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Topic: reminiscing (Read 370 times) |
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
 
 
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reminiscing
« on: May 31st, 2007, 12:14pm » |
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about when I first found this place.
I remember reading and reading for hours upon hours. I cried so many tears. I just could not believe that I was not alone! I could not believe that other ppl were going through what I was, wow, what an incredible feeling. I had to keep wiping my blurry eyes to continue reading. That was before I even knew my grandfather had suffered these horrible headaches! This place truly is such a godsend, a lifesaver, awesome, incredible.
I just was thinking about that today.
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http://www.myspace.com/taraann77
 
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vig
CH.com Alumnus
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CHit Happens
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Re: reminiscing
« Reply #1 on: May 31st, 2007, 3:05pm » |
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If I see where I was then compared to where I am now, I realize I owe a HUGE debt to all here.
thank you
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never, Never, NEVER quit. -Winston Churchill
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Mark C
CH.com Alumnus
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Onward through the fog.
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Re: reminiscing
« Reply #2 on: May 31st, 2007, 3:13pm » |
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This place is truly DIVINE!
Thank you DJ!
Mark
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Click The Flag
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Charlotte
CH.com Alumnus
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I love YaBB 1G - SP1!
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Re: reminiscing
« Reply #3 on: May 31st, 2007, 3:42pm » |
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Finding the place gave me a life line.
Charlotte
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tanner
CH.com Alumnus
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Adopt a POW/MIA I have
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Re: reminiscing
« Reply #4 on: May 31st, 2007, 6:03pm » |
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Ditto
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
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Re: reminiscing
« Reply #5 on: May 31st, 2007, 7:38pm » |
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In all my years online, over 10, I have never been able to stay on a message board beyond a year. It's hard to believe that I found this place 5 years ago now.
I still remember when I first found it, and I read and read and read like a starved dog; then I cried and cried, and I kept calling Clark over and saying "I'm not alone, there are other people, read this, it's my life...."
I actually found it after seeing a special on headaches, in which I believe it was Simon from the UK that had a starring role. I taped it and took it to my doc. and then went online to search.
This place has been a lifeline more than once for me, and the family and friends I have found here are ones that cannot be explained or described. I've never met another group of people that have the generosity, the compassion and caring, of that of clusterheads.
Thanks DJ!
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Racer1_NC
CH.com Alumnus
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"Beeeyul the Cat"
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Re: reminiscing
« Reply #6 on: May 31st, 2007, 7:50pm » |
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In almost 4 years it's been the best of times and the worst of times.
Saved my life.......and raised my blood pressure 10 points.
Bill
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"Everybody's Gotta Learn Sometime."
Eventus stultorum magister.
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: reminiscing
« Reply #7 on: May 31st, 2007, 8:22pm » |
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Theres no place like home....when your a clusterhead/supporter! 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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artonio7
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Re: reminiscing
« Reply #8 on: May 31st, 2007, 8:50pm » |
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on May 31st, 2007, 8:22pm, Jonny wrote:| Theres no place like home....when your a clusterhead/supporter! |
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True... now where are those munchkins Dorthy? 
with warm regards,
Tony and Oscar ... not.. Toto too
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Hope! http://artonio7.com
CH Pain Calendar Free Download
For artwork
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: reminiscing
« Reply #9 on: May 31st, 2007, 9:06pm » |
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on May 31st, 2007, 8:50pm, artonio7 wrote: now where are those munchkins Dorthy?
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I will refrain from my first thought comment on that 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Charlie
CH.com Alumnus
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Happy to be here
  
