Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 23rd, 2024, 8:55pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Just a little vent »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2007 General Board Posts
(Moderator: DJ)
   Just a little vent
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Just a little vent  (Read 302 times)
Saffy
New Board Junior
Wales 
**





   
Email

Gender: female
Posts: 79
Just a little vent
« on: Nov 2nd, 2007, 11:28am »
Quote Quote Modify Modify

Bl**dy GP
 
Whew feel a bit better for that already.
 
Went to GP to ask for an abortive, other than energy drinks, just for nighttime hits, in particular O2. Told he hadn't heard of this so suggested he looked it up on this an Ouch site, left him with literature.
 
Returned as agreed 2 and a half weeks later to be told basically, oh although neuro put you on Topamax it doesn't mean he is saying you have CH. So if you want anything for CH you need to prove you have it first?! However he didn't refer me back to the neuro?!
 
Saffy very angry
IP Logged
Melissa
New Board Hall of Famer
USA 
*****




Gone Crazy. Be back soon.

   


Gender: female
Posts: 1748
Re: Just a little vent
« Reply #1 on: Nov 2nd, 2007, 11:32am »
Quote Quote Modify Modify

Oh Saffy, what a prick!!  I'm so sorry dear. Sad  
 
Are you going to phone him and tell him there's no way you can prove it unless he refers you to a neuro?
 
IP Logged


DON'T WORRY ABOUT NOTTIN - NOTTIN IS ALRIGHT

My mosaic Crosses on Etsy: http://www.etsy.com/shop.php?user_id=5494187
Ghost
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Farting relieves the pressure

   


Gender: male
Posts: 4024
Re: Just a little vent
« Reply #2 on: Nov 2nd, 2007, 11:32am »
Quote Quote Modify Modify

SLAM a freakn club against his head and tell him to prove it hurts!
 
I hate ID-10-t docs especially when the say stupit thangz.
 
Mike
IP Logged

Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?

***WARNING*** Oxygen will rust your pipes!Wink
sandie99
New Board Hall of Famer
Finland 
*****




Wish it, dream it, do it - inspite the pain!

   


Gender: female
Posts: 10429
Re: Just a little vent
« Reply #3 on: Nov 2nd, 2007, 11:34am »
Quote Quote Modify Modify

I'm so sorry, Saffy... hug
 
PF days for you,
Sanna
IP Logged

CH happends, Live anyway! PF days to us all!

"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)

"No matter how far out your dreams are, it's possible" (Marketa Irglova)


kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Stuck in the middle with you!

  kimmiedawn8199   kimmiedawn21


Gender: female
Posts: 1426
Re: Just a little vent
« Reply #4 on: Nov 2nd, 2007, 11:37am »
Quote Quote Modify Modify

Had the exact same thing happen to me about 6 weeks ago.  Trust me, I know how frustrating it is!!
 
Sorry that you had to go through that!
IP Logged




LeLimey
CH.com Alumnus
New Board Hall of Famer
Great_Britain 
*****



OUCH-US - Less "ME" and more "WE"

  lelimey  
WWW Email

Gender: female
Posts: 11720
Re: Just a little vent
« Reply #5 on: Nov 2nd, 2007, 12:02pm »
Quote Quote Modify Modify

Saffy - you have already seen a neuro haven't you?
 
If so, phone the hospital and ask to speak to the neuro's secretary and ask for an appt ASAP and to call you with any cancellations. You don't need to go through your GP anymore once you are already on a neuro's patient list.  Smiley
 
Hope it helps, if you want to ask anything anytime I'm about to pm you my phone number okay?
Helen
IP Logged





The arsehole I'm divorcing needs to get a life and stop stalking mine

Rosybabe
CH.com Alumnus
New Board Hall of Famer
USA 
*****




"Too much of a good thing can be wonderful!!

  smurph  
Email

Gender: female
Posts: 3470
Re: Just a little vent
« Reply #6 on: Nov 2nd, 2007, 1:22pm »
Quote Quote Modify Modify

Saffy while you get to see the neuro try melatonin.
 
