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Topic: I AM PISSED OFF.... (Read 748 times) |
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sldrswyfe
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I AM PISSED OFF....
« on: Apr 14th, 2007, 11:20am » |
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I have never had a pity party re clusters and the profound effect it has had on my life...but I've had many "pissed off" parties...and still do.
Now that Im in this community...Im experiencing anger. Anger at the people who didn't care, or believe me, who contributed to the near total destruction of all that I love. I will not go into depth...but my life was destroyed by just a few individuals who didnt have the patience to give me a little time to work things out having this conditon...nor did they care...and WITNESSED me having many attacks. Watching Chuck's video during an attack...I just wept and wept and wept....AAAH. I am livid...does anyone else ever feel this way or do I need anger management.............SHERRI 
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"Great spirits have always found violent
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"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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Lobster
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Re: I AM PISSED OFF....
« Reply #1 on: Apr 14th, 2007, 11:27am » |
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If ever there were an affliction that would warrant a 'commune' type of community it would be CH, IMO.
Most people would simply prefer not to deal with us.
So we should all just party together. Picture a 365-day-a-year DavCon.
/I vote for Wisconsin
//and the name 'Hedonism North' 
///and a three-pipe plumbing system... hot/cold/O2
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| « Last Edit: Apr 14th, 2007, 11:27am by Lobster » |
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Redd
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Re: I AM PISSED OFF....
« Reply #2 on: Apr 14th, 2007, 11:33am » |
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I could see it...
I wonder how much they would want to buy Schmeekle Reserve? 
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Callico
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Re: I AM PISSED OFF....
« Reply #3 on: Apr 14th, 2007, 11:54am » |
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Sherri,
I understand your feeling, but I don;t think people for the most part are malicious in their treatment of us, they just don't understand and most are to lazy or to self-centered to care to find out. We suffer a malady that has no outward symptoms other than when we are going through an attack, and many think we are putting on an act or at the least dramatizing the pain for attention.
Sometime watch people around someone in a wheelchair. They will walk out of the way to avoid having to speak to the person, or will totally disregard him/her if in a group. People tend to be uncomfortable around that which they don;t understand or relate to.
Turn your anger into something productive or it will eat you up. Use it as a fuel to drive you to educating the public and to see others who have similar situations and reach out to them in support.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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E-Double
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Re: I AM PISSED OFF....
« Reply #4 on: Apr 14th, 2007, 12:04pm » |
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on Apr 14th, 2007, 11:54am, Callico wrote:Sherri,
....... they just don't understand and ........ We suffer a malady that has no outward symptoms other than when we are going through an attack......
Turn your anger into something productive or it will eat you up. Use it as a fuel to drive you to educating the public and to see others who have similar situations and reach out to them in support.
Jerry
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Perfect!
Now go help others 
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I can't believe that I have to bang my
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But the blows they have just a little more
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ClusterChuck
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Re: I AM PISSED OFF....
« Reply #5 on: Apr 14th, 2007, 12:15pm » |
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Sherri, that is all in the past, hun. You are with family now. Let it go. We understand ... ...
BTW, I think you are just being a drama queen. After all, it is JUST a headache ...
    
Damn wimminz!!! WDGCH (Women Don't Get Cluster Headaches)
Chuck
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Thomas Fuller
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sldrswyfe
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Re: I AM PISSED OFF....
« Reply #6 on: Apr 14th, 2007, 12:41pm » |
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Hey Chuck...suck an egg. I had a feeling I would have to clarify....what I have I lost will take time to get over. Im not lying awake at night or kicking dogs...I must feel this in a healthy way...thirteen years is a long time...I am very passionate period. And about educating the world re CH'S...very much so. I do it at EVERY OPPORTUNITY THAT PRESENTS ITSELF and do it anyway..to possible save someone from jumping out of a window during an attack or the frustration and solitude...we don't have to be alone anymore. What a blessing to be able to say that....I love all of you. S
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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sldrswyfe
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Re: I AM PISSED OFF....
« Reply #7 on: Apr 14th, 2007, 12:46pm » |
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I have read an account of an individual jumping out of a window during a hit...I can see why certainly...cant' say I havent thought of pain diversion at least a thousand times...but that's exactllly what I hope we...WE...will put to an end...and just KNOWING all of you...helps stop the self mutilation and destruction. Thank God.
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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JeffB
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Re: I AM PISSED OFF....
« Reply #8 on: Apr 14th, 2007, 12:48pm » |
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I say f_ck 'em! 
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" It's been my experience that people who have no vices have very little virtues."
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pieface_49
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Re: I AM PISSED OFF....
« Reply #9 on: Apr 14th, 2007, 12:55pm » |
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Sherri, one thing I do know is my attitude changes when in cycle. Things change chemically and I guess I could say I am a biatch. Quick to complain. I live by myself and keep to myself, especially when in cycle. On the other hand, I have to work and am around people while in cycle, 9 hours a day. I am sure they get sick and tired of hearing me. They know I suffer and have endured hits at work, sometimes leaving not to be around others for during a bad hit. I have more run-ins with people while in cycle. Sometimes during those run-ins, I become overly boisterous (outspoken). Two weeks out of cycle, my attitude change is very noticeable. I am so much calmer, which is an understatement.