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Re: reminiscing
« Reply #10 on: Jun 1st, 2007, 1:29am » |
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It's unique and I slobbered when I first found this place even though it had been years since my last full-fledged hit. Reading about so many victims hit hard but the way things are done here, makes me have to stick around. I've been on epilepsy and other message boards but it's just not the same thing. 
It's a wonderful place and they don't kick me off.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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George_J
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White-Breasted Nuthatch
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Re: reminiscing
« Reply #11 on: Jun 1st, 2007, 2:27am » |
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Back in 2000, when I first found this place, I'd already been dealing with CH for 30-some-odd years, so the Black Dog and I had had plenty of time to get used to each other.
Most of you probably know that I've always been a regular, clockwork episodic--CH was just something that came with the spring and fall--part of what I was. Part of what I am. A thread that ran through my life. I always thought of it as a price that I paid for being alive. Maybe others didn't have to pay it, but I did. So be it. In that sense, I guess I can't say that CH.com saved my life--I decided to live with it long ago.
I'd never met, spoken to, or had any contact with anyone else who had CH. It never occurred to me that I would.
So when I found CH.com, I guess I felt more--strange--than anything. There are others. Imagine that. While I was in cycle, I read, and read, and read. Posted very little, if at all.
For a very long time, I did my best to put the cycle behind me when it was over. I think a lot of episodics do that. So I didn't visit after my cycle ended in 2000. During my cycle in 2003, I lurked again, but quit visiting when it ended.
In 2006, I again showed up--but decided to see whether I might stay around to be of some help this time. The advice that's often given here to "pay it forward" really struck home. I'm not a doctor. My experience with meds is quite limited, since I elected years ago to forgo treatment. The only thing I really have to offer is my experience--and my strong belief that CH can not only be survived, but defied. That living is all the sweeter and more intense when it's juxtaposed against a sometime hell that few other people can comprehend.
I'm glad I decided to "come into the open"--I've made some good friends here, so far unmet, and I hope I've actually done a few people some good. If so, it's been worth it.
Not to mention that this place is somewhat....addictive.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Re: reminiscing
« Reply #12 on: Jun 1st, 2007, 2:51am » |
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This is a great place! Best for us clusterheads. 
Thank you all for your support!
Hugs,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
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Re: reminiscing
« Reply #13 on: Jun 1st, 2007, 11:35am » |
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Quote:Not to mention that this place is somewhat....addictive.
Best wishes,
George |
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Very addictive!
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Guiseppi
CH.com Alumnus
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Re: reminiscing
« Reply #14 on: Jun 1st, 2007, 12:29pm » |
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Not that I'm lacking in reasons to keep my wife, but her finding this site helped me regain a (somewhat) normal life again. I will forever owe her, and all of you, for this place. For people like Linda, Charlotte, Kathy and their hugs when I'm down, for everyone I've had the pleasure of chatting with online, and even that a%#hole Johnny for the times he'd tell me to stop being a baby and nut up! This place is a Godsend.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Margi
CH.com Alumnus
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Nuthin like a good neck rub!
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Re: reminiscing
« Reply #15 on: Jun 1st, 2007, 12:44pm » |
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on May 31st, 2007, 7:50pm, Racer1_NC wrote:
Saved my life.......and raised my blood pressure 10 points.
Bill |
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LOL Ditto - I think you and I have raised each other's blood pressure a few times, haven't we? I'm so happy to see your username still active, Bill - I was worried about you because I'd heard you'd left and I would hate to ever see that happen.
Ch.com and DJ were lifelines for us - we landed here 10/31/1998, Mike was in the worst cycle I'd ever seen. DJ told me about oxygen and Doc Jerry told me about Water Water Water and, within a week, I had my husband back. I honestly credit those two men with preventing a suicide.
We'll never be able to give back what we've gotten here.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
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Re: reminiscing
« Reply #16 on: Jun 1st, 2007, 12:48pm » |
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on Jun 1st, 2007, 12:29pm, Guiseppi wrote: and even that a%#hole Jonny for the times he'd tell me to stop being a baby and nut up! This place is a Godsend.
Guiseppi |
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What I found fascnating about this place is that the kicks in the a$$ are actually the most helpful. Jonny and Slammy (where is he anyway??) were instrumental in me still being here today - when I fell into a pity party a few months after finding this place, after Clark had been deployed the 2nd time in a year, and I was trying to take care of 3 small kids on my own, and I was so incredibly wrapped up in the pain rather than life, they gave me the much needed kick in the a$$ and told me to stop whining.
I quickly learned that there are far more important things to concern yourself with than wallowing in self pity because of headaches.
The love and support along with the kicks in the a$$ are what make this place unique. We all need a few moments of self pity every now and then, the folks here ensure that you only take a few moments, and then get on with living.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Racer1_NC
CH.com Alumnus
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"Beeeyul the Cat"
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Re: reminiscing
« Reply #17 on: Jun 1st, 2007, 2:10pm » |
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on Jun 1st, 2007, 12:44pm, Margi wrote:
LOL Ditto - I think you and I have raised each other's blood pressure a few times, haven't we? |
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Indeed. I have learned the past is no indication of the present or future.
Quote:I'm so happy to see your username still active, Bill - I was worried about you because I'd heard you'd left and I would hate to ever see that happen.
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I came as close as anyone can...... Once again, that is the past, I now look to the future.
Bill
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"Everybody's Gotta Learn Sometime."
Eventus stultorum magister.
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Margi
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Nuthin like a good neck rub!
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Re: reminiscing
« Reply #18 on: Jun 1st, 2007, 5:33pm » |
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you know what, though, Bill? Those of us that have been in the trenches slugging it out in the mud actually DO form pretty tight bonds in the process. I think, once we come out of the ditch and see the sunlight, we realize that our goals are shared.
Hell, Ree and I were like cats hissing when we first met and I still, to this day, consider her one of my best friends. Same with Cathy in England and Nani too. We all had some pretty good hair pulling matches in the beginning but now...all folks I'd feel totally comfortable standing back to back with instead of how we started out: toe to toe. Same with Scott (seasonalbloomer) - he had a real 'tude when he landed here and, of course, me being the crank that I am, I had to tell him that . But now, I look forward to our PM conversations and get a huge kick out of his sense of humour (even if his Wings DID shut down my Flames.
You're on my list now too, Bill. My back to back list, not my toe to toe list.
Onwards and upwards, right?
Oh and, I hear ya on the coming close thing...I actually went so far as to delete myself once and then had to go begging, hat in hand to DJ to let me back in. Kinda like Hotel California, huh? You can check out anytime you want but...you can NEVER leave. (with apologies to Don Henley)
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Tara Ann
CH.com Alumnus
New Board Hall of Famer
It's always darkest before the dawn.
Gender:
Posts: 2459
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Re: reminiscing
« Reply #19 on: Jun 1st, 2007, 6:06pm » |
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I think well I know with our pain, lackof sleep at times we become overly sensitive. I KNOW i do. I get down right bitchy and have taken little things to heart a few times, esp in the beginning here. A few times I thought I came across very bitchy and wasn't taken that way at all ... now I"m just babbling  What else is new 
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