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Topic: I dont know what to do. (Read 328 times) |
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stephenireland
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Comedic "Clusterhead"
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I dont know what to do.
« on: Jul 30th, 2007, 3:03pm » |
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I really dont know what to do. It seems everything is falling from beneath my feet. Been put on meds for epilepsy as the neurologist seems to think that it might help. I am feeling down, tired and sicky (side effects from tablets) *have a period of 2 hours hyperactivity after taking the Epilim tablets*
Anyway my work are frustrated at me because my Dr has signed me off for another month. My inlaws are doing my head in (living with them as me and my partner couldnt afford to pay our rent because i have been out of work) and now i just recieved news that my DLA claim (disability claim) has fallen through. (contesting this but its hard because i cant seem to concentrate)
**break in write up due to CH attack*
Im going to sign out saying thank you to those who are giving me some help and support over the phone and msn. You know who you are and I dont know what I would do without you. Also thank you to all those who replied to my recent posts and sent me some really supportive pvt messages. also a HUGE thank you to my partner who is the most loving and supportive partner i could ever wish for. Crying now! anyway love to all.
Hugs x
Steve
steve02sw15@hotmail.com
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Stephen Ireland, 23, Portsmouth (UK)
"Thank you for your support everyone"
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Guiseppi
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Re: I dont know what to do.
« Reply #1 on: Jul 30th, 2007, 3:06pm » |
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Hang on tight with both hands guy, you're in the worst peiod right now where your brain starts whispering to you that it's hopeless, IT'S NOT! I'm not sure what's available in your country but I'm sure some of your country folks will pipe up soon.
Everyone of us have been where you are now. It hurts and it sucks. Hopefully we can get some people online who are nearer to you and get you pointed towards a more knowmeldgeable neuro, until then we're always here for you.
Guiseppi
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LeLimey
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Re: I dont know what to do.
« Reply #2 on: Jul 30th, 2007, 6:35pm » |
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Hi Steve
I've just pm'd you my phone number. Give me a call and we'll get you sorted with both benefits meds and work - don't worry, there's a lot of info that's going to be just what you need now and we'll do our level best to help you get sorted. You are not alone with this okay?!
Helen
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Jonny
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Re: I dont know what to do.
« Reply #3 on: Jul 30th, 2007, 6:40pm » |
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Hang in there buddy, your with family now and we will help in any way we can!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Charlie
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Re: I dont know what to do.
« Reply #4 on: Jul 30th, 2007, 8:38pm » |
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Been there Steve. We know what it's like and we understand.
In case you haven't seen it, here is the technique that got me through a lot. The price is right too.
Dr. Wright’s Circulatory Technique:
I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. Think of feeling your pulse in your hand. Increased circulation will result in a reddening and warming of the hands. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
I used to try to imagine I was pushing blood away from my neck into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
Charlie
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sandie99
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Re: I dont know what to do.
« Reply #5 on: Jul 31st, 2007, 2:44am » |
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Steve,
and prayers are headed your way.
Lots of PF wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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sldrswyfe
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Re: I dont know what to do.
« Reply #6 on: Jul 31st, 2007, 11:43am » |
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Hang on Steve. We all do know and understand...no one on this earth could concentrate in the condition you are AT PRESENT...it will pass.
Everyone has given such wonderful sentiments, I can only say Im with them. We are all here for you and to help in any possible way. We care about you.
Thoughtfully, Sherri
Sometimes when it gets really bad for me...I picture all of my friends here standing around me in a circle holding hands, supporting me, picking me up, giving me their energy...it really helps as a focal point when Im in pain...and always lifts my spirits...
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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aloneuk
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Re: I dont know what to do.
« Reply #7 on: Jul 31st, 2007, 12:09pm » |
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get your self on msn, you got my number mate USE IT !
we're all here for you chin up mate, it will pass,
mask is in the post you should get it 2morro
ike
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If you dance with the devil the devil don't change,
the devil changes you !
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Jackie
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Re: I dont know what to do.
« Reply #8 on: Jul 31st, 2007, 2:49pm » |
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Wow, ike...you do good work, Sweetie..... 
Do we know how Steve is doing?
Love to all...
Jackie
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Charlie
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Re: I dont know what to do.
« Reply #9 on: Jul 31st, 2007, 7:45pm » |
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Just wondering Steve:
If one of the epilepsy drugs you are taking is Topomax. It can be nasty as it's known to affect concentration and I found that it made me a bit paranoid. It has some really crappy side effects. Let us know and let your doctor know.
I took the stuff for my epilepsy and while a wonderful drug for seizures, it made me nuts.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sldrswyfe
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Re: I dont know what to do.
« Reply #10 on: Jul 31st, 2007, 8:58pm » |
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Topomax was made in hell. I couldn't tolerate the side effects from the lowest dose. Talk about anxiety, my heart pounding and my thoughts being muddled.
And the Dr's telling me "no one else experiences these side effects"???
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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aloneuk
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Re: I dont know what to do.
« Reply #11 on: Aug 1st, 2007, 1:27pm » |
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on Jul 31st, 2007, 2:49pm, Jackie wrote:Wow, ike...you do good work, Sweetie.....
Do we know how Steve is doing?
Love to all...
Jackie |
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jackie im only sorry i cant do more!
steve im here anytime mate you know that,
ive not heard from you today so check in ok?
ike
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If you dance with the devil the devil don't change,
the devil changes you !
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stephenireland
New Board Newbie
Comedic "Clusterhead"
Posts: 14
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Re: I dont know what to do.
« Reply #12 on: Aug 2nd, 2007, 7:06am » |
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hey all sorry i havnt replied been poorly and down. but hey its a new day...
the inlaws are on at me because im not at work. saying its just a headache which is really winding me up.
The drugs i am on are Epilim and indometacin. They are making me feel worse. Hyperactive at times then when they wear off i feel knackered. Also stomach / heart burn.
other than that i am greatful to be here x love to all x
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Stephen Ireland, 23, Portsmouth (UK)
"Thank you for your support everyone"
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Batch
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FOX 2 - Check 6
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Re: I dont know what to do.
« Reply #13 on: Aug 2nd, 2007, 11:07pm » |
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Are you using O2 to abort the CH attacks?
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, not any before nor after, that’s as lovely as a great airplane. Man has one virginity to lose in fighters, and if it is a lovely airplane he loses it to, there is where his heart will forever be.
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DonnaH
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Re: I dont know what to do.
« Reply #14 on: Aug 3rd, 2007, 12:11am » |
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If you are referring to Inderal (indometacin) as we know it here, it is a migraine drug and isn't of any help, except for a few, for clusterheadaches
Praying you will find something that works.....soon!
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Actual number of posts: 1,000 less than Jonny.
Member of OUCH since mid-1999
Clusterheadaches for 28 years......PF since 1986
dmh114@hotmail.com
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