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   Author  Topic: I Spoke 2 Soon  (Read 212 times)
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I Spoke 2 Soon
« on: Apr 15th, 2007, 11:19pm »
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The attacks have restarted. I've only had 2 attacks so far, both waking me out of sleep the last 2 nights ( and they were very bad) . Imitrex injection worked for each attack in about 10 minutes.
 
I know their going to get worse and more frequent. They always do.   Undecided  Here we go again   Roll Eyes
 
The last Histamine treatment worked great for about 8 weeks. I can't complain. That was awesome !
 
Since I don't want to go into the hospital again right now, I've chosen to do another steroid burst until after next weekend. If they return, I'll go in and do more Histamine.
 
I'm not gonna let this ruin my plans for next weekend !! ( ARCA Race )   Wink
 
PF wishes
 
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Re: I Spoke 2 Soon
« Reply #1 on: Apr 15th, 2007, 11:45pm »
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Sorry they are back my friend./  Hope the steroids will give you a longer break.
 
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Re: I Spoke 2 Soon
« Reply #2 on: Apr 15th, 2007, 11:46pm »
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Sad
 
Sorry to hear.  
 
Keep after it, Michael.  You'll twist his tail yet, for good.
 
Best wishes,
 
George
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Re: I Spoke 2 Soon
« Reply #3 on: Apr 16th, 2007, 12:26am »
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Sorry the shit has hit the fan again pal. Keep your chin up. I pray that you get some immediate and long lasting respite from this beast.
 
with warm regards,
Tony
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Re: I Spoke 2 Soon
« Reply #4 on: Apr 16th, 2007, 1:20am »
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Kick some CH a$$, Michael.
 
You know you can do it!
 
Much love and some major vibes headed your way, darlin.    Kiss
 
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Re: I Spoke 2 Soon
« Reply #5 on: Apr 16th, 2007, 1:23am »
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Sorry the bastard is back, but like you said, you got about 8 glorious, pain free weeks out of it.  I'd buy THAT for a dollar!  LOL
 
Hoping the steroid burst kicks it back into the closet for you.
 
Pardon my CRS, but it seems I remember you talking about checking into DBS.  What ever came of that?  I'd try to go back and look it up, but with this damned dial-up the search page is more frustrating than useful.
 
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Re: I Spoke 2 Soon
« Reply #6 on: Apr 16th, 2007, 8:05am »
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So sorry US..good point made by gator, try to remember the pain free weeks...it could be an omen.  Im praying for you.
 
To me, eight weeks without a hit is something I cannot even understand.  Please don't take that in any way minimizing your plight.  It gives me hope.
 
Anyway, I hope the prednisone works...it used to work for me...for about six months...God it was unbelievable. Hoping it ALWAYS is effective for you.
 
Thoughtfully, Sherri
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Re: I Spoke 2 Soon
« Reply #7 on: Apr 16th, 2007, 12:13pm »
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on Apr 16th, 2007, 1:23am, Gator wrote:

 
Pardon my CRS, but it seems I remember you talking about checking into DBS.  What ever came of that?  

 
I emailed Dr. Rozen @ MHNI and after discussing it with him, he pointed me to Dr. Black @ The Mayo Clinic. Dr. Black said that they had done it twice for unilateral chronic cluster headache patients. Neither patient found relief and they were all disappointed.   Undecided   I don't remember him mentioning side effects or complications.  
 
And thanks for all the support everone !  Smiley    
I took my first dose of Prednisone last night. It was a large dose ... 80mg. I'll take 60mg for a few days now then continue decreasing until next week.  It's already helped to ... I was able to sleep all the way through the night without any hits  Smiley
 
PF Wishes all around
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Re: I Spoke 2 Soon
« Reply #8 on: Apr 16th, 2007, 2:42pm »
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Sorry to hear the beast is back visiting you , Kick the door shut and do not let it in!! Hope you find something to make it go away soon. PF wishes your way!! Smiley
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