 Wishing you lots of pain free time girl.
 
 
      Hugs
 
           Rosy.
IP Logged

Believing is just the beginning!
BarbaraD
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Hugs to ya

   
Email

Gender: female
Posts: 5164
Re: Just a little vent
« Reply #7 on: Nov 2nd, 2007, 1:37pm »
Quote Quote Modify Modify

on Nov 2nd, 2007, 11:32am, Ghost wrote:
SLAM a freakn club against his head and tell him to prove it hurts!
 
 

 
 
Makes sense to me.... stupid doc!!!
 
Get rid of the GP and see the neuro....  
 
Hugs BD
IP Logged

What don't kill ya, Makes ya stonger!

Saffy
New Board Junior
Wales 
**





   
Email

Gender: female
Posts: 79
Re: Just a little vent
« Reply #8 on: Nov 2nd, 2007, 2:14pm »
Quote Quote Modify Modify

Thank you all Soooo much for cheering me up.
 
Ghost the image of the club to the head - I laughed like a drain it did me goooooood!
 
Turns out I should have opened my post.
 
Stranger than fiction!
 
GP has written me a letter!!! Which says he has written to the neuro to ask about 02 useage, so maybe he has had a change heart, or maybe he has just recieved one for the very first time?! Or maybe he just wants to stall me for longer.....
 
Time will tell.
 
Saffy
IP Logged
DennisM1045
New Board Hall of Famer
USA 
*****




One wave at a time!

  DennisM1045   DennisM1045
Email

Gender: male
Posts: 1639
Re: Just a little vent
« Reply #9 on: Nov 2nd, 2007, 2:38pm »
Quote Quote Modify Modify

Or maybe he's out of his element and wants some approval for the treatment from the Neuro.  Either way it sounds like he's budging a little anyway.  Good luck hon.
 
-Dennis-
IP Logged

Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
Kevin_M
CH.com Alumnus
New Board Hall of Famer
USA 
*****



withered branches grow green again.

   


Gender: male
Posts: 6184
Re: Just a little vent
« Reply #10 on: Nov 2nd, 2007, 2:48pm »
Quote Quote Modify Modify

on Nov 2nd, 2007, 2:14pm, Saffy wrote:
GP has written me a letter!!! Which says he has written to the neuro to ask about 02 useage, so maybe he has had a change heart, or maybe he has just recieved one for the very first time?! Or maybe he just wants to stall me for longer.....

 
For some reason my regular doc was liberal with prescribing trex but hesitant about oxygen, I'm sure he wasn't aware of it though for clusters when I told him.  Even so, he seemed resistant but gave me a neuro referral for it, which worked out.
 
I've read before by someone about regular docs and oxygen scripts not being their first choice for some reason.  His writing will save you the appointment cost and time, perhaps without another neuro evaluation.  Keep a log in case a referral to go back is needed but hope it works out sooner for you.    Smiley
« Last Edit: Nov 2nd, 2007, 2:51pm by Kevin_M » IP Logged
Brew
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Low Four!

   


Gender: male
Posts: 6515
Re: Just a little vent
« Reply #11 on: Nov 2nd, 2007, 2:51pm »
Quote Quote Modify Modify

My GP is the one who wrote the perpetual script for O2. He did that while I was waiting to get in to see my neuro.
 
It's still my GP's O2 script that's on file with Apria some 14 years later.
IP Logged

Always remember that you're unique, just like everyone else.
Callico
New Board Hall of Famer
USA 
*****



Proud Dad of a US Marine!

   
Email

Gender: male
Posts: 1395
Re: Just a little vent
« Reply #12 on: Nov 2nd, 2007, 6:24pm »
Quote Quote Modify Modify

Why is it that some Drs are so afraid of prescribing something so harmless as O2, but will prescribe opiates if you go in complaining about the slightest pain in the back (unprovable), or a toothache, etc., or will willingly prescribe barbituates if you say you have trouble sleeping, (unproveable), or will gladly prescribe valium or one of its derivitaves if you say you feel a little bit down and depressed (again, unproveable).  Each of these has its proper place and usage, but they are given out so easily, and are so easily abused and are so addictive.  
 