During cycle we were asked where I work to come up with ideas to save the company money. One of my suggestions was "Evaluate Upper Level Salary". Needless to say, no one would even comment on that post out of 30,000 or so employees.
Pieface_49 <------ Lucky to have a job :O
Donnie
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sldrswyfe
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Re: I AM PISSED OFF....
« Reply #10 on: Apr 14th, 2007, 1:02pm » |
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Hey Lobster...
I love your suggestions...especially "three pipe plumbing"...I actually pondered having o2 put into the house behind the walls...just lilke at the hospital..with the valves coming out of the wall...you'd just have to have your mask handy (when WILL these o2 companies get that 10-15 liters of air CANNOT effectively come out of a canula????Duh.)But it is a really nice thought to live in a community where WE'RE THE MAJORITY...instead of the minority.... 
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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Brew
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Re: I AM PISSED OFF....
« Reply #11 on: Apr 14th, 2007, 1:08pm » |
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on Apr 14th, 2007, 12:48pm, JeffB wrote:| I say f_ck 'em! |
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Sometimes you can really come off as an ass!
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Always remember that you're unique, just like everyone else.
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sldrswyfe
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Re: I AM PISSED OFF....
« Reply #12 on: Apr 14th, 2007, 1:10pm » |
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Donnie,
That suggestion is hysterical "Reevaluate ...", and Im sure you are edgy...when anyone doesnt feel well...whether it's CH'S or not...and some people seem to never feel good....  I am chronic...so if I am having a particulary bad day or week...I go into seclusion. I have learned to tell people Im not having a good dayl, etc....however Im not constantly edgy...it's part of my everyday life to adapt to this condition..Im a vet by now...but PMS...I cant seem to master... 
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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Brew
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Re: I AM PISSED OFF....
« Reply #13 on: Apr 14th, 2007, 1:20pm » |
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Sherri - I have learned, over the 16 years I have entertained the beast, that anger - for the most part - is wasted energy. Especially when it's anger generated by hatred of others. By allowing them to have this effect on you, it puts them in control. YOU are the one who should be in control of your emotions.
As difficult as it seems sometimes, the natural anger you feel toward another should be channelled into something positive. Anything positive. Allow yourself to feel the anger deeply - without reacting to it - then, once you realize what's happening, tell yourself that you will not allow another to have this kind of control over your soul.
Then clean the bathroom. Or the kitchen. Or go to a batting cage and practice your swing. Anything to channel the anger into something positive.
Otherwise, they win.
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ClusterChuck
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Re: I AM PISSED OFF....
« Reply #14 on: Apr 14th, 2007, 1:25pm » |
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VERY well put, Brewcrew, buddy!!!
on Apr 14th, 2007, 1:20pm, Brewcrew wrote:| Then clean the bathroom. Or the kitchen. |
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Now if you're looking for kitchens, bathrooms, etc, to clean, the key to my home, is under the door mat ...
Chuck
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Yorky
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Re: I AM PISSED OFF....
« Reply #15 on: Apr 14th, 2007, 1:49pm » |
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on Apr 14th, 2007, 11:20am, sldrswyfe wrote:I have never had a pity party re clusters and the profound effect it has had on my life...but I've had many "pissed off" parties...and still do.
Now that Im in this community...Im experiencing anger. Anger at the people who didn't care, or believe me, who contributed to the near total destruction of all that I love. I will not go into depth...but my life was destroyed by just a few individuals who didnt have the patience to give me a little time to work things out having this conditon...nor did they care...and WITNESSED me having many attacks. Watching Chuck's video during an attack...I just wept and wept and wept....AAAH. I am livid...does anyone else ever feel this way or do I need anger management.............SHERRI |
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sod them sherri......how can you explain to someone......about a headache (they all get headaches
my guess is , your anger is the same as mine (we will never get our cause across......because they are called headache , so people do not understand our pain.
it must get posted every week, someone venting "why is it termed just a headache...ffs"
ps sorry to hear about your hubbys extended service (it will fly by....now that you are home with us (  )
HE WILL BE SAFE.
anyway its back to music, to try and explain your anger....AT THE NON BELIEVERS.
http://www.youtube.com/watch?v=4GHyXAkoHb4
dont get mad cause they wont listen (i had my 1 , hospital trip, last week.....i left feeling humiliated, and i still do....aaaarrggggghhh im friggin angry now
the words in this song , listen 4
"in the end...its only..round and round"
dont try to explain....you are bashing your head against a brick wall
i do beleive if we could acheve, a better term for our condition...then...
maybe if it was called ? vasculor/hyperthalamus?......
then maybe people would under stand ?
like some one said ....f..k emm.
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BarbaraD
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Re: I AM PISSED OFF....
« Reply #16 on: Apr 14th, 2007, 2:21pm » |
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Sherri,
I'm not a nice person to be around when I'm having a bad day (I'm chronic so I have them often), but I've learned to just ignore "nasty" people - they're just stupid, ignorant, pigheaded.... oh well, you get the idea.
It is hard to explain our condition (even after someone sees us getting hit) to someone who's not experienced it firsthand. My son and daughter-in-law (who is an RN for goodness sakes) who've seen me go thru this for years don't have a clue -- just one of Mom's little headaches - oh by the way mom, what's for dinner?  I've quit even getting mad at them - not worth the effort.
People are just not comfortable around illness. When we know someone has cancer and is terminal, we tend to stay away from them because it makes US uncomfortable - never mind that they might need the support. When my brother was dying with cancer we talked about this a lot and had a good laugh (my brother and I both had a wierd sense of humor) about it. He used to laugh about being contagious. His best friend was still trying to trade baseball cards with him and he was still holding out for high prices. But most of his friends were at the funeral, and were sad there, but forgot to visit while it would have benefited him. It's just human nature.
Here we can laugh at ourselves and give support to each other and know what we're talking about. And here we know we're not alone....
Hugs BD
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Rosybabe
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Re: I AM PISSED OFF....
« Reply #17 on: Apr 14th, 2007, 2:35pm » |
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I think I am passed the point where I don't care if they care ...as long as they are out of my way when I am having a hit, like when they ask you if you already took some tylenol for the pain or they mention that they hurt like that before (????)...make me wish they all dissapear at once...
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sldrswyfe
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Re: I AM PISSED OFF....
« Reply #18 on: Apr 14th, 2007, 2:47pm » |
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Thanks York...Thanks Barb...I want you to know that having you all is HUGE...a huge relief...and it doesnt seem as important anymore that the "non-afflicted" have to understand...as long as someone does. The mere thought of explaining the pain and how intense and frightening...exhausts me. Knowing, to the extent at just how hurt and angry I am, is new to me. I knew I was angry and hurt...just not how badly. Something has brought it to the surface...Im just glad I can tell this to my "species"...who have the inclination to actually know what the hell I mean. I am not a cry baby, I am not stupid...I am very capable, competent and intelligent. I am tired, when it came to CH's, being thought of as otherwise. The familiar look....I can HEAR what they're thinkig by now. And it's good to know you all experience the same. And Barb...being asked "hey what's for dinner??", etc. after a bad hit...as if you stubbed your toe. If I want attention and affection...I have no problem coming out and asking...and they know that...I didn't need an ice pick to the forehead as an excuse. Thanks for all of your support....My sincere thanks....Sherri
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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Yorky
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Re: I AM PISSED OFF....
« Reply #19 on: Apr 14th, 2007, 4:51pm » |
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I knew I was angry and hurt...just not how badly. Something has brought it to the surface...Im just glad I can tell this to my "species"...who have the inclination to actually know what the hell I mean. I am not a cry ..baby
what do you mean "species" female ?
http://www.youtube.com/watch?v=r5Cz8_VSwU8
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today is a gift.....thats why it is called the
present.
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JeffB
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Re: I AM PISSED OFF....
« Reply #20 on: Apr 14th, 2007, 4:53pm » |
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P.S.
The Brewers suck!
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Skyhawk5
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Re: I AM PISSED OFF....
« Reply #21 on: Apr 14th, 2007, 6:03pm » |
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I think it makes us so angry because we tend to believe that others should and could understand if they wanted to. But in reality what we suffer is just unimaginable even to us. Just another ugly fact of life.
PFDNS to all, Skyhawk5
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| « Last Edit: Apr 14th, 2007, 11:38pm by Skyhawk5 » |
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Brew
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Re: I AM PISSED OFF....
« Reply #22 on: Apr 14th, 2007, 6:05pm » |
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on Apr 14th, 2007, 4:53pm, JeffB wrote:
P.S.
The Brewers suck! |
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If they don't make the playoffs this year, I will be agreeing with you.
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sldrswyfe
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Re: I AM PISSED OFF....
« Reply #23 on: Apr 14th, 2007, 7:57pm » |
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York by "species"...I mean clusterheads...who other than you guys could understand? Absolutely no one. And Hawk...that's an excellent point...you are right...it is unimaginable and unthinkable....even to me...and I feel it nearly every single day. The important thing is I have a whole bunch of people that DO...finally. That is such a weight off of my shoulders...I have already found comfort in all of you...when I was having a day of being misunderstood and told it was me...blah, blah, blah. It's better to just let it go...I know that...it just really feels bad sometimes. I'll get over it. Love all of you...S
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"Great spirits have always found violent
opposition from the mediocrities." -Einstein
"I'll DIE on MY FEET, before I LIVE on MY KNEES"...thanks Jonny...that meant alot
"Oh, say does that star spangled banner yet wave?"....Your damn right it does.
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Mosaicwench
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Re: I AM PISSED OFF....
« Reply #24 on: Apr 14th, 2007, 8:08pm » |
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on Apr 14th, 2007, 1:20pm, Brewcrew wrote:
Then clean the bathroom. Or the kitchen. Anything to channel the anger into something positive.
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Then how come our kitchen and bathroom are still dirty?
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The difficulties of life are intended to make us better, not bitter. ~Author Unknown
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