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Topic: nerve block infusion (Read 160 times) |
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cash5542
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nerve block infusion
« on: Jul 21st, 2007, 12:17pm » |
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After 2 days of dhe injections Lisa is not getting better. It looked like it may be lightenong up but actually hits are coming harder and more frequent today and o2 isn't always working. She called Jefferson and they want her to come up Mon. morning for a nerve block infusion. Any pros or cons? We are so worn out and discouraged. She's already on 1120 Verapamil and 200 Topomax. Prednisone is not an option.
Thanks so much for your support. I don't know how we would have gotten through this past week without you guys!!! I am not sure how I am going to hold up this week.
Charlotte
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| « Last Edit: Jul 21st, 2007, 12:19pm by cash5542 » |
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Lenny
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Re: nerve block infusion
« Reply #1 on: Jul 21st, 2007, 12:39pm » |
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Has she tried the combo.of lithium with the verapamil (it worked wonders for me) as for many others on this site ??? BTW that combo.was the only one that would somewhat tame the beast for me.
Wishing many PFDAN coming her way.........Lennyon Jul 21st, 2007, 12:17pm, cash5542 wrote: She's already on 1120 Verapamil and 200 Topomax. Prednisone is not an option.
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yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead
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Opus
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Re: nerve block infusion
« Reply #2 on: Jul 21st, 2007, 2:36pm » |
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She had too many side effects from the Lithium. A temporary nerve block should do no harm, something permanent like cutting the nerve seems to make thing worse in the end. I would ask about a temporary nerve stimulator. Probably experimental though and wouldn't be covered. If there is proof that the CH's can make her asthma worse, it maybe considered a medical necessity.
I hope Lisa gets a break soon.
Paul
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