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Topic: What did I do? (Read 245 times) |
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jimyhertz
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I'm JUMPING for joy
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What did I do?
« on: Jul 21st, 2007, 8:10am » |
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So I am PF for like two weeks. Wonderful! Then three in one night. The first thing running through my head on the way down the stairs at 0330 is "what the F*@# did I do wrong" I know there is no rhym or reason to this. It's just a thought; a feeling. The way my head works.
Jimy
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: What did I do?
« Reply #1 on: Jul 21st, 2007, 8:19am » |
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The better question is what did ANY of us do?
The answer is NOTHING!
But hang in there, and just be VERY glad for the pain free time that you DID have! Many would LOVE to have that pain free time, myself included!
Remember, don't dwell on the hits ... Dwell and totally enjoy the pain free time that you do have.
NEVER let the beast win, or even THINK he is winning!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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E-Double
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Are we ourselves?
 
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Re: What did I do?
« Reply #2 on: Jul 21st, 2007, 9:10am » |
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It happens.....hang in there and don't sweat it.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Redd
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Re: What did I do?
« Reply #3 on: Jul 21st, 2007, 9:52am » |
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Jimy,
It was great to meet you and your lovely daughter last night. The beast on the other hand... 
No one invited him to the party or the after-party. Here's hoping this was just a fluke and the beast was just pissed that no one invited him to the picnic....
Keep us posted.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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jimyhertz
CH.com Alumnus
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I'm JUMPING for joy
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Re: What did I do?
« Reply #4 on: Jul 21st, 2007, 10:21am » |
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It was great to meet you too, along with your daughter and son. We had a really good time.
Thanks also to all of you who are here.
Time for the parade at 10 if you can make it to Port Washington. The party is all day.
I am JUMPING for joy (my wife thinks that's sarcastic; hmmm). The beast will never get me down. Not a chance.
Thanks again, Jimy
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cynjeep89
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Re: What did I do?
« Reply #5 on: Jul 21st, 2007, 10:39am » |
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Jimy,
You did nothing wrong but I can totally understand why you would ask this question.
During my first years of living with CHs, I tried everything to try to figure out what I was doing wrong.
I eliminated so many foods that I found myself eating only lettuce and drinking water....didn't work.
I quit smoking and avoided alcohol....didn't work.
I stayed home and tried to lead a quiet and stress free life.....didn't work.
Went to see my family doctor, dentist, eye doctor, ENT doctor and anyone else who I thought could help me....didn't work.
Plodded my way thru 6 neurologists, tons of tests, med trials, etc.....didn't work. Thank goodness I finally found a great neurologist.
Guess what I am trying to say is to try to change your way of thinking. Instead of wondering what you did wrong, arm yourself with information of what you can do that is right for you.
I think many here have a ritual for dealing with the beast. Mine is to always have O2 within reach during my cycles. My freezer is loaded with ice gel packs and I always have meds on hand if the cycle is bad enough to need to go on a prednisone taper. The motto, Be Prepared is what I live by.
Focus on the pain free time (which I hope you get lots of) and enjoy it to the max!
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jimyhertz
CH.com Alumnus
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I'm JUMPING for joy
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Re: What did I do?
« Reply #6 on: Jul 21st, 2007, 5:34pm » |
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Thanks cynjeep89,
That is the path I was taking. Constantly questioning; is it this or is it that. I have read enough from you all and the Med journals to know that is not how it works, but it seems there must be something. Even if there is not. It "seems" there should be. What a rediculous circle. I guess if nothing else it keeps things interesting in a twisted sort of way. Back to the party for me now. Bye the way; I believe I did find a great neurologist. She is helping me to arm myself. I don't like the drugs much. It all stems from working around them, but they are the catch-all back up.
Thanks, Jimy
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| « Last Edit: Jul 21st, 2007, 5:42pm by jimyhertz » |
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DonnaH
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DonnaHar's Sweet Polly Purebred-Rememb er Underdog
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Re: What did I do?
« Reply #7 on: Jul 21st, 2007, 11:47pm » |
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Hey Jimi.....glad to meet you and glad that you are here among friends who know what you are going through.
Through shared experience, we have a pretty good handle on what works for most people and what might work for those few that can't find relief in the most common "helps".
Perhaps if you would tell us what you have tried, we might be able to make a few educated suggestions to take to your doc for approval.
There is some relief in meds for many people.....and a lot for others.
My son aborts his cycle with a Prednisone taper after 2 or 3 days days of ch. He's an episodic just as I WAS, with a cycle in the spring and one in the fall, each lasting almost exactly 6 weeks........he goes from 0 to Kip 8 pr 9 within minutes, just as I used to.
Educate yourself by reading the many good articles in the left margin of this page and take this knowledge with you to your doc.
Good luckl
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Actual number of posts: 1,000 less than Jonny.
Member of OUCH since mid-1999
Clusterheadaches for 28 years......PF since 1986
dmh114@hotmail.com
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