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Topic: A New Cluster Attack Movie (Read 1161 times) |
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sandie99
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Re: A New Cluster Attack Movie
« Reply #1 on: Apr 30th, 2007, 4:23am » |
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Tony,
I just watched it. Thank you for your courage.... 
Sanna
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barry_sword
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Re: A New Cluster Attack Movie
« Reply #2 on: Apr 30th, 2007, 6:40am » |
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Tony, that was a very brave thing you did.
Barry
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LeLimey
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Re: A New Cluster Attack Movie
« Reply #3 on: Apr 30th, 2007, 7:16am » |
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Watching it was bad enough, I could feel it too. It breaks my heart seeing someone get hit and its so much worse when its someone I know. 
Thank you Tony
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zanychef
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Re: A New Cluster Attack Movie
« Reply #4 on: Apr 30th, 2007, 7:21am » |
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thanks tony brave thing to do showing your pain
Ian
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plenty of time to sleep now me headaches aint too bad
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BB
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Re: A New Cluster Attack Movie
« Reply #5 on: Apr 30th, 2007, 7:33am » |
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Thank you very much for your courage to share something so intimate with us.
Its amazing that although I have witnessed nearly 1000 of these attacks with Daniel but watching your video clip made me cry just the same.
I sure hope that by bringing our pain openly to the world, we clusterheads and supporters will come a step closer to beating this condition by forging the awareness.
Medical people especially doctors should all watch video clips like this before turning around saying no to oxygen or triptans or whatever it is that their patient needs to keep the pain at bay.
Thank you again Tony. Prayers and lots of love and hugs coming your way from all of us.
Annette, Daniel, Edwyn , Andy and Happy
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Gator
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Re: A New Cluster Attack Movie
« Reply #6 on: Apr 30th, 2007, 8:04am » |
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 It says video removed by user.
Working now. Thanks for putting yourself out there, Tony.
Damn, I hate my dialup. I wish I had a decent connection to view videos online. The only way I can really watch one without total frustration is to download the whole thing to my computer and then watch it. These streaming sites don't allow that. 
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Jackie
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Re: A New Cluster Attack Movie
« Reply #7 on: Apr 30th, 2007, 8:07am » |
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I've seen these attacks many, many times....sure doesn't make it any easier. Bless your heart.
Now.....please, Please, PLEASE...what do we need to do to get you hooked up with some 02?
Love to you,
Jackie
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Jimi
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Re: A New Cluster Attack Movie
« Reply #8 on: Apr 30th, 2007, 9:08am » |
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Thanks Tony for sharing that. It never gets easier watching someone else get hit like that.
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Langa
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Re: A New Cluster Attack Movie
« Reply #9 on: Apr 30th, 2007, 9:09am » |
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Thanks Tony...so sad to watch, but I hope it does help someone. So now I know what I looked like 3 days ago. My head is still sore from that hit.
Jackie mentioned the 02. Ever tried it? I'm about to get a tank myself real soon. 
Langa
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aprilbee
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Re: A New Cluster Attack Movie
« Reply #10 on: Apr 30th, 2007, 9:17am » |
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Heartbreaking
Thank you for sharing....I wouldn't want anyone seeing me like that...again, thanks.... 
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HappyElaine
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Re: A New Cluster Attack Movie
« Reply #11 on: Apr 30th, 2007, 9:21am » |
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I could really feel your pain watching that. I wish I could snap my fingers and make the pain end for all of us.
Please look into the o2. The o2 calms my attacks, and they don't last so long. Its a must to have.
If I can help in any way. Just give let me know.
Thanks for doing this for us, that lets the world know what we have, the pain they can see better. Its hard for doctors, and the world to know if they don't see it.
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George_J
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Re: A New Cluster Attack Movie
« Reply #12 on: Apr 30th, 2007, 9:33am » |
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Tony, I think this was a very courageous thing to do. Thank you.
Best wishes,
George
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Margi
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Re: A New Cluster Attack Movie
« Reply #13 on: Apr 30th, 2007, 10:14am » |
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Oh God....the knee bouncing. How I hate to see the knee bouncing. It's a signal to me that this is pain I can't do anything to stop. This is major league pain over which I am powerless.
Tony, please.....get yourself some oxygen. It helped my Mike to be able to stop the knee bouncing.
BB's right - I think EVERY GP should be made to see this (and Chuck's) video. Thank you for doing this Tony - I'm so sorry you have a reason to be able to star in such a movie.
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ClusterChuck
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Re: A New Cluster Attack Movie
« Reply #14 on: Apr 30th, 2007, 10:35am » |
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on Apr 30th, 2007, 8:07am, Jackie wrote:Now.....please, Please, PLEASE...what do we need to do to get you hooked up with some 02?
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on Apr 30th, 2007, 9:09am, Langa wrote:| Jackie mentioned the 02. Ever tried it? I'm about to get a tank myself real soon. |
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on Apr 30th, 2007, 9:21am, LadyElaine1 wrote:| Please look into the o2. The o2 calms my attacks, and they don't last so long. Its a must to have. |
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on Apr 30th, 2007, 10:14am, Margi wrote:| Tony, please.....get yourself some oxygen. It helped my Mike to be able to stop the knee bouncing. |
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See Tony? I am not the ONLY nag about oxygen!
