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Topic: I am back and no I dont need phsyc (Read 292 times) |
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SteveR
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I am back and no I dont need phsyc
« on: Nov 22nd, 2007, 4:02pm » |
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First of all a big thanks to all who have taken the time to reply to my first post. The appointment with my neuro went really well, we both agreed that the current treatment is not working and after a long talk about the O2 he said it was not possible to have it at home due to the factš"It would not be the 100%" I would need, so how do you guys get it?. I am currentley coming off the Depakin, in order to start on Lithium (am a bit worried about that). Have those of you who have taken it or are taking it, sufferd with side effects, and if so how badly?. What can I expect? I realise we all react differently and what is good for one might be bad for someone else, but so far I only have your experiences to go by, sure I have read the info but a lot of you will have been there.
One of the tips I have found very good was the redbull high caffine drink, if taken early enough, I can usely tolerate the pain with out having to inject. As I live in spain there is not one speclist center my neuro was extremley intrested in the info Gator (Mike) pointed out to me all though I spent 2 days translating it into Spanish for him, so who knows you guys could be helping non English speaking sufferers as you sit down to you thanks giviing dinners.
All the very best to all
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SteveR
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Redd
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Re: I am back and no I dont need phsyc
« Reply #1 on: Nov 22nd, 2007, 4:16pm » |
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There has been some work with translating OUCH-US.org into Spanish. Seems you are fluent in both languages, so you may want to contact Peppermint to see if she has any good documents about O2 already translated. Might help you get what you need?
Just a suggestion.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Jonny
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Re: I am back and no I dont need phsyc
« Reply #2 on: Nov 22nd, 2007, 4:18pm » |
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You can always taper off the Lithium if its not for you. I took it everyday for 14 years and had no problems with it.
Its hard to believe you cant get 100% 02.....try welding 02, it HAS to be 100% or its useless.
Good luck, Steve!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Dape
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WHY BOTHER !!!!!!!!!!!!!!! !!
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Re: I am back and no I dont need phsyc
« Reply #3 on: Nov 22nd, 2007, 4:19pm » |
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Hi Steve,
This info is on the OUCH(uk) board for people wanting to source O2 when going abroad in Europe:
Air products cover most areas of Spain.Contact Carmen Gamonal Fernandez on 0034 916579327 or e mail to spvacox@airproducts.com For those areas not covered by Air products,contact Sylvie Calvo or e mail Sylvie.calvo@airliquide.com
Hope it can help you get the O2
Dape
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D.I.L.L.I.G.A.F ???
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Linda_Howell
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Re: I am back and no I dont need phsyc
« Reply #4 on: Nov 22nd, 2007, 4:36pm » |
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Quote:| and after a long talk about the O2 he said it was not possible to have it at home due to the factš"It would not be the 100%" I would need, |
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What?  Doesn't sound like your Neuro knows a whole heck of a lot about medical 02. And as Jonny has said, welders 02 has to be 100% or it doesn't work.
Print things out from this page and take it to him/her.
http://www.ouch-us.org/medications/oxygen/o2info.shtml
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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schaan
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Re: I am back and no I dont need phsyc
« Reply #5 on: Nov 22nd, 2007, 11:51pm » |
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ive been taking 900 mg a day of lithium and noticed a big difference in severity.
my opinion
let us know how it works for you.
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this place gives me hope when i had none.
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