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Topic: Hello CH Family (Read 197 times) |
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Ray
CH.com Alumnus
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Ray and Shade
 
 
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Hello CH Family
« on: Jul 31st, 2007, 1:27am » |
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Hello:
I've been staying out of the forums much lately, and I miss you wierdos.
I've been having an upsurge of CH, 6-8 per day. They have been kip 8+ and I've been getting slower and slower response to the Imitrex shots. I've been halving the doses and still going over the recommeded levels for a few days now.
Sleeping is a problem with 2+ attacks overnight and the rest during the day.
I had to go to the mat with the insurance company about oxygen and I should be getting some delivered this week.
No preventive meds have ever worked. About 2 weeks to a Neuro appointment.
Just thought you might like an update and could send some prayers my way.
Wishing you PF days and nights,
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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rolo65
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I'm with ya bro! Get a hammer and smash something, always makes me feel better.
It’s also better than punching your temple, and still gets the aggression out.
I like piggy banks, I write cluster on it and smash the cluster pig!
If you were in Minneapolis I would already have some M-tanks at you house.
Trex don't work for me any more, it's DHE or nothing but O2.
Roland..
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| « Last Edit: Jul 31st, 2007, 1:43am by rolo65 » |
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sldrswyfe
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Re: Hello CH Family
« Reply #2 on: Jul 31st, 2007, 2:00am » |
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Yes, sleeping is one of our greatest challenges...not being able to lie down is another cruel twist to this insidious disease that laughs in our faces.
Lots of prayers to you Ray.
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Hello CH Family
« Reply #3 on: Jul 31st, 2007, 2:21am » |
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Ray,
thanks for the update. 
Lots of prayers are on their way to you. 
PF days & nights, bro!
Hugs,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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DennisM1045
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One wave at a time!
 
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Re: Hello CH Family
« Reply #4 on: Jul 31st, 2007, 7:19am » |
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I'm with you bro. Hang in there and don't let the beast win. I hope you get some relief soon.
-Dennis-
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Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
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barry_sword
CH.com Alumnus
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Mountain Biking Keeps Me Sane
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Re: Hello CH Family
« Reply #5 on: Jul 31st, 2007, 7:24am » |
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Hang in there Ray, vibes heading to you. Hoping for some PF time for you.
Barry
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QUIT SMOKING SEPT. 03 2005,
http://barrysword.blogspot.com
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Annette
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Veni Vidi Velcro
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Re: Hello CH Family
« Reply #6 on: Jul 31st, 2007, 8:15am » |
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Hang in there Ray, sending our love and best wishes and prayers.
Hugs
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Mediocrity knows nothing higher than itself; but talent instantly recognizes genius.
Arthur Conan Doyle
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Charlotte
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Re: Hello CH Family
« Reply #7 on: Jul 31st, 2007, 8:16am » |
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will be praying for you, Ray. Hang in there.
Charlotte
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BarbaraD
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Hugs to ya
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Re: Hello CH Family
« Reply #8 on: Jul 31st, 2007, 8:48am » |
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Ask your neuro about the pred taper. It helps a lot of us. And try the Red Bull at the first sign of a hit.
Melatonin for the night time hits -- but stick with it for a couple of weeks - it takes a while to start working -- 6-15 mg.
Good luck with the O2 -- it's been great for so many of us.
Hope it's a short cycle.
Hugs BD
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What don't kill ya, Makes ya stonger!
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Rosybabe
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"Too much of a good thing can be wonderful!!
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Re: Hello CH Family
« Reply #9 on: Jul 31st, 2007, 12:57pm » |
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I am with Barb on this..
Stay strong. One day at the time. Don't let the beast win!!!!!
Rosy.
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 Believing is just the beginning!
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Guiseppi
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Re: Hello CH Family
« Reply #10 on: Jul 31st, 2007, 1:10pm » |
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Hang on with both hands and sneak in a suker punch on the beast every now and then, praying you catch a break soon.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Ray
CH.com Alumnus
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Ray and Shade
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Re: Hello CH Family
« Reply #11 on: Aug 1st, 2007, 1:03am » |
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Hello Friends:
I'm hanging in, ok, for the time being. It's the same ole, same ole thing here. Little money coming in, big time stresses over that.
Today was a little better, but I've yet to go to sleep. I see the Dr and the Therapist both tomorrow (God grant them wisdom!).
I appreciate the thoughts, vibes, prayers, and whatever else you've got!
I love my CH family -- I'm fighting the good fight and I will not let the beast win. This has been over 20 years of warfare and I am NOT going to quit now.
Herblady, my wife Shade, is the greatest supporter for me, and I am madly in love with her. Without her to help me out, I be doomed!
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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