
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Re: CrackBook er...FACEBook group
« Reply #13 on: Nov 27th, 2007, 6:50pm » |
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Sorry Jonny ...I should have said something first...I thought you had one already!!
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George_J
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Re: CrackBook er...FACEBook group
« Reply #14 on: Nov 27th, 2007, 6:50pm » |
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Yep. Found it and joined.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Jonny
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Re: CrackBook er...FACEBook group
« Reply #15 on: Nov 27th, 2007, 6:55pm » |
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on Nov 27th, 2007, 6:50pm, tessistired wrote:Sorry Jonny ...I should have said something first...I thought you had one already!!
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No sweat, I found it and all is cool.
Looks like our own PFunk has a cluster group going also.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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schaan
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Re: CrackBook er...FACEBook group
« Reply #16 on: Nov 27th, 2007, 10:13pm » |
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so you say?
still looking
schaan
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this place gives me hope when i had none.
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sandie99
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Re: CrackBook er...FACEBook group
« Reply #17 on: Nov 28th, 2007, 10:46am » |
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Found and joined. 
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Kirk
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Re: CrackBook er...FACEBook group
« Reply #18 on: Nov 29th, 2007, 5:26pm » |
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If an identity stealing and spamming site wants me to join, they will have to pay me a monthly fee first. YMMV
PS. Remember that once you join, you can't delete your account. And all your information is still available on their servers. Including any online shopping you do anywhere on the web.
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| « Last Edit: Nov 29th, 2007, 5:30pm by Kirk » |
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purpleydog
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Re: CrackBook er...FACEBook group
« Reply #19 on: Nov 29th, 2007, 5:54pm » |
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on Nov 29th, 2007, 5:26pm, Kirk wrote:If an identity stealing and spamming site wants me to join, they will have to pay me a monthly fee first. YMMV
PS. Remember that once you join, you can't delete your account. And all your information is still available on their servers. Including any online shopping you do anywhere on the web. |
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This includes all private info from shopping, bill paying, credit cards, etc. Thanks for the info, but I think I'll stick with this group.
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Charlie
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Re: CrackBook er...FACEBook group
« Reply #20 on: Nov 29th, 2007, 7:30pm » |
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Me too Dog.
Charlie
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Emily
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Re: CrackBook er...FACEBook group
« Reply #21 on: Nov 30th, 2007, 7:43am » |
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Hello,
I'm on Facebook too, but have a dilemma. I use this site to post photos and communicate with my family who live on the other side of the pond and also have work colleagues on my list. They don't know I have CH and I don't know if I'm really ready to tell them either (or if I ever will). So I'm going to pass (for now). I am, however, happy to add any friends to my list if you want! PM me and I'll send you my details!
Em
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Maffumatt
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Re: CrackBook er...FACEBook group
« Reply #22 on: Nov 30th, 2007, 5:55pm » |
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schaan
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Re: CrackBook er...FACEBook group
« Reply #23 on: Nov 30th, 2007, 10:59pm » |
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on Nov 30th, 2007, 7:43am, Emily wrote:Hello,
I'm on Facebook too, but have a dilemma. I use this site to post photos and communicate with my family who live on the other side of the pond and also have work colleagues on my list. They don't know I have CH and I don't know if I'm really ready to tell them either (or if I ever will). So I'm going to pass (for now). I am, however, happy to add any friends to my list if you want! PM me and I'll send you my details!
Em |
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thats simple dear.
pseudo you is born......
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this place gives me hope when i had none.
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