For everyone else: Tony has received a regulator for an "E" tank. A regulator for an "M" tank should be arriving today, or so. A clustermasxTM should be arriving any day, too.
NOW he just has to get the oxygen!
Chuck, the O2 nag ....
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Rosybabe
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Re: A New Cluster Attack Movie
« Reply #15 on: Apr 30th, 2007, 12:15pm » |
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Tony, I was watching the video and silently crying for you and I did not realize my little girl was behind me, she came because she heard you crying and she said:
"Look mami, he is having one of those, he needs someone to hug him, can we hug him mama?"
It is so sad that she had to witness this with me and now she realizes there are others like me out there and all she wants to do if give hugs to make us feel better...
I wish a hug was all we needed...
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Maffumatt
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Re: A New Cluster Attack Movie
« Reply #16 on: Apr 30th, 2007, 12:30pm » |
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I hate this shit in so many ways. Take care man.
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JeffB
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Re: A New Cluster Attack Movie
« Reply #17 on: Apr 30th, 2007, 1:05pm » |
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I'm so glad I'm fucking pain free right now.
Way to go, Tony!
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The mad viking
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Re: A New Cluster Attack Movie
« Reply #18 on: Apr 30th, 2007, 1:30pm » |
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on Apr 30th, 2007, 10:35am, ClusterChuck wrote:
See Tony? I am not the ONLY nag about oxygen!
For everyone else: Tony has received a regulator for an "E" tank. A regulator for an "M" tank should be arriving today, or so. A clustermasxTM should be arriving any day, too.
NOW he just has to get the oxygen!
Chuck, the O2 nag ....
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You better do what Chuck is ORDERING you to do Tony,or i am going to be really NASTY when you come here in september
Svenn
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artonio7
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Re: A New Cluster Attack Movie
« Reply #19 on: Apr 30th, 2007, 2:09pm » |
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Thank you all for your kindness... every warm wish is being sent back to you in double doses. I'm so very sorry if my hit was disturbing to watch
Alright already with the o2... sheesh. You are all such wonderful NAGS and I love you to pieces for it. I guess it doesn't take a doctor's degree to prescribe the right treatment. Now... with the exception of BB... if we can only get the rest of the medical world in line. I'm still having issues with my GP and Neurologist in regards to the Prescription for o2. I hope to have it resolved soon. Perhaps there will come a day when prescribing o2 for CH is as common as prescribing water for thirst.
We still have a long way to go in the battle.
For those of you with dial-up I made a tiny version that can be downloaded. It's only about 6 MB as opposed to the 23 MB file on you tube.
http://artonio7.com/clusterheadache-40Kbps.mov
Thank you again and please feel free to share the link to the video with anyone who needs a little enlightenment.
with warm regards,
Tony
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midwestbeth
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Re: A New Cluster Attack Movie
« Reply #20 on: Apr 30th, 2007, 2:13pm » |
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Tony,
Thanks for posting that. The rocking, holding a towel to your head and crying is so very familiar to me.
Now time for me to nag a little bit more. GET SOME 02!!!
OK?
The next video you post better be of you huffing 02 and aborting the ch before it gets unbearable  .
Beth
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Yorky
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Re: A New Cluster Attack Movie
« Reply #21 on: Apr 30th, 2007, 3:28pm » |
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hey tony..you had no props in ya video ?
o2 ......have you tried ice to the head ?
well done bro.
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Turts
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Re: A New Cluster Attack Movie
« Reply #22 on: Apr 30th, 2007, 3:48pm » |
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reality that i am not the only one has hit home.
pictures 1000:1 over words
thanks for sharing with us at CH.com and more importantly the world.
thanks Tony
Turts
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Guiseppi
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Re: A New Cluster Attack Movie
« Reply #23 on: Apr 30th, 2007, 3:49pm » |
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I still haven't watched one of these to the finish. At the 3 minute mark, when you do the classic "both arms around the head wrap" I shut it off. It's just too damned real. Be nice if more people from the medical field watched these. Thanks.
And by the way.....OXYGEN! love ya man.
Guiseppi
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Mosaicwench
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Re: A New Cluster Attack Movie
« Reply #24 on: Apr 30th, 2007, 4:31pm » |
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on Apr 30th, 2007, 10:14am, Margi wrote:| Oh God....the knee bouncing. How I hate to see the knee bouncing. It's a signal to me that this is pain I can't do anything to stop. This is major league pain over which I am powerless. |
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Margi - from one supporter to another I know exactly what you mean about that knee bouncing . . . .
I applaud you Tony, and Chuck, for letting us witness your pain. It's hard enough watching someone I know and adore be attacked but harder than I ever imagined to watch someone I don't know well.
There HAS to be a special place in heaven for all of you sufferers. There certainly can't be a hell worth speaking of because you're living in it daily.
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The difficulties of life are intended to make us better, not bitter. ~Author Unknown
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