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BIX
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has any one tried Marinol, for sleep during attacks? I currently have verapamil for everyday use, with topamax. I also use O2 for abortive, and amerge, zomig, frova, prednisone and migrinol, not all at once but when needed. I don't mix them though. I have recently started using Marinol, to help me sleep through the night when I am in full on cluster mode. I have found that it works quite well to help me not get ha at night, and everyone knows those are the worst. I am wondering if anyone else has tried this route.
Bix
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thomas
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Re: Marinol
« Reply #1 on: Feb 1st, 2007, 1:35pm » |
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No, but I have had great success with melatonin.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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George_J
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Re: Marinol
« Reply #2 on: Feb 1st, 2007, 1:52pm » |
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Never heard of it, so...
From http://www.rxlist.com/cgi/generic2/drona.htm :
"Dronabinol is a cannabinoid designated chemically as (6aR-trans)-6a,7,8,10a-tetrahydro-6,6,9-trimethyl-3-pentyl-6H-dibenzo[b,d]pyran-1-ol.
Dronabinol, the active ingredient in MARINOL (dronabinol) Capsules, is synthetic delta-9-tetrahydrocannabinol (delta-9-THC). Delta-9-tetrahydrocannabinol is also a naturally occurring component of Cannabis sativa L. (Marijuana). "
Edited to add: Perfectly legal by prescription, by the way.
Best,
George
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| « Last Edit: Feb 1st, 2007, 2:07pm by George_J » |
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thomas
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Re: Marinol
« Reply #3 on: Feb 1st, 2007, 2:54pm » |
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I would use extreme caution in taking a cannabinoid while in cycle.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Woobie
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Re: Marinol
« Reply #4 on: Feb 1st, 2007, 2:56pm » |
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what is it thomas?
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Kevin_M
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Re: Marinol
« Reply #5 on: Feb 1st, 2007, 3:03pm » |
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on Feb 1st, 2007, 1:32pm, BIX wrote:| I have recently started using Marinol, to help me sleep through the night when I am in full on cluster mode. |
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It would seem unlikely though to be prescribed Marinol as a sleep aid when it usually used for: (per the rx link)
MARINOL Capsules is indicated for the treatment of:
1. anorexia associated with weight loss in patients with AIDS; and
2. nausea and vomiting associated with cancer chemotherapy in patients who have failed to respond adequately to conventional antiemetic treatments.
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thomas
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Re: Marinol
« Reply #6 on: Feb 1st, 2007, 3:11pm » |
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on Feb 1st, 2007, 2:56pm, Woobie wrote:
Some type of "medical mary jane". Not good for MOST people who have CH.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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echo
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Re: Marinol
« Reply #7 on: Feb 1st, 2007, 3:15pm » |
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on Feb 1st, 2007, 3:11pm, thomas wrote:
Some type of "medical mary jane". Not good for MOST people who have CH. |
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CH, dry mouth and the munchies!! What a drag.
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Lizzie2
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Re: Marinol
« Reply #8 on: Feb 1st, 2007, 3:15pm » |
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Marinol is the active chemical in marijuana.
Very rarely prescribed, except for very specific circumstances - but not usually prescribed just for insomnia alone. There are a lot of other things to try for sleep, and I don't know any doctor who would just jump to marinol without having some other underlying condition that warrants it.
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Brew
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Re: Marinol
« Reply #9 on: Feb 1st, 2007, 3:23pm » |
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on Feb 1st, 2007, 3:15pm, Lizzie2 wrote:| ...I don't know any doctor who would just jump to marinol without having some other underlying condition that warrants it. |
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You mean, like, having a - a - a - wow, man. I totally forgot why I responded to this thread. Nuts.
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Lizzie2
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Re: Marinol
« Reply #10 on: Feb 1st, 2007, 3:25pm » |
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on Feb 1st, 2007, 3:23pm, Wilbur wrote:
You mean, like, having a - a - a - wow, man. I totally forgot why I responded to this thread. Nuts. |
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LOL...as my brother would say about some of the things I've mentioned to treat headaches, "Wow! My head doesn't hurt, but I can't feel my feet! Where are they, anyway?" lol....
CH would not be an underlying condition that warrants the use of Marinol. 
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BIX
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Re: Marinol
« Reply #11 on: Feb 1st, 2007, 9:48pm » |
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on Feb 1st, 2007, 2:54pm, thomas wrote:| I would use extreme caution in taking a cannabinoid while in cycle. |
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have you had a bad reaction while in a cycle? i use only small amount 6mg , and i have found success for sleeping through the night.
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BIX
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Re: Marinol
« Reply #12 on: Feb 1st, 2007, 9:55pm » |
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on Feb 1st, 2007, 3:15pm, Lizzie2 wrote:Marinol is the active chemical in marijuana.
Very rarely prescribed, except for very specific circumstances - but not usually prescribed just for insomnia alone. There are a lot of other things to try for sleep, and I don't know any doctor who would just jump to marinol without having some other underlying condition that warrants it. |
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i asked about it, to my doctor after trying some from a person who used it for migrains. I read about people using it for migrains, so since I had tried so many other migrain things might as well. Helps me sleep through the night, does not abort ch when it has already started. It does not stop more chs, but helps me sleep without ch. Why do you say it is rarely prescribed? Have you had experience with this drug, should I stop using it? I know the stigmatism.
bix
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thebbz
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Re: Marinol
« Reply #13 on: Feb 1st, 2007, 11:01pm » |
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BIX,
Maryjane is a trigger 
It would not be out of line to assume marinol would as well. 
Never relax ever.
jb
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BIX
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Re: Marinol
« Reply #14 on: Feb 1st, 2007, 11:55pm » |
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on Feb 1st, 2007, 11:01pm, thebbz wrote:BIX,
Maryjane is a trigger
It would not be out of line to assume marinol would as well.
Never relax ever.
jb |
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My triggers are high physical activity ( running or cardio associated things, smoking, alcohol, extream heat, and heavy fumes of any type, what are yours, and do you run into people who have the exact same triggers? Are we all the same, because some people with ch don't have the same as me
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thomas
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Re: Marinol
« Reply #15 on: Feb 2nd, 2007, 9:11am » |
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on Feb 1st, 2007, 9:48pm, BIX wrote:
have you had a bad reaction while in a cycle? i use only small amount 6mg , and i have found success for sleeping through the night. |
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Yep, won't ever go there again.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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George_J
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Re: Marinol
« Reply #16 on: Feb 2nd, 2007, 9:27am » |
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Bix, you may be thinking that people are picking on you, but they're not.
Most likely no one else here has any experience with Marinol and CH, but I'm sure that many here have had experience with delta-nine-tetrahydrocannabinol and CH. Anecdotally, the majority of those here who have used the usual product containing THC have found it to be a trigger that precipitates a CH attack, just as the majority of of us who've tried alcohol in cycle have found it to be a trigger as well.
If you were to tell us that a shot of whiskey helps you to sleep when you're in a CH cycle, it would be regarded with some skepticism. In the same way, when you say that Marinol (synthetic delta-9-THC) helps you to fall asleep during a cycle, it's going to elicit some skepticism. Sure--we're all different--but there are things that are true for the majority of us.
One thing you can be sure of--whenever anything is presented that we've not heard of before, we're going to ferret out everything we can about it, and discuss it in detail. Few of us believe in a magic bullet anymore, but most of us believe that there are plenty of things out there that are recommended or prescribed that don't do most of us any good. That is also consistent with our experience.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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BIX
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I love YaBB 1G - SP1!
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Re: Marinol
« Reply #17 on: Feb 2nd, 2007, 10:45am » |
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on Feb 2nd, 2007, 9:27am, georgej wrote:Bix, you may be thinking that people are picking on you, but they're not.
Most likely no one else here has any experience with Marinol and CH, but I'm sure that many here have had experience with delta-nine-tetrahydrocannabinol and CH. Anecdotally, the majority of those here who have used the usual product containing THC have found it to be a trigger that precipitates a CH attack, just as the majority of of us who've tried alcohol in cycle have found it to be a trigger as well.
If you were to tell us that a shot of whiskey helps you to sleep when you're in a CH cycle, it would be regarded with some skepticism. In the same way, when you say that Marinol (synthetic delta-9-THC) helps you to fall asleep during a cycle, it's going to elicit some skepticism. Sure--we're all different--but there are things that are true for the majority of us.
One thing you can be sure of--whenever anything is presented that we've not heard of before, we're going to ferret out everything we can about it, and discuss it in detail. Few of us believe in a magic bullet anymore, but most of us believe that there are plenty of things out there that are recommended or prescribed that don't do most of us any good. That is also consistent with our experience.
Best wishes,
George |
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Thanks george, yeah i have had these for 10 years now, I know there is no cure, and like you do not look for the magic bullet. just try to find ways to make life more normal.
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Josh W
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Re: Marinol
« Reply #18 on: Feb 2nd, 2007, 11:09am » |
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I have had clusters for 11 years now. I had an aracnoid cyst removed off of my frontal lobe as a young child. Up until last year I was told that my seasonal ha were ghost pains from my surgery. I have taken every kind of pain killer it seems. Since it was ch of course they did not work. I have used mary jane for years to help through the hard times, pain and emotion. Mary does not help with the pain or occurence. It does relax my muscles and this I feel helps take that tension that adds to the pain. I may just be trying to justify my use to my self, but it does seem to help. It is not a cure or an abortive.
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fubar
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Re: Marinol
« Reply #19 on: Feb 2nd, 2007, 12:06pm » |
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I know everyone here freaks out when we associate our beloved CH with migraine, but the fact is they are closely related. I am blessed with both chronic CH and migraine. I won't argue with the folks that say that pot is a trigger, but I have found the exact opposite to be true. I am not the only one either.
"Cannabis, or marijuana, has been used for centuries for both symptomatic and prophylactic treatment of migraine. It was part of the Western pharmacopoeia for this indication even into the mid-twentieth century. Current anecdotal studies continue to refer to its efficacy for this malady, while biochemical studies of THC and anandamide have provided a scientific basis for such treatment. "
http://www.maps.org/mmj/98russoproto.html
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thomas
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Re: Marinol
« Reply #20 on: Feb 2nd, 2007, 12:43pm » |
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on Feb 2nd, 2007, 12:06pm, fubar wrote:I know everyone here freaks out when we associate our beloved CH with migraine, but the fact is they are closely related. I am blessed with both chronic CH and migraine. I won't argue with the folks that say that pot is a trigger, but I have found the exact opposite to be true. I am not the only one either.
"Cannabis, or marijuana, has been used for centuries for both symptomatic and prophylactic treatment of migraine. It was part of the Western pharmacopoeia for this indication even into the mid-twentieth century. Current anecdotal studies continue to refer to its efficacy for this malady, while biochemical studies of THC and anandamide have provided a scientific basis for such treatment. "
http://www.maps.org/mmj/98russoproto.html |
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Hey Fu, if you'll notice, I said it isn't good for MOST CH'ers. Nothing is ever 100% with this shit, ever. What works to relieve some one's pain, may increase another's.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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fubar
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Re: Marinol
« Reply #21 on: Feb 2nd, 2007, 12:54pm » |
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Like I tried to say in my post... not arguing about that Thomas... just providing a different data point and research.
-Fu
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thomas
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Re: Marinol
« Reply #22 on: Feb 2nd, 2007, 1:09pm » |
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I just don't want to be misunderstood.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Yorky
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Re: Marinol
« Reply #23 on: Feb 2nd, 2007, 1:27pm » |
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will someone break this thread down for me
is marinol cannabis ? (thc)
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kcopelin
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Re: Marinol
« Reply #24 on: Feb 2nd, 2007, 1:43pm » |
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Yorky,
Marinol is synthetic THC, tetrahydrocannabonol (sp?)
In pill form, used to treat problems associated with cancer/chemo, AIDS induced weight loss....
My doctor actually offered to refer me to a doc who will write a script for medicinal marijuana-not Marinol, but actual smokable stuff. Course, I'd have to go to Sacramento or San Francisco to get the script filled and then still run the risk of being arrested on Federal charges-we have medical marijuana laws in CA that do not conform to Federal laws.
Had I not heard from so many that it is a trigger, I probably would have taken my doc up on that offer.
Now I'm hearing that there are people who it has helped. Hmmm....
Can't see me as a 50 year old pot head.
PFDAN y'all
kathy
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