Author |
Topic: My visit to the FNP........ (Read 742 times) |
|
aubmari
New Board Old Timer
Do not lose heart~
Gender: 
Posts: 362
|
 |
My visit to the FNP........
« on: Jan 30th, 2007, 1:30pm » |
 Quote  Modify
|
I went to the DR or I guess in my case the FNP and they brought me back to the room and there on the wall was a poster about rating your headache and the chart actually listed Migraine, CLUSTER!!!!, and tension. I have never seen anything re: cluster on a wall. So the nurse walks in and I told her how I was shocked to see this poster because there aren't alot of people who know about clusters. She said "yah, you know there are alot of people who dont think that they are even real?" ummm escus-e-muah! Do a majority of people really think that it is all in our head? (no pun intended) but really????
Aubmari
|
|
 IP Logged |
Life is too short for drama & petty things, so kiss slowly, laugh insanely, Love deeply and forgive quickly.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender: 
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #1 on: Jan 30th, 2007, 1:52pm » |
Quote Modify
|
I used to get pissed off at this (people's lack of knowledge), but now I just try to "forgive them, for they know not what they do."
And speaking of ignorance, what's FNP?
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: My visit to the FNP........
« Reply #2 on: Jan 30th, 2007, 1:55pm » |
Quote Modify
|
I'm guessing Family Nurse Practicioner
|
|
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #3 on: Jan 30th, 2007, 1:58pm » |
Quote Modify
|
Makes sense to me.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
thomas
CH.com Alumnus
New Board Hall of Famer
"Hit like a phillips head into my brain."
Gender:
Posts: 3281
|
|
Re: My visit to the FNP........
« Reply #4 on: Jan 30th, 2007, 2:16pm » |
Quote Modify
|
I was thinking "Fuckin' Neurologist Prick" 
|
|
IP Logged |
Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #5 on: Jan 30th, 2007, 2:17pm » |
Quote Modify
|
Makes sense to me.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
thomas
CH.com Alumnus
New Board Hall of Famer
"Hit like a phillips head into my brain."
Gender:
Posts: 3281
|
|
Re: My visit to the FNP........
« Reply #6 on: Jan 30th, 2007, 2:23pm » |
Quote Modify
|
Guess it all depends on your perspective. 
|
|
IP Logged |
Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #7 on: Jan 30th, 2007, 2:24pm » |
Quote Modify
|
You see, I'm just a caveman...
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
 
 
Gender:
Posts: 11720
|
|
Re: My visit to the FNP........
« Reply #8 on: Jan 30th, 2007, 2:34pm » |
Quote Modify
|
Brew's a trog
(love ya really Brew!)
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
aubmari
New Board Old Timer
Do not lose heart~
Gender:
Posts: 362
|
|
Re: My visit to the FNP........
« Reply #9 on: Jan 30th, 2007, 2:41pm » |
Quote Modify
|
No I totally understand their lack of understanding ex: the extreme pain etc but just blew me away that she was like ......... they aren't real? Whoever wishes to trade me for even five minutes...... feel free to do so. I would never do that because it isn't in me but you feel like it sometimes.
Aub
|
|
IP Logged |
Life is too short for drama & petty things, so kiss slowly, laugh insanely, Love deeply and forgive quickly.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #10 on: Jan 30th, 2007, 2:46pm » |
Quote Modify
|
Ahhemmmm....back to the subject matter. I truly don't believe that a majority of people think it's all in our heads. I believe they don't know and don't care. Being born with a defective hypothalmus doesn't put me on a stage where I have to convince paying patrons that my pain is real. It is real - I know it, my bride and my son know it, my neuro knows it, and each of you know it. That's all that matters.
When it comes right down to it, who cares what everybody else believes?
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
aubmari
New Board Old Timer
Do not lose heart~
Gender:
Posts: 362
|
|
Re: My visit to the FNP........
« Reply #11 on: Jan 30th, 2007, 2:59pm » |
Quote Modify
|
true enough... great perspective. I guess it just put me off a little. I am better now
|
|
IP Logged |
Life is too short for drama & petty things, so kiss slowly, laugh insanely, Love deeply and forgive quickly.