What is it about a piece of paper on the wall that says they completed successfully a study of the medical arts that makes them God?  They who know so little about our malady are also unwilling to learn and fulfill the Hypcratic (his was hypocritic) to first do no harm, and then to do good.
 
Sorry, but I just had to spew after that.  Your health system really scares me over there.  To think that is what they are trying to install here in the states.  2 1/2 weeks to be unable to give you an answer?  That is ridiculous!!!
 
Jerry
IP Logged

"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
LeLimey
CH.com Alumnus
New Board Hall of Famer
Great_Britain 
*****



OUCH-US - Less "ME" and more "WE"

  lelimey  
WWW Email

Gender: female
Posts: 11720
Re: Just a little vent
« Reply #13 on: Nov 2nd, 2007, 6:35pm »
Quote Quote Modify Modify

In fairness Jerry - there are just as many if not more of you there in the US who can't get O2 because not only will your doctors not agree but your insurance companies won't supply it. How many of you there are having to use welders O2? Not CHOOSING to use it but having no choice?
 
At least here we can tel the doc we are going to the primary care trust (ie over his head) and that they will allow it given that O2 costs about £1.50 per day as opposed to £56 for the two Imitrex we are allowed by law. Our doctors here can't argue that one either although they do try. Quite simply, here we can hit them squarely in the budget to make them see reason.
 
For you its the opposite. God forbid the drug companies lose a quick buck by people using a cheap old treatment like O2.
 
What sucks is that people are suffering needlessly and however you look at it, it all boils down to money  Angry
 
Stupidity is not limited to one country sadly  Undecided
IP Logged





The arsehole I'm divorcing needs to get a life and stop stalking mine

Callico
New Board Hall of Famer
USA 
*****



Proud Dad of a US Marine!

   
Email

Gender: male
Posts: 1395
Re: Just a little vent
« Reply #14 on: Nov 2nd, 2007, 9:08pm »
Quote Quote Modify Modify

Helen,
 
Sorry to imply that it is only the British system that is at fault.  I know that we have many Drs here in the states who aren't any better.  I've just noted that within the British, French, and Canadian systems there is less of a market push for the Drs to do more.  This is not just related to CH, but other problems as well.  There have been several cases with family members and friends from out of the US who have been unable to get proper care, or have had to wait intolerably long for it.
 
I agree fully with you that the drug companies do much to hinder use of less expensive treatment for the profit motive.
 
Jerry
IP Logged

"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
Charlie
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Happy to be here

135447360 135447360   mondocharlie   mondocharlie
Email

Gender: male
Posts: 14968
Re: Just a little vent
« Reply #15 on: Nov 2nd, 2007, 10:54pm »
Quote Quote Modify Modify

Then there's my experience of doctors telling us that they don't have time to use the internet. While I understand this, it would be nice if they took care of their patients though....even if that entails checking us out.  
 
Damn rectal apertures.
 
Charlie
IP Logged

There is nothing more satisfying than being shot at without result---Winston Churchill
Jonny
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Give me a shovel Ill dig my own grave!

   
WWW Email

Gender: male
Posts: 26213
Re: Just a little vent
« Reply #16 on: Nov 2nd, 2007, 11:25pm »
Quote Quote Modify Modify

Why are Canadians coming to America for fast treatment and their own goverment wont pay them back for it?
 
They pay out of pocket which is  fucked up to someone you wont help fast enough......Scumbags!!!!
 
Yeah!.....Thats what we want....HILLIARY CARE!!!!!
 
Edit to add: If Bill is reading.....Dont tase me, bro! Grin
« Last Edit: Nov 2nd, 2007, 11:27pm by Jonny » IP Logged

It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

- Guiseppi


Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss