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   Im here to tell ya!
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   Author  Topic: Im here to tell ya!  (Read 334 times)
Jonny
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Im here to tell ya!
« on: Mar 23rd, 2007, 8:31pm »
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or at least im telling on as many sites as I can, chaulk up another website that I will flood with CH info.
 
You have all seen this vid its just on another site, but its now reaching thousands more.
 
http://www.livevideo.com/video/0788A8F375E04B7DA30543F4572253D1/cluster- headache.aspx?m_tkc=1889219
 
As soon as I get my camera back from the shop I will be making videos. I think I have some real good stories after 32 years chronic Grin
 
I will also be posting the same videos on youtube.com.
 
Seeing Rextangle out there gave me the push that I needed to get the word out about CH.........there are millions of people watching these sites, even doctors!
 
If you have a digital camera you could be of help, think about it!
 
..........................................jonny
 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Brew
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Re: Im here to tell ya!
« Reply #1 on: Mar 23rd, 2007, 9:08pm »
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Go, Mr. Ambassador, go. Grin
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Re: Im here to tell ya!
« Reply #2 on: Mar 23rd, 2007, 9:44pm »
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I said it before and I'll say it again...
 
Youtube, Liveleak, Myspace - many avenues to educate and get the word out about CH.  
 
If I can get my shitty webcam to record, I'd be glad to contribute.
 
Peace,
Carl
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Re: Im here to tell ya!
« Reply #3 on: Mar 23rd, 2007, 10:05pm »
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Alright Jonny!!!
 
 
The wheels are turning, and no hair caught in the spokes his time.    Grin
 
 
Wild idea bro    Wink
 
 
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Re: Im here to tell ya!
« Reply #4 on: Mar 23rd, 2007, 10:17pm »
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Ahhhhhhh yes. The Drip. One of my favorites. Been awhile since I watched it.
 
 smokin
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Re: Im here to tell ya!
« Reply #5 on: Mar 23rd, 2007, 10:26pm »
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Good on you Jonny !
 
I will see what I can do with the clips I have got, but first I have to ask the "actor"  for permission  Tongue  Cool
 
Spread the words: CH sucks !  
 
Annette
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Jonny
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Re: Im here to tell ya!
« Reply #6 on: Mar 24th, 2007, 2:14pm »
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The following is from a dude named Danny....this came through my Youtube account, but he also contacted me through my Livevideo account saying he had never talked to a cluster head.....I gave him directions to here, so keep an eye peeled Grin
 
"Good job on getting the ball rolling here on youtube about clusters. So many people have no clue about the most painful condition known to humans. How many times have you had a doctor or nurse tell you to take Tylenol? I was at a hospital in New York, and a doctor told me that a man with cluster headache who was given Tylenol for pain in the E.R. went out to his car and took his own life with a pistol. This is a crime in my opinion."
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Re: Im here to tell ya!
« Reply #7 on: Mar 24th, 2007, 3:21pm »
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on Mar 24th, 2007, 2:14pm, Jonny wrote:
The following is from a dude named Danny....
"a doctor told me that a man with cluster headache who was given Tylenol for pain in the E.R. went out to his car and took his own life with a pistol."

 
Well, this doctor had to have been lying to the guy.....just ask Don  Roll Eyes
It couldn't have *just* been the clusters. He was probably married or had some other contributing factor too.
 
Good job Jonny...really.
 
Bob
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Re: Im here to tell ya!
« Reply #8 on: Mar 24th, 2007, 4:04pm »
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Quote:
Well, this doctor had to have been lying to the guy.....just ask Don    
It couldn't have *just* been the clusters. He was probably married or had some other contributing factor too.

 
Your finally getting it.
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