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Topic: meds losing potency (Read 275 times) |
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jaynik
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meds losing potency
« on: Feb 25th, 2007, 12:06pm » |
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hello all, going thru a rough stretch right now, my dhe seems like its starting not to work and right now for about the first 1 hour and a half after i get up everyday is agony.....is this normal for meds to stop working after awhile, i have been taking injections everyday for about 7months now. is it common to build up resistence to ch meds?
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Karla
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Re: meds losing potency
« Reply #1 on: Feb 25th, 2007, 12:36pm » |
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I did 3 x to three different meds (oxygen, indomethacin, lithium).
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Karla
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jaynik
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Re: meds losing potency
« Reply #2 on: Feb 25th, 2007, 12:39pm » |
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am on o2 as well, scared of the lithium, heard it has a lot of side effects, my neuro wants to put me on some kind of steroid but i am scared that it won't have immediate effect and will have to deal with the ch beast everyday until it kicks in
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Jonny
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Re: meds losing potency
« Reply #3 on: Feb 25th, 2007, 1:00pm » |
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Lithium aint so bad, I took it everyday for 14 years.....im still here 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Karla
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Re: meds losing potency
« Reply #4 on: Feb 25th, 2007, 1:09pm » |
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If you read the side effects list for all meds they don't look very good and can be downright scarry. I took lithium for a couple of years and felt very good on it physically and mentally. It is an older medicine and the docs know alot about it and know what kind of problems to keep an eye out for. I never had any problems on it at all.
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Karla
suffer chronic ch
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jaynik
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Re: meds losing potency
« Reply #5 on: Feb 25th, 2007, 1:11pm » |
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wow, that's a long time, i take it you are chronic, i've been having ch's since around '92, but they were seasonal, now i'm 37 and get these blasted things everyday, and i work at for disney, i am a travel agent so i have to sound happy and cheerful, imagine that while having an attack.....how do you deal with it?
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jaynik
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Re: meds losing potency
« Reply #6 on: Feb 25th, 2007, 1:13pm » |
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thanks for the info karla...i love this site, it gives me info from people that actually deal with it, not just info from docs that half the time think you are crazy
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Jonny
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Re: meds losing potency
« Reply #7 on: Feb 25th, 2007, 2:00pm » |
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on Feb 25th, 2007, 1:11pm, jaynik wrote:
I was chronic for 31 years, the best way I dealt with it was to work for myself. I started a drywall company that lasted about eight years, when I folded that I started a welding company....which was 15 years ago and still going.
Try the Lithium, it stopped 85% of the headaches from ever breaking through......for me anyways!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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jaynik
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Re: meds losing potency
« Reply #8 on: Feb 25th, 2007, 2:26pm » |
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i'm kinda sad that the dhe is losing effect, it was great cuz as soon as i started getting an attack i would take it and the headache would go away in about 5 min....not gonna miss the injection part though, that 22 gauge needle hurts
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Gator
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Re: meds losing potency
« Reply #9 on: Feb 25th, 2007, 3:04pm » |
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Ain't ch wonderful? NOT! Steroids, such as Prednisone, are a wonderful, short term (or Transitional) med. It usually stops the attacks dead in their tracks while another preventative has time to kick in and then the pred is tapered off. When used properly, it's not so bad.
What other meds have you tried? Verapamil is the first line preventative for most episodics. Lithium is probably the best prevent for chronics. There are other meds that work to prevent the attacks as well.
Here is a link to read and print and take to your doctor. It describes preventative, transitional, abortive and surgical treatments for CH.
http://www.brightok.net/~mnjday/chtherapy.pdf
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jaynik
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Re: meds losing potency
« Reply #10 on: Feb 25th, 2007, 3:11pm » |
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thanks for the info gator, the only other thing i've tried other than dhe and o2 is imitrex....the imetrex stopped ch dead in tracks but it came back several hours later.... i did a little research on line and liked deep brain stimulation idea, but that involves putting a pacemaker in the head and not sure i like the idea of having my head cut open, sounds like a last resort but as all of you know sometimes the thought of never having another attack seems worth it
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froggy
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Re: meds losing potency
« Reply #11 on: Feb 25th, 2007, 7:43pm » |
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Jonny - I like the fact that you say you used to be chronic. If it's not too personal, what is your preventative now if any?
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froggy
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fubar
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Re: meds losing potency
« Reply #12 on: Feb 26th, 2007, 1:11pm » |
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It's a little known fact... Jonny never had CH. It was his hair that gave him headaches, and when he cut it all off, the headaches went away. 
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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