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
 
Gender:
Posts: 6721
|
|
Re: My visit to the FNP........
« Reply #12 on: Jan 30th, 2007, 3:01pm » |
Quote Modify
|
Quote:| who cares what everybody else believes? |
|
Because of :
ER personel who call us drug-seekers
Family Doctors who have no clue.
Dentists who pull peoples healthy teeth
Pharmaceutical Co.s
Ins. Co's who limit our drugs based on a Migraine criteria.
Employers who NEED to understand before they fire us.
Friends, family or colleagues who make us more depressed by the lack of understanding.
|
|
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #13 on: Jan 30th, 2007, 3:04pm » |
Quote Modify
|
My pleasure.
And it's Helen's pleasure to point out that I'm a troglodyte. 
At least I know she loves me.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #14 on: Jan 30th, 2007, 3:09pm » |
Quote Modify
|
on Jan 30th, 2007, 3:01pm, Linda_Howell wrote:
Because of :
ER personel who call us drug-seekers
Family Doctors who have no clue.
Dentists who pull peoples healthy teeth
Pharmaceutical Co.s
Ins. Co's who limit our drugs based on a Migraine criteria.
Employers who NEED to understand before they fire us.
Friends, family or colleagues who make us more depressed by the lack of understanding.
|
|
You're right, Linda. I should modify my response: who cares what other people who cannot affect my health or the care thereof think?
I won't lump your last bullet point in with that, however. Other people cannot make me more depressed. Only I can do that.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Cathi04
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1745
|
|
Re: My visit to the FNP........
« Reply #15 on: Jan 30th, 2007, 3:12pm » |
Quote Modify
|
Hear, Hear, Linda! People who serve the Clusterhead community NEED to understand in order to serve appropriately!
Awareness!!!!!!!!!!!!!!!!!!!!!!!!!!!
Brew, some of these people do need to be excused, but only ONCE, then they should have been educated.
Yes, it's a "headache".but the similarity stops there. It is like NO other headache, in a class by itself!
Cathi
|
|
IP Logged |
Life is not measured by the number of breaths we take but by the moments that take our breath away.
|
|
|
Tara Ann
CH.com Alumnus
New Board Hall of Famer
It's always darkest before the dawn.
Gender:
Posts: 2459
|
|
Re: My visit to the FNP........
« Reply #16 on: Jan 30th, 2007, 3:21pm » |
Quote Modify
|
on Jan 30th, 2007, 2:41pm, aubmari wrote:No I totally understand their lack of understanding ex: the extreme pain etc but just blew me away that she was like ......... they aren't real? Whoever wishes to trade me for even five minutes...... feel free to do so. I would never do that because it isn't in me but you feel like it sometimes.
Aub |
|
That has ALWAYS been what I say, "I wouldn't wish this pain on anyone BUT if so and so could just have a Cluster for just a minute......."
|
|
IP Logged |
http://www.myspace.com/taraann77
 
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #17 on: Jan 30th, 2007, 3:24pm » |
Quote Modify
|
on Jan 30th, 2007, 3:12pm, Cathi04 wrote:Hear, Hear, Linda! People who serve the Clusterhead community NEED to understand in order to serve appropriately!
Awareness!!!!!!!!!!!!!!!!!!!!!!!!!!!
Brew, some of these people do need to be excused, but only ONCE, then they should have been educated.
Yes, it's a "headache".but the similarity stops there. It is like NO other headache, in a class by itself!
Cathi |
|
To a point, yes. If someone can have any impact on my health or my healthcare, then yes, they should be educated.
The reality is, though, that most people don't know about CH and therefore can't care about it. I only have to walk into a wall once before I realize that it's not a door.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: My visit to the FNP........
« Reply #18 on: Jan 30th, 2007, 4:25pm » |
Quote Modify
|
--------She said "yah, you know there are alot of people who dont think that they are even real?"----------
First it was the Loch Ness Monster, then Area 51, then Susquatch. Now, Cluster Headaches.
So I'm picturing some Deliverance looking mf'er saying it sometihng like this:
"Lotta people round these parts ain't never actually seen one in person. Been rumored to live back in those woods. Couple of old droopy eyed old witches back in the woods just call him "the beast". Me, I don't believe'm"
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: My visit to the FNP........
« Reply #19 on: Jan 30th, 2007, 5:36pm » |
Quote Modify
|
Dr. Donohue, the newspaper MD, today replied to a headache question saying that not all severe headaches are Migraines. No shit. Not a peep about clusters in the reply however.
I have to be fair though; he has mentioned clusters several times. But Geeze.... 
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
Gender:
Posts: 14968
|
|
Re: My visit to the FNP........
« Reply #20 on: Jan 30th, 2007, 5:58pm » |
Quote Modify
|
Not sure if anyone has a use for it but feel free. It's from the cover of a May 1940 Amazing Stories that I sold on ebay. The eyes are right anyway
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
Gender:
Posts: 6721
|
|
Re: My visit to the FNP........
« Reply #21 on: Jan 30th, 2007, 7:36pm » |
Quote Modify
|
Yep. I saw that same exact story in my newspaper Charlie and I gasped. What an opportunity to maybe SUGGEST clusters.
I agree with you too Brewcrew about the depressed part.
I give a rats behind, about people I meet who don't understand and not be depressed about it at all. but there ARE others here who cannot and their lives are affected by that.
|
|
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
Redd
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 6661
|
|
Re: My visit to the FNP........
« Reply #22 on: Jan 30th, 2007, 7:54pm » |
Quote Modify
|
Quote:who cares what other people who cannot affect my health or the care thereof think?
|
|
Here is where the line needs to be drawn.
Although these people may not affect "our" life and health, they may be in a position where the lack of education and understanding may affect the life and health of another brother or sister in arms with this condition.
That is why each and every person MUST understand CH well enough to sympathize as they do with people they have contact with suffering Migraine even though they don't suffer for themselves.
That is point of educating about Migraine, so that there is an understanding and willingness to make the needed accomidations for the sufferers.
It's no less, if not more SO important to educate on CH to the same degree.
|
|
IP Logged |
I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: My visit to the FNP........
« Reply #23 on: Jan 30th, 2007, 8:26pm » |
Quote Modify
|
on Jan 30th, 2007, 7:54pm, Redd715 wrote:
Here is where the line needs to be drawn.
Although these people may not affect "our" life and health, they may be in a position where the lack of education and understanding may affect the life and health of another brother or sister in arms with this condition.
That is why each and every person MUST understand CH well enough to sympathize as they do with people they have contact with suffering Migraine even though they don't suffer for themselves.
That is point of educating about Migraine, so that there is an understanding and willingness to make the needed accomidations for the sufferers.
It's no less, if not more SO important to educate on CH to the same degree.
|
|
Maybe this is just a semantic argument, but I pissed into the wind once. I got it all over myself. From it I learned not to piss into the wind anymore.
I'm not saying that the world wouldn't be a better place if a lot more people knew about CH. I try to educate everyone I can if the circumstances are right. But if I made it my mission in life to convert the world, it's all I'd be doing. I've got other things that I like to do, and most of them don't involve thinking about CH.
Like I said, I think this is just a semantic argument. I'm pretty sure I'm on the same page as most everyone else here. I'm certainly not anti-education. But I have a life to live, too.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Redd
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 6661
|
|
Re: My visit to the FNP........
« Reply #24 on: Jan 30th, 2007, 8:48pm » |
Quote Modify
|
I understand that Brew, truely I do...
But if everyone took that stance, there would be no OUCH, and no one working to further the cause of our plight.
We are all we have...I don't see any celebrities or Politicians coming to help us.
I remember back when I first was getting Divorced and was asked to run for a seat on the BoD of the Women in Poverty Innitiative. My first thought was...I'm living in low income poverty housing..what can I offer to this...
"Who better..." I was told...
A "so called" friend aske me...why do you have to do this, why not just live your life...
I said to her...
If everyone felt that way, no one would ever stand up for something and there would never be change....if not me...then who?
Maybe it's closed some doors for me, but it's opened even more.
|
|
IP Logged |
I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss