Author |
Topic: I wish there were more places like this (Read 321 times) |
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
 
Gender: 
Posts: 179
|
 |
I wish there were more places like this
« on: Oct 29th, 2007, 10:33pm » |
 Quote  Modify
|
My husband has the wet form of Macular Degeneration. It's a progressive, incurable disease that is one of the leading causes of blindness. He is legally blind. He can't drive at night, probably shouldn't drive during the day. If you saw him on the street, you may think he is perfectly normal, but he's not. Lately he's been asking me if he looks okay. Today he tearfully admitted to me that he can't see himself in the mirror anymore. It broke my heart. I wish there was a site like this for people with Macular Degeneration. I haven't found one yet.
~Kris
|
|
 IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
 
Gender:
Posts: 6721
|
|
Re: I wish there were more places like this
« Reply #1 on: Oct 29th, 2007, 10:41pm » |
Quote Modify
|
Kris,
this family here is awesome and if there is any such support group that any of us can find....you'll be contacted right away.
Linda
|
|
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
Rosybabe
CH.com Alumnus
New Board Hall of Famer
"Too much of a good thing can be wonderful!!
Gender:
Posts: 3470
|
|
Re: I wish there were more places like this
« Reply #2 on: Oct 29th, 2007, 10:48pm » |
Quote Modify
|
I am sorry to hear that Kris  .
I bet there must be something about that somewhere in the internet, maybe not especifically for the disease but for people who is in the same circunstance as your husband. People who lost their sight by a disease.
My prayers go to you and your husband, so he can find relief somehow.
Hugs
Rosy.
|
|
IP Logged |
 Believing is just the beginning!
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender: 
Posts: 6184
|
|
Re: I wish there were more places like this
« Reply #3 on: Oct 29th, 2007, 10:54pm » |
Quote Modify
|
on Oct 29th, 2007, 10:33pm, CostaRicaKris wrote:| I wish there was a site like this for people with Macular Degeneration. I haven't found one yet. |
|
This place is where the tornado of clusters set the house down and kills one evil of being alone and uninformed. We still have to manage with the wickedness that is CH but much better thanks to DJ, the man behind the curtain.
I can't image not having a site for such a terrible degenerative disease that changes a person's life so much. With the loss of sight though, the sufferers would be handicapped to be their best own advocates on a website, it would up to the supporters of them to converse and help each other and them it seems.
|
| « Last Edit: Oct 29th, 2007, 11:02pm by Kevin_M » |
IP Logged |
|
|
|
aloneuk
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 776
|
|
Re: I wish there were more places like this
« Reply #5 on: Oct 30th, 2007, 6:01am » |
Quote Modify
|
ive lost sight in one eye (different reasons) and the sight in the other eye is getting worse, so to a degree i know what your saying..
We are all here for both of you. Hug him tight !
 to both of you
ike
|
|
IP Logged |
If you dance with the devil the devil don't change,
the devil changes you !
|
|
|
Sean_C
Guest
|
|
Re: I wish there were more places like this
« Reply #7 on: Oct 30th, 2007, 6:45am » |
Quote Modify
 Remove
|
|
|
IP Logged |
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: I wish there were more places like this
« Reply #8 on: Oct 30th, 2007, 8:54am » |
Quote Modify
|
Thanks guys 
I will check out those links.
Kevin, you're right. It is a bit different when you are dealing with something like blindness. We have a computer program called Zoom that is for people that with low vision, it enlarges everything, but the whole thing is so frustrating for him he doesn't even want to try to get on the computer.
I guess if there are forums like this for people that are blind or going blind, there are probably is a lot of supporters because of the nature of the illness. Until I found this site, message boards were totally new to me. Hey, maybe there's a Red Bull equivalent for Macular Degeneragtion!
My husband and I really are not the type of people that sit around feeling sorry for ourselves. I was just feeling down about that last night and I really appreciate the support.
Thanks
~Kris
|
| « Last Edit: Oct 31st, 2007, 2:11am by CostaRicaKris » |
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
Emily
New Board Old Timer
Gender:
Posts: 279
|
|
Re: I wish there were more places like this
« Reply #9 on: Oct 30th, 2007, 9:12am » |
Quote Modify
|
Well, it's a good thing, because that is what we are here for. 
I hope the links posted by Rosy help and can provide both you and your husband with support and answers as ch.com has done.
Sending a
Em
|
|
IP Logged |
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: I wish there were more places like this
« Reply #10 on: Oct 30th, 2007, 9:18am » |
Quote Modify
|
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
Gender:
Posts: 1639
|
|
Re: I wish there were more places like this
« Reply #11 on: Oct 30th, 2007, 1:07pm » |
Quote Modify
|
Kris, dealing with one illness in the family is hard enough. Having both of you affected by your own beasts has to be hard to handle. I'm so sorry. Vent away girl.
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: I wish there were more places like this
« Reply #12 on: Oct 30th, 2007, 7:46pm » |
Quote Modify
|
on Oct 30th, 2007, 8:54am, CostaRicaKris wrote:| My husband and I really are not the type of people that sit around feeling sorry for ourselves. |
|
I may be out of line here, but here goes.....What does feeling sorry for yourself have to do with getting support for your husband?
Start clicking those damn links and find a fourm where your husband can talk to people that know what hes going through, damn it!
If you have to sit there and read and type for him so be it, do it! 
Im done now, sorry!
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: I wish there were more places like this
« Reply #13 on: Oct 31st, 2007, 2:11am » |
Quote Modify
|
on Oct 30th, 2007, 7:46pm, Jonny wrote:
I may be out of line here, but here goes.....What does feeling sorry for yourself have to do with getting support for your husband?
Start clicking those damn links and find a fourm where your husband can talk to people that know what hes going through, damn it!
If you have to sit there and read and type for him so be it, do it!
Im done now, sorry!
|
|
Yeah, I know dude, working on it!
Seriously, how do I do that when he is not in the least bit interested, strap him down to a chair? I'm looking into the links to see what I can find. He never even wants to talk about his vision. That's why it was such a big deal that he even said that to me. Maybe I can warm him up to it all by talking to him about what I read on-line.
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: I wish there were more places like this
« Reply #14 on: Oct 31st, 2007, 2:24am » |
Quote Modify
|
Jonny,
Just so you know - I didn't think you were out of line.
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss